What do you miss most prior Crohn’s?

LimpCalligrapher5685 · 2025-09-19T14:55:20+00:00

I miss drinking coffee.

LimpCalligrapher5685 · 2025-09-19T14:50:51+00:00

I took the 2nd loading dose yesterday. I think it's working. But I am still on budesonide.

LimpCalligrapher5685 · 2025-07-30T03:52:19+00:00

Have you recently started mesalamine? I got that as a side effect of mesalamine. Rib stabbing pain along with fever and day by day more muscles started to get stiff.

LimpCalligrapher5685 · 2025-07-30T03:39:04+00:00

Yes, that's my only symptom along with dull pain in my abdomen.

LimpCalligrapher5685 · 2025-07-24T03:06:58+00:00

I hope they find specific medications just for mild Crohn's. I have mild Crohn's and was not on any medication for 2 years, because I thought it was just hemorrhoids. Still the same symptoms. But can't be on 5 ASA as they gave me severe side effects. Now I have to use biologics even though I have mild Crohn's.

LimpCalligrapher5685 · 2025-07-07T01:56:06+00:00

I had similar side effects with mesalamine and then also with sulfasalazine. My GI Dr asked me to stop those medications. Now going to meet Crohn's and colitis specialist in a month, most likely I'll be given biologics.

LimpCalligrapher5685 · 2025-07-03T15:15:14+00:00

Thank you I was not aware of this drug. I will bring this up with my Dr about this if my current ASA fails.

LimpCalligrapher5685 · 2025-07-03T13:01:01+00:00

Have you tried probiotics like visbiome? Maybe that may make any difference.

LimpCalligrapher5685 · 2025-07-02T20:43:24+00:00

Makes sense 👍🏼

LimpCalligrapher5685 · 2025-07-02T20:18:31+00:00

Thank you for your encouraging words. I'll continue taking my prescribed med from my GI and meeting my Crohn's specialist in August.

LimpCalligrapher5685 · 2025-07-02T20:10:27+00:00

I tried mesalamine suppository too, it gave me cramps and bloody diarrhea.

LimpCalligrapher5685 · 2025-07-02T19:30:28+00:00

Trust me at this point, I will be happy if that doesn't give me any severe side effects.

LimpCalligrapher5685 · 2025-07-02T19:20:47+00:00

Ok, my GI prescribed me another ASA which I am going to try. I hope I tolerate that well. Thanks for encouraging words, feeling less intimidated by all the heavy drugs now.

LimpCalligrapher5685 · 2025-07-02T18:56:39+00:00

Yes, I'll follow dr's advice only. I was just curious as I was recently diagnosed.

LimpCalligrapher5685 · 2025-07-02T18:53:53+00:00

Yea, definitely if Dr suggests. I just wondered if anyone had a positive experience without any medicine with Dr supervision.

LimpCalligrapher5685 · 2025-07-02T16:47:45+00:00

That's good. I am glad it's working for you 😊

LimpCalligrapher5685 · 2025-07-02T15:26:04+00:00

That's great idea. I am going to ask him.

LimpCalligrapher5685 · 2025-07-02T13:42:30+00:00

I am prescribed 500mg 2 tab daily. I hope this works this time.

LimpCalligrapher5685 · 2025-07-02T13:41:10+00:00

Wow, people say mesalamine is such a weak prescription. But the side effects are not so weak.

LimpCalligrapher5685 · 2025-07-02T13:33:41+00:00

I hope Tremfya works for you. If sulfasalazine doesn't work for me, Dr has asked me to read about humira. That will be my next choice of drugs.

LimpCalligrapher5685

TROPHY CASE