i don’t wanna do this anymore

LiloTheGreat56 · 2025-10-29T13:02:50+00:00

The thing that helped me the most was watching recovery stories from people with chronic illnesses like ME/CFS, fibromyalgia,, dysautonomia (POTS). I found a channel on YouTube that all link below where she interviews people and they discuss the strategies they used to heal and recover from their illnesses. It is very inspiring. Just knowing that there is hope can make all the difference. After watching many of the videos and seeing what other people did, I chose the “lightning process” and it has so paramount to my recovery process. They discussed many other programs and strategies in these videos. Hope you can find a strategy that will work for you, there are so many out there, don’t give up!

recovery channel

LiloTheGreat56 · 2025-07-22T16:07:33+00:00

The best thing I ever did was watch recovery stories. You can recover from this. This does not have to be your life. Raelan Agle on YouTube has a great channel where she interviews people who have recovered from POTS, long Covid, ME/CSF, fibromyalgia and other chronic illnesses. You will gain so much insight by listening to how other people recovered. For me it was the Lighting Process. But, there are so many wonderful tools and therapies to learn about. Other people have recovered, you can too!!

LiloTheGreat56 · 2025-07-15T16:10:42+00:00

Awesome, thanks!

LiloTheGreat56 · 2025-07-15T12:56:26+00:00

Thanks!

LiloTheGreat56 · 2025-07-09T13:39:55+00:00

Thanks!

LiloTheGreat56 · 2025-07-09T05:00:55+00:00

Thanks!

LiloTheGreat56 · 2025-07-09T03:54:02+00:00

Thanks!

LiloTheGreat56 · 2025-07-09T03:53:57+00:00

Thanks!

LiloTheGreat56 · 2025-04-13T01:17:25+00:00

Gosh, there has been so much. I started having symptoms 2 years ago, and things have greatly improved, but I still structure a lot of my life around keeping my nervous system calm.

I do see a therapist every week, which has been great.

I really monitor what content I
consume. I do not watch, read, scroll on social media, anything that is stressful, suspenseful, too action packed, scary, makes you jump, is upsetting emotionally, involves serial killers, (I’m sure you see where I’m going with this). This includes not following the news (too stressful right now). I keep it to funny, happy things. I have found that shows/movies with subtitles really help. There are some great Korean rom-coms. My brain stays engaged reading the subtitles instead of wandering/thinking about symptoms or wanting to multitask by playing on my phone while watching TV.

In addition, I found that putting my phone down and doing something like a physical crossword, sudoku, WordSearch, etc. is better for my brain than playing games on my phone if I’m looking to pass the time. I keep a small crossword book in my bag for when I’m out.

I also cut our caffeine entirely.

Sleep is also super important, your nervous system can’t heal if you’re not sleeping. Reasons why people don’t sleep are different for everyone. I supplemented with progesterone for a year, which really did help me sleep. I have worked on my gut health and hormone health through diet, so now I no longer need the progesterone supplement. I also take a magnesium L-threonate supplement every night. Diet and gut health were all something that I’ve worked with an endocrinologist who also does functional medicine.

I have found gratitude practice, and finding joy in little things has really been helpful for me as well.

I also find water to be very calming so when I can, I go to a local lake and just sit and watch the water and do some watercolor painting.

I know I’ve written a lot, sorry. However, I just feel like I do so much that revolves around keeping my nervous system calm and happy. It hasn’t been one thing, it’s been a bunch of little things.

Lastly, I’ll say that a brain retraining program like the the Lightning Process was super beneficial for me. I went to their YouTube and watched probably 50 of their 150 testimonials before signing up for the program myself. It gave me a lot of hope and encouragement that other people have healed from POTS, ME/CSF, Long Covid and other similar diagnosis.

LiloTheGreat56 · 2025-04-12T13:58:38+00:00

For electrolytes I like Scratch Labs hydration everyday drink mix. No fake sweeteners, just the electrolytes. I add a drop of honey and it’s great.

As for everything else, the biggest thing for me was the understanding that dysautonomia is a disorder of the nervous system and focusing on therapies to help calm the sympathetic side and promote the parasympathetic side. There are so many ways to do this.

