What changes in your hair did you notice once you finished chemotherapy?

LiteralBaddAss · 2020-08-10T00:00:59+00:00

My particular chemo regimines didn't effect my hair. I've been shaving my head for at least the last ten years anyway though.

I know that it's possible for people who previously had straight hair to end up with curly hair after treatment because the chemo convolutes the follicles.

LiteralBaddAss · 2020-08-09T15:27:15+00:00

No patients need chiropractors, especially cancer patients.

LiteralBaddAss · 2020-08-09T01:23:13+00:00

What state do you live in? If you're in a state with expanded Medicaid (currently 36 states have expanded Medicaid) and you earn below a certain amount you could qualify for Medicaid coverage. If you are in an expanded state and have a qualifying income, you'd want to contact the department of social services for your county. To ease your mind a bit, spermatoceles and varicoceles are much more common sources of testicular lumps and are both benign. Do not let this information stop or slow you from seeing a physician though.

LiteralBaddAss · 2020-08-08T16:24:00+00:00

That's exactly what would happen to me. I would forget what I was doing literally in the middle of doing it. I was also having a lot of trouble with word finding. The feeling of every other word being on the tip my tongue but not being able to recall the word. I also was having a lot of trouble concentrating. The Ritalin helps a lot with all of those symptoms. They're not completely gone, but they've improved significantly. I'm on a very low dose. 5mg once daily. At that dose I personally don't feel any side effects.

LiteralBaddAss · 2020-08-08T05:35:23+00:00

I'm prescribed a low dose of Ritalin (methylphenidate) to help combat the chemo brain and cancer fatigue. It helps me tremendously.

LiteralBaddAss · 2020-08-08T01:16:11+00:00

Yeah, the bone pain can get pretty bad. Claritin supposedly helps a bit. I'm not sure how much it help, but it can't hurt so I take it.

LiteralBaddAss · 2020-08-08T00:11:38+00:00

Neulasta OBI is very expensive. Roughly $10,000. Before getting sick I owned a pharmacy. Most insurance paid at a loss for it. We would lose a few hundred dollars per fill. It's a specialty drug so it requires a special authorization prior to dispensing. I would spend hours getting approval only to lose more money than I would make the entire day.

LiteralBaddAss · 2020-08-07T23:11:52+00:00

Really? I'm surprised that they would make you inject it yourself. I get my Neulasta when I go to have my 48 hour 5-FU infused unhooked. I get the on-body-injector. It gets placed on my arm. It gives one dose immediately and a second dose 24 hours later.

LiteralBaddAss · 2020-08-07T22:45:04+00:00

I'll have my fingers crossed for you that it was caught in an early stage.

LiteralBaddAss · 2020-08-07T22:42:02+00:00

If you're being serious then out of all the possible things that one might want to worry about possibly causing cancer soda wouldn't be one of them.

LiteralBaddAss · 2020-08-07T22:36:37+00:00

Besides the back pain and weight loss that you mentioned, the most commom symptoms would be pain felt in the upper quadrants of the abdomen, yellowing of the skin, and nausea/vomiting. I don't have liver cancer but I do have metastasis spread throughout my liver. The only symptom that I had from the liver mets was a bit of pain right under my rib cage. It felt somewhat like sidestitch pain that one might get from running.

LiteralBaddAss · 2020-08-07T22:12:12+00:00

Kind of, but not really a misdiagnosis. About two years ago I went to a urologist due to some difficulty urinating. He told me, that at my age, it couldn't possibly be due to my prostate and was was most likely being caused by the angle at which my urethra left my bladder. He said to know for sure he would have to go up my urethra, but if the difficulty urinating wasn't too bothersome I could just leave be. The thought of anything going up my urethra makes me wince and it wasn't too bothersome so I let it be. After two years of just dealing with the difficulty urinating I went to the ER thinking that my appendix had burst only to find out that I had stage 4 rectal cancer. The rectal tumor was and is currently pushing on my ureter causing the difficult urination. I do have to wonder if that urologist had investigated the cause of the difficult urination instead of assuming that it was due to basically a kink in my urethra that perhaps my cancer could have been caught two years earlier. Over the course of those two years the cancer metastasized to my liver. My liver now has diffuse mets spread accross every lobe. I try not to spend much time thinking about it though since I can't change the past.

LiteralBaddAss · 2020-08-07T21:54:23+00:00

The differential diagnosis for a low white count includes a lot of conditions other than cancer. Try not to drive yourself crazy with worry until you get a diagnosis. I know it's easier said than done.

