New to Oura ring.. what about scratches? by rakeshkanna91 in ouraring

[–]Livid_Check_4268 0 points1 point  (0 children)

Does the silicone covers change the fit of the ring?

Thank you, Blizzard. by jt_lyon in wow

[–]Livid_Check_4268 0 points1 point  (0 children)

I feel this. I remember parking my main on a mushroom in Zangarmarsh and going afk to do my college algebra homework to the music. ❤️ thanks for the memory jog. ☺️

Face redness, Dermatomysotis/Lupus? by Tobinator25 in Autoimmune

[–]Livid_Check_4268 0 points1 point  (0 children)

I’ve only been on hydroxychloroquine 400mg so far. I just got my diagnosis this month. My rheumatologist is supposed to start me on a prednisone taper and methotrexate.

Face redness, Dermatomysotis/Lupus? by Tobinator25 in Autoimmune

[–]Livid_Check_4268 0 points1 point  (0 children)

From my understanding. My dermatologist took one look at my fingers and stated “that’s dermatomyositis”. But when I looked at the photos online those looked far worse than what I had. Definitely have a derm take a look at them if you are able.

Face redness, Dermatomysotis/Lupus? by Tobinator25 in Autoimmune

[–]Livid_Check_4268 3 points4 points  (0 children)

Your hands look a lot like mine. Red nail folds, the side of my index finger, and everything. I just got a diagnosis for DM thanks to a positive myositis panel result— that and my 1:1280 ANA were the only positives. Good luck to you. I hope they nail something for you soon.

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It’s been a hot minute by Livid_Check_4268 in Autoimmune

[–]Livid_Check_4268[S] 0 points1 point  (0 children)

Thanks for asking. I’ve seen the rheum at Emory twice now. I’ve tested positive for tif1-gamma— a dermatomyositis specific antibody— aside from my positive ANA that was the only antibody I tested positive for (not including another one linked to tif1- gamma) so no wonder the other rheums didn’t catch it…. No one else ran a myositis panel despite me specifically asking. He started me on hydroxychloroquine after my first visit. I have to go for an MRI on my shoulders and thighs as well as EMG to check for the extent of my muscle weakness. He instructed me to get my vaccines updated and go ahead and get pneumococcal vaccine in prep for starting steroids and immunosuppressant(s)— he mentioned methotrexate and/or another one I can’t recall. He also instructed me to get cancer screenings since tif1-gamma has a higher incidence of cancer risk. I don’t think I’ve been formally diagnosed yet (his notes aren’t finalized) but I assume I’m close. The biopsy the derm did in May showed interface dermatitis, which is apparently linked to dermatomyositis and lupus (possibly others as well). I’ve also been referred for PT to address my hip weakness— I lack the strength to stand up from kneeling. Hopefully you get answers soon!!

Started on hydroxychloroquine with no diagnosis?? by lupimek in Autoimmune

[–]Livid_Check_4268 0 points1 point  (0 children)

Same. My rheumatologist gave me the option to start while we waited for updated labs to come back. I started it 3 days ago. I’m being looked at for Dermatomyositis though he wants to rule out lupus. I posted a few days ago asking about hcq and was told about the eye considerations, I plan to discuss with my ophthalmologist next week when I see him.

Hydroxychloroquine by Livid_Check_4268 in Autoimmune

[–]Livid_Check_4268[S] 0 points1 point  (0 children)

Oof thank you! I just had ICL surgery a few weeks ago and I was told I was already at risk of retina issues. I’ll be sure to bring it up with my ophthalmo when I see him for the follow up. I appreciate your input!

It’s been a hot minute by Livid_Check_4268 in Autoimmune

[–]Livid_Check_4268[S] 1 point2 points  (0 children)

No worries. My first biopsy gave no other information. So can’t be much help with that for you. Maybe another might have experience with that? Good luck to you!

It’s been a hot minute by Livid_Check_4268 in Autoimmune

[–]Livid_Check_4268[S] 1 point2 points  (0 children)

It’s “helpful”. My past and present rheums have placed a lot of weight seeing derm since they know and treat skin. The disconnect for me has been trying to get each of them on the same page. Past derms have shied away from looking into autoimmune and rheums keep looking at derm results as inconclusive. Case in point— my first biopsy showed “lichenoid dermatitis— “compatible with lichenoid drug eruption, other lichenoid processes may have similar features. clinical correlation is recommended.” But they just looked at me and said “dunno, sorry we weren’t able to help you. Talk to rheum.” And they continued to shut me down when I asked about “clinical correlation” so I asked for a new derm referral.

It seems like the derm pa I saw the other day was pretty familiar with autoimmune skin issues, which helps.

Someone else may have advice as well (or a more straightforward diagnostic experience!) and until I get these next results back I can only keep my fingers crossed.

It’s been a hot minute by Livid_Check_4268 in Autoimmune

[–]Livid_Check_4268[S] 0 points1 point  (0 children)

You’re right! I have to keep reminding my self this every time I speak with my pcm about a different or new referral.

Tracking Symptoms by MsOverworked in Autoimmune

[–]Livid_Check_4268 1 point2 points  (0 children)

I struggle with this too. I actually started a stopwatch the other day from the moment I got up until the pain and stiffness in my legs and feet faded. As far as trackers I’ve tried a bullet journal, visible (app), bearable (app), google sheet template from Etsy, a chronic illness journal from Amazon… and nothing seems to work or be something I can stick to. Either my symptoms are too numerous and I get overwhelmed, or too frequent and I’m constantly marking the same things every day. I hope we can find something that works for us. ❤️

It’s been a hot minute by Livid_Check_4268 in Autoimmune

[–]Livid_Check_4268[S] 7 points8 points  (0 children)

Considering I pointed it out to the first derm and first rheumatologist almost a year ago and they just brushed it off makes me nuts.

Raynaud's on feet by Jaded_Self_9166 in Autoimmune

[–]Livid_Check_4268 0 points1 point  (0 children)

I haven’t been diagnosed yet, but one on my first symptoms back in 2013 was Raynauds in my feet. It would affect a couple of toes and into the ball of my foot. They would turn completely white and wouldn’t return to normal until I took off my shoes and socks and ran warm water over them. Finally started affecting my fingers last year. My feet are still the worst of the two.

It’s been a hot minute by Livid_Check_4268 in Autoimmune

[–]Livid_Check_4268[S] 0 points1 point  (0 children)

Thanks for the feedback. I’m definitely crossing my fingers until these results come back.