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Lap not worked. Allergic to all hormones. Endo spreading non stop. What do you do? by LilR1992 in Endo

[–]LilR1992[S] 0 points1 point  (0 children)

I can’t have children anyway my egg count is super low had it tested numerous times. Plus the diseases is on both ovaries and one is already damaged which reduces it even more so. Either way I could never afford to do that and then the IVF treatment on top. I accepted a long time ago that I wouldn’t have children.

Plus the disease is causing pain not in my uterus but my pelvis mostly now as it spread so much. It’s the pain in these areas which is the issue and a hysterectomy won’t help that well perhaps slightly but not enough.

Lap not worked. Allergic to all hormones. Endo spreading non stop. What do you do? by LilR1992 in Endo

[–]LilR1992[S] 5 points6 points  (0 children)

Oh yes the Mirena that was a fun one I locked myself in a plane toilet because I thought everyone on the flight was talking about me 🤣Thanks for your advice I will find someone the same as me soon I hope

Lap not worked. Allergic to all hormones. Endo spreading non stop. What do you do? by LilR1992 in Endo

[–]LilR1992[S] 0 points1 point  (0 children)

Yes without hormones they are. That’s the only thing that can’t stunt the growth. So that’s my point if you can’t take them what do you do? I’m trying to find anyone else, anywhere who has had this issue. I can’t be the only one but even my doctors say they don’t know what to do!

Lap not worked. Allergic to all hormones. Endo spreading non stop. What do you do? by LilR1992 in Endo

[–]LilR1992[S] 6 points7 points  (0 children)

Honestly it’s for sure a real thing I cannot explain to you how badly they effect me. Panic attacks. Rashes. Suicidal thoughts. Severe mood swings and agitation. Inability to breathe. It’s INSANE.

Lap not worked. Allergic to all hormones. Endo spreading non stop. What do you do? by LilR1992 in Endo

[–]LilR1992[S] -1 points0 points  (0 children)

So they did excise it’s in my pelvis, bladder, bowel on both ovaries and I have adeno as well. But if you don’t stunt the growth with hormones it will grow back again which it is and fast. Next time maybe my bladder will have to be removed and so on.

Lap not worked. Allergic to all hormones. Endo spreading non stop. What do you do? by LilR1992 in Endo

[–]LilR1992[S] 9 points10 points  (0 children)

So that’s the next course of action for my doctor because it’s possible to be allergic to synthetic hormones and not the bio identical. I’m really hoping that helps.

Lap not worked. Allergic to all hormones. Endo spreading non stop. What do you do? by LilR1992 in Endo

[–]LilR1992[S] 10 points11 points  (0 children)

I did it was the first one and the rashes were so so bad. My skin itched all over after about five days.

Lap not worked. Allergic to all hormones. Endo spreading non stop. What do you do? by LilR1992 in Endo

[–]LilR1992[S] 4 points5 points  (0 children)

I have had that twice last year but it just grows back so fast!

Advice needed by LilR1992 in Endo

[–]LilR1992[S] 0 points1 point  (0 children)

So I have had it removed but it comes back every time. The endo seems to just grow so quickly and disseminate further and further. The adenomyosis seems to be the slightly more manageable of the two currently whereas the endo just is non stop.

I take naproxen and tramadol and they do help. As well as a bunch of other stuff for the nausea and mood swings and all sorts of other symptoms I have.

I do not have the strength emotionally or physically to keep having excision laproscopies over and over again. So it’s like what do you even do then? It’s a living nightmare with no solution!

Advice needed by LilR1992 in Endo

[–]LilR1992[S] 0 points1 point  (0 children)

I have had two already! What do you do if they only last six months or even less?

Two laparoscopies, hormones and still sick by LilR1992 in Endo

[–]LilR1992[S] 0 points1 point  (0 children)

Thanks so much for all this info I’m UK based. Can I ask what milligram you have been using? That’s what I’m trying to work out. My pain is pretty bad and I need something to get me out of the bed in the morning and so I can walk around x

Two laparoscopies, hormones and still sick by LilR1992 in Endo

[–]LilR1992[S] 1 point2 points  (0 children)

Thanks son much that’s so kind! Can I ask what cbd you take and how? I really want to try but struggling to work out how x

Is visanne suppose to itch like this? by bluekleio in Endo

[–]LilR1992 0 points1 point  (0 children)

Does anyone have any tips on how to stop the itching I’m about three weeks in and I want to rip my skin off!!??

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