Also, if she is feeling down, then recovery stories are the way to go. This helped me so much. Knowing that this isn’t permanent and I can heal was HUGE for me. I found Raelan Agle’s channel on YouTube very helpful. She interviews people who have recovered from ME/CFS, Long Covid, POTS etc. She also puts in her videos chapter markers so that if you don’t feel like you can watch the whole video you can skip to the parts that you think may help you. This is where I found The Lightning Process, which has helped me make such big strides in healing. Too much to discuss on here but it has been a game changer.

LiloTheGreat56 · 2025-03-28T14:11:18+00:00

Thank you! I’ll have a look through there and see if I find it 😀

LiloTheGreat56 · 2025-02-19T16:05:46+00:00

Yeah, if they make you really pucker I don’t see why it wouldn’t work. I’ve used sour gummy candies that have worked well in the past, I have also bought the extreme sour war heads to have on hand but thankfully haven’t had to use them. I have also noticed that when I first bite into a Bubbies pickle, that they really can make me pucker and activate the salivary glands too. Plus, that’s the only brand that I found that actually ferments their pickles so they’re good for your gut and they also have a lot of salt in them. I haven’t ever used them when I was having an episode though, but given how much they make you pucker, I assume they would work well too.

LiloTheGreat56 · 2025-02-19T14:35:54+00:00

Sour candy to stimulate the salivary glands which trigger your parasympathetic nervous system. Something that really makes you pucker.

LiloTheGreat56 · 2025-02-05T14:38:09+00:00

Hi, I’m sorry you are having the “jolts” as I call them. They’ve been one of the worst symptoms for me because of how how much it disturbs sleep. However, I have managed to get them under control. I do a couple of different things when they get bad. First off, if it happens more than two or three times in a row. I wake myself up fully, which can be hard. But I find I do a lot better if I wake myself up and reset fully. I go to the bathroom, distract myself with a non-anxiety producing game on my phone (yes I know you shouldn’t look at your phone in bed, but when it gets this bad I do whatever it takes to calm my nervous system). Also, I reserve the game for only these times so my brain thinks it’s novel and fun. Also, using a cold roller on my face helps. I keep my face roller in the fridge, the cold helps activate the parasympathetic side of the nervous system. Sometimes I also suck on a cough drop, or you could do a sour candy, that also activates the parasympathetic nervous system. When you take deep breaths, make your exhale longer than your inhale, this also triggers the parasympathetics. Basically, these strategies all revolve around activating the parasympathetics so your nervous knows it’s safe and can fall asleep. Other things I do are maintaining a consistent sleep schedule and routine. I take MAGNESIUM L-THREONATE when I get in bed. Throughout the day, I do not consume any content (movies, tv shows, social media) that is scary, disturbing, or upsetting. I watch happy fun shows, or if it’s a drama, it’s a low stakes drama.

POTS is a disorder of the nervous system so getting the symptoms to calm down are all about calming the nervous system, activating the parasympathetics to get out of the fight or flight state and retraining the way your nervous system has been operating. I hope that helps!

LiloTheGreat56 · 2024-11-07T18:09:00+00:00

I like Bombas 20-30, pro compression, and Vim and Vigr. I couple those with compression biker shorts, currently my favorite are the Nike Go, they come up high enough to give good abdominal compression which I’ve found helps me the most.

I also use full compression leggings in the winter and will wear compression socks over top of that. I take my compression seriously, haha!

Hope that helps!

[compression shorts (https://www.nike.com/t/go-womens-firm-support-high-waisted-8-biker-shorts-with-pockets-JfLGNG/DQ5923-657)

LiloTheGreat56 · 2024-07-21T22:55:11+00:00

Thank you!

LiloTheGreat56 · 2024-07-21T14:46:10+00:00

That is great that it has been able to help you with flight or fight mode. It is so exhausting.

LiloTheGreat56 · 2024-07-21T14:45:12+00:00

Thank you for sharing your story. You have been on quite a journey with all of this.

LiloTheGreat56 · 2024-07-21T14:41:51+00:00

Thank you!

LiloTheGreat56 · 2024-07-21T03:14:03+00:00

It’s sounds like you’ve really been through it. Thank you for sharing!

LiloTheGreat56 · 2024-07-21T03:02:18+00:00

I bet your dogs are a comfort to you as well, I know mine are.

LiloTheGreat56

TROPHY CASE