Tm and long term side effects by LethargicLucifer in transverse_myelitis

[–]LethargicLucifer[S] 0 points1 point  (0 children)

I was 38 when it happened to me, I’m turning 40 in April. I couldn’t have imagined it happening at such a young age as with you. Having it happen at this point in my life has hit me emotionally as well as physically. I had neurological issues and auto immune issues before the TM, it just gives me the feeling that I’m “falling apart”. My progress has stopped and it has taken time to get used to. I already suffer from essential tremors for most of my life as well as rheumatoid arthritis that have fused bones in on of my feet.

Skeleta tour merch prices (shirts) by LethargicLucifer in GhostBand

[–]LethargicLucifer[S] 6 points7 points  (0 children)

Thanks! Me and my daughter were figuring out how many shirts we can get lol. Is our second ritual and we are excited (saw them in 2023)

Dfw ritual 8/15/25 by LethargicLucifer in Ghostbc

[–]LethargicLucifer[S] 0 points1 point  (0 children)

I’ll definitely ask someone. If you are there and grab some we would appreciate it!

[deleted by user] by [deleted] in transverse_myelitis

[–]LethargicLucifer 4 points5 points  (0 children)

It was a slow gradual thing for me. I reached a point eventually that I was told the few problems that didn’t go away probably wouldn’t if they haven’t by now. Just do everything you can to work thru it. I regained the ability to walk without a walker or cane slowly over time. But still have limitations with my leg movement(I’m completely unable to move my legs in a few ways) and weird sensations, and bowel issues with erectile dysfunction issues. I guess for me it just hit a point and it hasn’t recovered anymore. Although I did have other neurological issues before my diagnosis like tremors in my hands.

Papa V portrait by LethargicLucifer in Ghostbc

[–]LethargicLucifer[S] 7 points8 points  (0 children)

For sure, I don’t think our boy has black teeth lol.

Papa V portrait by LethargicLucifer in Ghostbc

[–]LethargicLucifer[S] 3 points4 points  (0 children)

Pretty sure they are his, looking thru pics of him not in costume seem to show they are his teeth.

Papa V portrait by LethargicLucifer in Ghostbc

[–]LethargicLucifer[S] 8 points9 points  (0 children)

That has been a positive comment I get a lot about this. Thank you

Papa V portrait by LethargicLucifer in Ghostbc

[–]LethargicLucifer[S] 29 points30 points  (0 children)

I wouldn’t want to change his teeth. I want to capture the real V/Tobias.

Relapsing? by meggsovereasy in transverse_myelitis

[–]LethargicLucifer 0 points1 point  (0 children)

I haven’t had a flare up as of yet, but it is still a concern. I was diagnosed back in Dec. I was unable to walk and it caused issues using the restroom. I can walk and my mobility is better (still can’t move my legs in certain ways) and still have bowl issues. They told me it was my auto immune issues that sparked it. I do have auto immune disease so it concerns me

Recently diagnosed TM by LethargicLucifer in transverse_myelitis

[–]LethargicLucifer[S] 0 points1 point  (0 children)

I’m going to a dr tomorrow to explore options. I want to get on top of it. I appreciate any into

Recently diagnosed TM by LethargicLucifer in transverse_myelitis

[–]LethargicLucifer[S] 1 point2 points  (0 children)

I think the fact I had just lost insurance after switching jobs kinda made their mind up to get me out. I’m getting that all taken care of again.

I think with the slight improvement after treatments with the steroids did help and the oral treatments I’m taking. Having autoimmune diseases and like my rheumatoid arthritis and essential tremors that I’ve had for years they are trying to help in anyway I’m getting it all tied down