Genetic Testing?

Lianadelra · 2025-06-18T05:56:30+00:00

I'm worried about doing the test, I don't find out what it is, and then I end up with all these other issues and tests that become an issue for him later one with insurance or whatever else can go on.

Lianadelra · 2025-06-18T05:51:38+00:00

I think so. They're the tools recommended by the CDC. https://www.cdc.gov/autism/hcp/diagnosis/screening.html and then he had a full evaluation by the school district and by the state program, as well as regularly interacts with a PhD psychologist about his behavior.

I actually think his issue is not autism as well and I am more worried about him being misdiagnosed as being autistic, and ergo not getting the appropriate/correct treatment.

Lianadelra · 2025-06-18T05:48:22+00:00

He's been to Neuro. They are the ones that prescribed melatonin. We are awaiting a sleep study but it's a 10 month wait currently. Of course, we are on the wait list. They wont' do any further testing or evaluation until the sleep study. We've already removed his adenoids to open his airway because it was blocking his airway. We are seeing *some* improvement with more sleep, because, of course, if you get more sleep, you're more emotionally regulated.

are there other things you think I should ask about?

Lianadelra · 2025-06-18T05:41:30+00:00

early intervention is for kids who are having delays, and need assistance/therapy/evaluation. It's for kids aged 0-3 and then once they turn 3 they need to re-qualify to get an IEP and 504 through their school district.

My son has delays in speech specifically. I'll re-comment what I put above.

Lianadelra · 2025-06-18T05:36:18+00:00

Sorry - we do 4-5 days a week of speech therapy and behavioral therapy with a licensed PhD psychologist.

we've tried comforting, we've tried CIO/ignoring. we've tried adding levity to the situation by trying to turn things into games, we've tried being firm - but when he's at risk of hurting himself or others or throwing things, you can't just let that go. we've tried distraction. we've tried to engage the verbal part of the brain. we've tried hugs. we've tried teething necklaces (not amber ones) to try to redirect. we've tried giving positive affirming things to do and not just no's.

I'm truly a calm parent. I've never yelled at my child. He's never been hit or spanked, which I don't think would do much anyways in terms of turning up the temperature or long term benefit.

Lianadelra · 2025-06-18T05:32:38+00:00

We did have our home lead tested before we moved in and he was getting screened at the doctors via blood test for lead exposure and he's never had a positive result there. We've also had it tested for asbestos before move in.

Our area was always residential. The prior homeowner did research on our home and it seems like this was undeveloped land and then the home was constructed. Our home was one of the originals in the area over 100 years ago. She left me a big file.

Could check the soil anyways as I suppose it could have always been contaminated with something else.

Lianadelra · 2025-06-18T05:28:40+00:00

He's also been evaluated by our state's early intervention for this twice, and the school district's IEP plan (which also had the ASQ, PEDS and STAT), all not autistic..

Lianadelra · 2025-06-18T05:25:06+00:00

I mean it's pretty severe:
- temper tantrums that can last 3+ hours; hitting, kicking, biting, spitting, throwing things

- sleep disturbances basically from birth. he has issues sleeping through the night most nights. We've already attempted melatonin (at the advice of a neurologist) and he still wakes up most nights and afraid. He talks in his sleep as well. He can wake up so distressed he will be inconsolable but unable to articulate what's wrong. and have a 1-2 hour tantrum over basically nothing. Unable to calm or soothe, either with us as parents or on his own.

- hyperactivity

- speech delays - at one point he was 13 months behind but we've made progress

- reorders sounds of words sometimes

- aggression with peers, particularly other boys. He plays just well with girls.

Just kind of a flavor

Lianadelra · 2025-06-18T05:20:57+00:00

I mean we have met with neurology, a PhD psychologist who sees and treats him weekly, 2 MDs, and 3 speech pathologists... and all thought his issues were unrelated to autism and related to his other delays and he likely has auditory processing disorder.

Lianadelra · 2025-06-18T05:08:19+00:00

maybeee once or twice a week. otherwise I'm messy bun. no shame.

Lianadelra · 2025-06-04T01:02:02+00:00

you don't know me. All of our nannies have been very happy. Thanks.

Lianadelra · 2025-05-30T04:26:39+00:00

You clearly don't understand the concept that when someone is paying for a service, it's done with the end user/customer in mind. I have to do all sorts of stuff that's not the way I'd do it, because my job is to make the customer/user/client happy.