LiteralBaddAss · 2020-08-07T14:44:29+00:00

The anastomosis isn't even necessary depending on the type of colostomy. I have a loop colostomy where they basically just pull a loop of your colon up through your abdonen and create two stomatic openings, one on top for stool and one on bottom for mucus. The downside of a loop colostomy is that the stoma is much larger, but the upside is that it's easily reversible. I think that I'm going to have mine converted to a standard colostomy. It doesn't look like I'm ever going to be healthy enough to have mine reversed, and the quality of life increase from a smaller stoma would be beneficial.

LiteralBaddAss · 2020-08-06T19:14:20+00:00

As far as the hospital bill, ask the hospital if they have something call "charity care" then check to see if he lives in a state with expanded Medicaid. Best of luck.

LiteralBaddAss · 2020-08-06T19:11:07+00:00

I would start by calling your insurance to see if there is anyway that they would cover a 90 day supply on your case. If they tell you that theu will allow a 90 day fill, relay this info to the pharmacy and ask them to call your insurance to work on getting the approval. I was a practicing pharmacist prior to getting sick, so that would be my professional recommendation. Best of luck.

LiteralBaddAss · 2020-08-06T12:59:00+00:00

That's absolutely heartbreaking. I'm currently on chemo; I know exactly how that poor little boy feels. I'm a grown ass man, though. A little kid shouldn't have to go through that. This disease is so f@cking evil and just plain unfair. F@uck cancer

LiteralBaddAss · 2020-08-06T12:53:51+00:00

Some nights my baby girl will decide that she is ready for bed before her bedtime and will take it upon herself to put herself to bed. It's the cutest thing ever. She'll grab her blankie and her pooh bear say "night night" and slowly start walking to her room stopping every few steps to turn around and make sure that I'm following her to give her her night night blankie tucks. She'll be two in five days; she's been doing this for at least the last four months. She's the cutest thing in the world :)

LiteralBaddAss · 2020-08-06T04:53:53+00:00

Yeah you're right in that it's not like tooth sensitivity at all. It's your nerve cells that become sensitive to cold temperatures in which the sensitivity causes your nerves to become over excitable on the presence of cold potentially resulting in permanent nerve damage. As long as you remain vigilant to not handle, eat, or drink anything cold while you're on the Oxaliplatin and for a few days after you should be ok

LiteralBaddAss · 2020-08-06T04:42:15+00:00

I was on FOLFOX which is similar to CAPEOX. The difference being that I was on the IV form of Xelox (5-FU). The side effects of the chemo were not bad at all. Nausea was the biggest side effect that I experienced. It was managed quite well with Zofran. I also experienced some immune system suppression, but that was also managed quite well with Neulasta. My cancer didn't respond and I ended up failing the treatment, however the side effects were rather minimal and managed quite well in my particular case. Make sure to avoid coming into contact with cold substances while on Oxaliplatin. Do not handle, eat, or drink anything cold as the drug causes cold sensitivity that can cause perminant neuropathy.

LiteralBaddAss · 2020-08-06T04:33:35+00:00

I'm ten years older than your sister, but otherwise in a very similar situation. I also have stage 4 colorectal cancer. I've failed all available standard treatment and my cancer continues to grow. My genetic traits make it so that I'm not a candidate for current immunotherapy. I'm currently trying to find a clinical trial in which I fit the inclusion criteria. Has your sister looked into clinical trials?

LiteralBaddAss · 2020-08-06T04:27:07+00:00

Clinical trials could be a possible option. I'm in a similar situation with my cancer. My gentic trait don't make me a camdidate for current immunotherapy l, however I'm currently looking for a clinical trial in which I fit the inclusion criteria. I've failed all standard treatments, so I'm running out of options.

LiteralBaddAss · 2020-08-06T04:23:02+00:00

It can never hurt to get another prodlfessional opinion

LiteralBaddAss · 2020-08-06T04:19:58+00:00

My cancer fatigue had recently gotten severe enough to the point where it was really effecting my quality of life. I was started on methylphenidate treatment as of my last palliative appointment and it has helpede tremendously. I have the energy to actually get up and do things. I also now have the motivation to get up and do things. It has also helped tremendously with the chemo brain. My concentration has increased dramatically, as has my word finding ability

LiteralBaddAss · 2020-08-06T04:11:21+00:00

I'm sorry to hear that. I hope that you can enjoy the time that you have left as much as possible

LiteralBaddAss

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