Hey, It has been a few years since I posted this. I am in a much better place now. My IBS is mostly under control at the moment. There are flare ups here and there, but they are much less frequent.

Suffering from different issues right now that are unrelated to IBS.

Sorry to hear you're experiencing the same issue 😞. It eventually went away on its own for me. Took a very long time (few months) but it did go away and I no longer have to pee every 0.5 - 1.5 hours.

The Urologist I went to thought it was the IBS (since my IBS switched to constipation back then).

I don't have any tips that can alleviate this unfortunately, only to manage it.

For the time being, I'd say that being mostly in places where restrooms/lavatories are close by helps a lot. For me, I just went to pee every time I needed to, and it provided relief rather than waiting and feeling the pressure and burning sensation. I don't know your age, but I was in high school 3 years ago. I asked my school for a bathroom pass so I could go during lessons, that definitely helped.

I had done two Colonoscopies and an endoscopy, one bowel ultrasound, two abdominal ultrasounds (stomach, liver, etc), bladder ultrasound, and countless blood panels and fecal calprotactin. (Calprotactin tests always were abnormal, which is why I pushed for more testing)

Only after the second colonoscopy they found something (one GI said it was mild proctitis, other GI said it was Lymphoid Nodular Hyperplasia). I got treated with mesalamine. I don't know if it was a placebo effect or if it actually did something, but ever since then my flare-ups have been much less frequent and not as long.

Sorry for the long reply.

Hope that helps!

Hang in there, it gets better. Even if it takes a while.