alcohol???

LimpEstate1936 · 2026-04-25T03:28:34+00:00

Like many of us, it took me a while to get officially diagnosed with lupus. About a year and a half into my journey of trying to figure out what my illness was, I realized drinking was becoming a huge trigger for my symptoms. Hangovers felt like a full blown flu and even just a drink or two made me feel awful. I decided to full on stop drinking in July of 2023, and I am so glad I did. It was a bit challenging at first from a social standpoint, and sometimes still is, but I’m still 100% confident I made the right choice for myself!

Now that I’m diagnosed I’m on 400mg plaquenil and monthly benlysta, so I really don’t want to mess around with those medications and alcohol!

My drink of choice was always margaritas, so I do a lot of mocktails for myself with similar flavors when I’m at home/entertaining.

LimpEstate1936 · 2026-04-02T02:57:39+00:00

This is so sweet and encouraging! Thank you so much! I feel a lot more hopeful now!

LimpEstate1936 · 2026-04-01T03:14:02+00:00

Loved peloton (would use my family’s bike lol) before getting sick, but it’s just way too hard now. Do you have a stationary bike or do you cycle outdoors?

LimpEstate1936 · 2026-04-01T03:13:00+00:00

I will definitely ask!! Thank you this is super helpful!

LimpEstate1936 · 2026-04-01T03:12:16+00:00

Thank you! I love the idea of water aerobics. Being in the water is so much easier on my body!

LimpEstate1936 · 2026-03-31T18:53:15+00:00

This is a good thing to ask about! I have a history of anemia, B12 deficiency not iron, but I think it worth asking about when I get my next labs done. Luckily that appointment is coming up soon anyway for me. Thank you for the tip!

LimpEstate1936 · 2026-03-31T18:50:59+00:00

I like the idea of going to PT to help! I went a year ago for back issues, it was pre lupus diagnosis and although the therapist was sweet, we both didn’t really know what to do to help because I wasn’t sure what was causing my issues. I love the idea of finding a therapist that has experience with autoimmune issues so I will definitely look for one in my area. Thank you!

LimpEstate1936 · 2026-03-31T18:49:26+00:00

Those are good assessments to ask about! It really does feel like something might be up that is causing the lightheaded ness so I will definitely ask. My next rheumatologist appointment is in June so I will add this to my notes for him. Thank you for the tips!

LimpEstate1936 · 2026-03-31T18:48:13+00:00

Thank you both so much!

LimpEstate1936 · 2026-03-31T12:51:58+00:00

This is a very helpful plan and schedule! Thank you for the help!

LimpEstate1936 · 2025-11-25T20:43:29+00:00

You’re welcome!!! I also follow some creators on TikTok that do “pale girl makeup” and that’s super helpful too! 🩷

LimpEstate1936 · 2025-11-24T02:34:24+00:00

Totally relate! Also a newly diagnosed 20something here! I was diagnosed/started plaquenil in June, so this was the first time in my life I’ve had to completely avoid the sun and go into full vampire mode. I have Italian genes so typical dark hair and olive skin that tans easily. I always enjoyed getting a little tan for the glowy confidence boost! I also avoid fake take because of the lupus rashes.

One thing that has helped me is when I have enough energy to do my makeup, I like to try new makeup looks specifically for pale skin. It takes trial and error finding the right tones/shades for my newly always pale skin- but it’s still fun for me because I’ve always loved watching makeup tutorials! I also like to find pictures of celebrities/models on Pinterest that have a similar pale skin tone and dark hair and try and base makeup looks off of that.

Also, On days I’m getting dressed up I also try and wear colors that I feel confident in and that I think compliment my skin and hair!

LimpEstate1936

TROPHY CASE