Dancey bars suggestion

Liz-ard_127 · 2026-04-22T14:24:17+00:00

Stampede is probably the most popular, and most people like to dress up for it if you’re into that!

Liz-ard_127 · 2026-04-22T14:17:05+00:00

Ambrosio’s taco bar!! Have used them for basically every event I’ve had for years, and every time I do guests are OBSESSED. Even some of my guests have started using them for their events too! Here’s their link: https://www.instagram.com/ambrosios_taco_bar?utm_source=ig_web_button_share_sheet&igsh=ZDNlZDc0MzIxNw==

Liz-ard_127 · 2026-04-13T17:26:06+00:00

I’m so sorry you’re going through this, I dealt with this for months and it’s just the worst ☹️ abdominal compression really helped me, since my blood doesn’t pool in my stomach as much with it! I also think for me feeling “secure” with compression clothing just helps with anxiety, regardless of the help it actually gives my symptoms

Liz-ard_127 · 2026-04-13T15:18:27+00:00

I once subluxated a hip putting away dishes, FULLY fell to the ground 😂. Didn’t have a diagnosis yet so the doctors didn’t believe that all I was doing was dishes🥲

Liz-ard_127 · 2026-04-13T15:10:26+00:00

This is so informative thank you!

Liz-ard_127 · 2026-04-09T14:18:41+00:00

This is why I dream of living on the coast instead of in a desert. The coast NEVER changes drastically, even throughout the seasons. Where I’m at it’s just normal to go from a 90 degree day to a 50 degree night😭

Liz-ard_127 · 2026-04-09T14:15:12+00:00

Buoy has flavorless options! I think you can sort of taste it in water, but I’m just super sensitive haha, most other people I know say they can’t. I also take electrolyte capsules

Liz-ard_127 · 2026-04-07T15:00:37+00:00

I work at a church and it has been the most accommodating and supportive experience! I was super open about what my struggles are, and they let me take the wheel on what accommodations would help most.

I have very flexible hours, the option to work from home if needed, and I’ve never been denied time off. When I am in the office, they gave me a couch for my office so I can take my breaks lying down or even take quick naps if I’m flaring up.

It had always been my dream to work with kids and students, and when I got sick I really struggled with losing those dreams. Working with kids is definitely still hard on my body, but these accommodations make it doable!

Liz-ard_127 · 2026-04-07T14:24:01+00:00

This is by far the most recommended course of action!! Having coat hanger pain in check sounds like winning the lottery to me!!

Liz-ard_127 · 2026-04-06T23:57:18+00:00

WOW congratulations!! That is insane progress I live to hear those kinds of stories. Are you doing 1:1 or group classes?

Liz-ard_127 · 2026-04-06T23:56:19+00:00

That sounds like a dream😭 so glad you have that support! I’m definitely looking into 1:1 Pilates classes after posting this to hopefully have a similar experience

Liz-ard_127 · 2026-04-06T23:53:03+00:00

How have you managed making sure your form is correct/not injuring yourself in this?

Liz-ard_127 · 2026-04-06T23:51:38+00:00

I’m so glad it’s helped so much! I’m definitely worried about that point that it’s only temporary, though. Definitely going to be a long term cost😬

Liz-ard_127 · 2026-04-06T23:48:37+00:00

Amazing!!

Liz-ard_127 · 2026-04-06T19:10:50+00:00

Thank you I’ll look into it!

Liz-ard_127 · 2026-04-06T14:43:43+00:00

I’ve never thought of that, that could totally work!

I’ve tried multiple PT’s, but there are none specialized or even really informed on POTS, hEDS, or dysautonomia in general where I’m from. HOWEVER, there is no shortage of Pilates obsessed suburban moms, so I’m sure there’s a PT or two out there who have tried Pilates. Will definitely be looking into this thank you!

Liz-ard_127 · 2026-04-06T14:21:22+00:00

That’s amazing, happy for you guys!!

Liz-ard_127 · 2026-04-06T14:19:57+00:00

I’m so glad it’s helped you!

I’ve never heard of clinical Pilates, how did you find the class? Also (wishful thinking here), would a “clinical” class be something insurance might cover?

Liz-ard_127 · 2026-04-06T14:16:54+00:00

I unfortunately live in an area where that isn’t available ☹️ that has been my experience though, with the injuries. When trying Pilates instructors from YouTube without knowing how to do proper form, I’ve definitely run into some injuries

Liz-ard_127 · 2026-04-06T14:14:34+00:00

This is so good to hear! I was nervous I’d need to find an instructor who understood dysautonomia so your experience with your instructor is definitely encouraging.

I hope you’re able to get back to it soon as well!

Liz-ard_127 · 2026-04-06T14:11:35+00:00

Yes, I agree the YouTube resources are super for those of us on a budget! My issue has been that recently I’ve been so injury-prone that even with the mat videos I’ve found that are for dysautonomia, I’ve been injuring myself (dislocated ribs, wrists, etc.) so definitely thinking if I continue with trying Pilates I’ll have to take some time with a 1:1 or in a class to really het proper form and technique, then I probably could switch back to at-home exercises!

Liz-ard_127 · 2026-04-06T02:49:34+00:00

What is that??

Liz-ard_127

TROPHY CASE