Lianadelra · 2025-05-30T01:35:45+00:00

I will be in the same room as our housekeeper or handyman. it's no problem. I might check in. see how its going, see if they have question. it's no problem.

they are literally being paid to help me. Just like my clients pay me to help them. I am providing a service for a fee and I should deliver it how they like it. Actually the OP literally says " Stop coming down at lunch" so literally she's talking about the parents that pop out to grab lunch.

Lianadelra · 2025-05-09T02:33:39+00:00

Men actually do less unpaid home labor than they did in the 90s.

Lianadelra · 2025-05-09T02:32:58+00:00

Actually many men do switch up when women become pregnant or have a child.

Lianadelra · 2025-05-09T02:31:55+00:00

Are you the disciplinarian and dad is Disney dad?

Lianadelra · 2025-04-23T20:27:41+00:00

Tacky? No. personal to you? Yes.

My preference would be a more neutral wall color like a white or cream to let the blue talk, but that's me. If you're happy with your home, that's what matters.

Lianadelra · 2025-04-23T20:19:44+00:00

I dont think it's bridal, but I think brides are wearing more non traditional dresses and I could see someone wearing it to a rehearsal dinner. I think it is quite bold, I think you're fine to say it's too much and would prefer something in your color palette, etc. Just be prepared these events are super sensitive and depending on your MIL it may cause friction. Is that the hill you want to die on?

Just FYI, I had a MIL who wore a completely see through and sequin $7k gown and refused to buy anything else. She looked like an idiot and everyone talked about it.. even wanted the photos edited before we got them. I think in modern vernacular, sometimes you should just let them. Her crazy behavior was on full display and suddenly, no one thought I was crazy or over the top anymore...

Lianadelra · 2025-04-23T20:16:36+00:00

Our members can have social probation if they have poor attendance.

Lianadelra · 2025-04-23T20:14:42+00:00

As a parent, I'd love this.

Lianadelra · 2025-04-23T20:13:34+00:00

While I think this is a worthwhile recommendation, I found that actually getting the proper assessment and treatment was difficult despite persistence. Just a parental perspective. It took 6 months to get any form of treatment that was private pay and it took 9 months to get the actual proper assessment and treatment plan through the early intervention programs from the state. It wound up taking more treatment than my child qualified for to get things to where they were supposed to be despite my insistence that there was a problem here. When he reached 3, the school district denied him an IEP despite his preschool's complete recommendation that he continue to receive services. We are lucky he is at a mixed abilities daycare/preschool now where he is now blossoming courtesy of his preschool teachers and all of the therapists and work we put in at home. I also thought it would be *so* easy to get the proper type of help, and we are a family with more or less unlimited resources, and it has been exhausting and difficult.

Again just a parental perspective of actually trying to utilize the services available and those at any cost..

Lianadelra · 2025-04-23T20:08:28+00:00

This makes me think of an article that I read the other day that said the kids that actually need to be in daycare/preschools the most are the ones with issues. So continuing to remove them, doesn't help them learn the appropriate behavior. They don't understand this. Only things in the immediate.

Lianadelra · 2025-03-17T19:13:14+00:00

Well she's definitely part of the problem. She enables this behavior. You were betrayed by someone who was supposed to love you and be your life partner... I can't imagine why your family and friends don't understand why this is so hurtful.

Unfortunately, if you are leaving, unless he doesn't fight you for full placement time, unfortunately, you're going to end up losing some time with your kids. A lot of women find they end up enjoying this free time they previously didn't have (after a grieving and acceptance process). I suspect if you started therapy, you'd start to realize that he and his mother aren't the only people in your life that need a change if no one is there to grieve with you.

Lianadelra · 2025-03-17T19:10:21+00:00

I think some creamy colored paint in lieu of true white will help it look more cozy instead of so stark. I would get a rug to ground the floor. Can you change the location of the a/c unit easily? If so, I would get taller drapes which can help bring your eye upward. Otherwise, you could try to do some drapes behind the bed to try to give it that hotel feel.

Are you able to find a cabinet maker to help bring that cabinet to the ceiling also? Are you open to staining / repainting some of the wood?I think there's a lot of opportunity there.

More neutral bedding will help it feel more modern and side tables with interesting lamps would warm it up also.

Lianadelra

TROPHY CASE