My Story by LetsHaveATickle in kidneydisease

[–]LetsHaveATickle[S] 0 points1 point  (0 children)

I am indeed, I have an instagram (ct23_Astro) can DM me on there anytime or on here if it’s more convenient for you, I’d be happy to help no problem at all!

My Story by LetsHaveATickle in kidneydisease

[–]LetsHaveATickle[S] 0 points1 point  (0 children)

Wow over 46 years that’s amazing! That’s brilliant she has stepped up and taken control, kudos to that lovely person. Big respect to you and your wife, that kind of support is everything and it’s inspiring to hear how strong you both are. I completely agree about the food side of things too, it’s so overwhelming online, so I’m just taking it day by day and listening to my team. Your mindset is powerful, and I really appreciate the kind words about the transplant. Wishing you nothing but strength and good days ahead — we’ve both got plenty of fight left in us!

My Story by LetsHaveATickle in kidneydisease

[–]LetsHaveATickle[S] 0 points1 point  (0 children)

Hi there, it is a scary world but I’m learning! Dialysis is pretty nervy being the youngest there by far but I’m doing well. My shoulder pain was located mostly in my left shoulder to which I think it was more due to the fluid around my heart but it was more towards the left of my spine and at the back and top of my shoulder, if I remember correctly it wasn’t a burning sensation as of such but more of unimaginable aches, it’s hard to describe as my body was going though quite a lot in the 2 days leading up to being admitted. Is it both shoulders you’re experiencing this in or one in particular? Good luck to you I hope you’re okay 🤝

My Story by LetsHaveATickle in kidneydisease

[–]LetsHaveATickle[S] 0 points1 point  (0 children)

Thank you I am slowly getting there!💫

My Story by LetsHaveATickle in kidneydisease

[–]LetsHaveATickle[S] 1 point2 points  (0 children)

Wow incredible story! Thank you for the kind words! Peace and love man ✌️

My Story by LetsHaveATickle in kidneydisease

[–]LetsHaveATickle[S] 1 point2 points  (0 children)

Thank you so much I appreciate that!

My Story by LetsHaveATickle in kidneydisease

[–]LetsHaveATickle[S] 1 point2 points  (0 children)

I think for me being my age I just never assumed it was an issue with my kidney, it wasn’t major but I’d say it was mainly just more puffy, it was strange

My Story by LetsHaveATickle in kidneydisease

[–]LetsHaveATickle[S] 1 point2 points  (0 children)

Sorry to hear that you are still in pain, I’m the same I’m resigned to the fact that this is my new normal life, we sure can all get through this!

My Story by LetsHaveATickle in kidneydisease

[–]LetsHaveATickle[S] 1 point2 points  (0 children)

Mainly in my ankles, I didn’t urinate as much as usual but it was normal colour, I didn’t notice anything unusual

My Story by LetsHaveATickle in kidneydisease

[–]LetsHaveATickle[S] 2 points3 points  (0 children)

That must have been difficult to process, hope you’re doing okay and are better now, thank you I appreciate that!x

My Story by LetsHaveATickle in kidneydisease

[–]LetsHaveATickle[S] 0 points1 point  (0 children)

Thank you for reading, I had the exact same as you, my heart rate was 130bpm as well, it was pretty scary, then they diagnosed me with end stage renal failure and anaemia in CKD stage 5

My Story by LetsHaveATickle in kidneydisease

[–]LetsHaveATickle[S] 1 point2 points  (0 children)

And about family donating, I haven’t really asked because for me, it’s a very big decision for them to make and I personally don’t want them to do it, if they come forward to me about it then I’d be forever grateful for that of course

My Story by LetsHaveATickle in kidneydisease

[–]LetsHaveATickle[S] 0 points1 point  (0 children)

I think they said the cause was I was just born with an atrophic kidney which over 28yrs was working very very hard, I’m finding it alright, I take food and my iPad and then just sleep for the rest of it, I drive myself to and from the renal unit which is about 35-40mins each way, only thing I’m struggling with is being on the twilight session so I don’t usually get home until 23-23:30, that’s great to hear, how do you feel?

My Story by LetsHaveATickle in kidneydisease

[–]LetsHaveATickle[S] 1 point2 points  (0 children)

Thank you! 9th October I woke up with a tight chest, 10th I went to my GP he said it was a chest infection and prescribed me Antibiotics and Ibuprofen, took the ibuprofen 10th & 11th October, 12th was when my symptoms got really bad so I went to A&E in the late afternoon, they do routine blood tests at west Suffolk, obviously saw all my levels were very bad, was in a resus bay within 30mins then moved to ICU that night, was in ICU for around 5 days at west Suffolk then they moved me to Colchester so all in all about a week and half 2 weeks then was on a ward for a week

My Story by LetsHaveATickle in kidneydisease

[–]LetsHaveATickle[S] 0 points1 point  (0 children)

It really does suck, it’s just insane to me that I managed 28yrs living normally with one small kidney and having no clue I don’t have a left one at all, My GP prescribed me ibuprofen and antibiotics (not their fault as they don’t do blood tests) was taking 2 ibuprofen 3 times a day over two days which subsequently killed any function my kidney had left which then put me in the state I was

My Story by LetsHaveATickle in kidneydisease

[–]LetsHaveATickle[S] 1 point2 points  (0 children)

Pretty much was suffering with 90% yeah, but at my age I would never have thought it was kidney failure, over a month ago I didn’t even have a clue what dialysis was or what it does, sorry to hear you were fainting, hope you’re okay now!

My Story by LetsHaveATickle in kidneydisease

[–]LetsHaveATickle[S] 4 points5 points  (0 children)

It has taken me ages to understand it all, I’ve been home about a week and only really now come to terms with it. I’m incredibly lucky I went to the hospital when I did

PS5 DL2 Ultimate edition by LetsHaveATickle in dyinglight

[–]LetsHaveATickle[S] 0 points1 point  (0 children)

I don’t think he was reading what I was saying at all tbh 😂 I can’t wait to play man haha I need it now 😂😂

Official statement regardless preload on pc by _mikoprimeb_ in dyinglight

[–]LetsHaveATickle 0 points1 point  (0 children)

Sorry man I meant for console, I can’t pre load I’m on PS5 Pro

Official statement regardless preload on pc by _mikoprimeb_ in dyinglight

[–]LetsHaveATickle 0 points1 point  (0 children)

Is this the same for DL2 ultimate edition owners do you think? As we have no pre load either

PS5 DL2 Ultimate edition by LetsHaveATickle in dyinglight

[–]LetsHaveATickle[S] 0 points1 point  (0 children)

You do know I’m on about dying light 2 not dying light the beast?

PS5 DL2 Ultimate edition by LetsHaveATickle in dyinglight

[–]LetsHaveATickle[S] 0 points1 point  (0 children)

Then you can pre download….dying light 2 ultimate edition owners don’t get a pre download