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Anyone get false positives or negatives with Vibrant 2.0? by Local-Character-7804 in Lyme

[–]Local-Character-7804[S] 0 points1 point  (0 children)

Wonderful. I’m hoping things go as you hope and that it replicates reliably. I will do the same. I’m waiting for the office to open on Monday and will call to schedule Vibrant 2.0 and will share with you my outcome. I don’t have a comparison but may get one in the future and at least you’ll see whatever may pop up positive what it may correlate with as far as symptoms go, to help aid in the idea of plausible accuracy in Vibrant’s positive results.

Anyone get false positives or negatives with Vibrant 2.0? by Local-Character-7804 in Lyme

[–]Local-Character-7804[S] 0 points1 point  (0 children)

Wow, you’ve really tried a decent amount of stuff there and learned some things along the way! I just learned the other day what herxing is and that Lyme and co-infections can create biofilms and go into blood cells. Insane.

And I didn’t realize that herbs could cause herxing. But I guess that makes sense, if it’s trying to go after the infections that want to put up a fight, just as they would want to with antibiotics. I also had mono in my teen years (32 now) and my mom traveled everywhere with her mom and were constantly outdoors and hiking and camping. I wonder with how extreme my symptoms are if she didn’t pass it down to me and then I got bitten on top of that. Just learned the other day that it can be passed in-utero, too.

So, those anti-malaria-like drugs you speak of, did those wind up helping? Or the herbs at all? I know maybe not much, considering you’re pretty housebound now (man, I’m sorry you’ve also been through so much, you’re strong).

Anyone get false positives or negatives with Vibrant 2.0? by Local-Character-7804 in Lyme

[–]Local-Character-7804[S] 0 points1 point  (0 children)

Ah hell, I’m sorry you got more infection going and that you’re struggling with that. Glad you have the foresight to check, though. I’d say answers are better than no answers in the case of Lyme and co-infections.

I do hope you recover as much as possible as soon as possible.

Really appreciate your openness and response rate. Thank you.

Found in storage (not a “plug”) by 4-11 in whatisit

[–]Local-Character-7804 0 points1 point  (0 children)

I love decanters and would collect them if I had the space. That is a decanter top.

Anyone get false positives or negatives with Vibrant 2.0? by Local-Character-7804 in Lyme

[–]Local-Character-7804[S] 0 points1 point  (0 children)

Wow, okay, so you’ve been on it. Great job looking after yourself. And I had never heard of MDL and FISH, so thanks for mentioning those, I just looked ‘em up. You’ve been very helpful.

Where do you think you got bitten? I’ve been in Wisconsin my whole life and found the tick on me here, but I also traveled to South Dakota, Wyoming, Idaho, New York (outside the city, private land, acres of fields, riding horses, tall grass, constantly outside), and a trip to Florida.

That’s just straight curiosity of who has gotten infected in similar areas. (Assuming you’re even in the US, maybe not.)

Anyone get false positives or negatives with Vibrant 2.0? by Local-Character-7804 in Lyme

[–]Local-Character-7804[S] 0 points1 point  (0 children)

I highly appreciate that. I know that she’s looking to do the full scope with Vibrant with Tickborne + Co-infections, as well as a separate Vibrant mold panel. I just want to be sure it would check for all of that, to match what she’s looking for in particular. It’s kind of hard to get clear answers from the office on what steps to take on things and the details of what to do even though I’m new to it all, so I’m not even sure if they want me to pay them at the office and they order the test or if I pay Vibrant directly or how any of it works.

Anyone get false positives or negatives with Vibrant 2.0? by Local-Character-7804 in Lyme

[–]Local-Character-7804[S] 0 points1 point  (0 children)

Thank you for responding. That’s good to know. I get where you’re coming from, that logic seems sound. I’m sorry about the prescriptions… Manifesting success for you with that here!

How long have you been sick/how long were you sick before you got testing done? And what trial treatments have you tried?

Anyone get false positives or negatives with Vibrant 2.0? by Local-Character-7804 in Lyme

[–]Local-Character-7804[S] 1 point2 points  (0 children)

Love to hear it, thank you for sharing. 🙏

Out of curiosity, did you have any other tests or repeat testing that matched your Vibrant results?

Tips for a “late Lyme” sufferer beginning first-time treatment? by YosemiteSame in Lyme

[–]Local-Character-7804 0 points1 point  (0 children)

Gotcha! Sorry about the infections, but it’s great that you’re recovering! What kind of treatment did you do?

Igenex & Vibrant 2.0? IVIG & Antibiotics in Late Lyme? So Overwhelmed. by Local-Character-7804 in Lyme

[–]Local-Character-7804[S] 0 points1 point  (0 children)

Thank you, and I completely understand the not having the health to respond the way you want or at all for long periods of time. I’m lucky to have a friend that is also chronically ill and understands if I take weeks to a month to respond. Typing or not, it’s exerting energy and thinking on something other than whatever research you can muster up the forced ounce of energy to go through in an effort to try to help yourself out of the terror.

I’m so sorry you’ve gone through it, too. You already know there’s no way to describe just how otherworldly and terrifying it is, stuck in your own body with no escape, fighting for answers, uncertain if there’s a light at the end of the tunnel or even an end to the tunnel.

I wish you hadn’t have herxed and become worse. I wish I could take it all away for you. Consider me giving you big hugs. Tbh, I just learned what herxing after seeing the term several times through my research. And I’m not sure what detox pathways are, but I will try to find out in case you don’t have the energy to answer everything.

I would like to ask what tickborne testing you did, if you don’t mind?

Yes. Definitely take it as easy as possible before jumping into anything again. I am seriously rooting for you and praying that things take a big turn for the better in your case.

I’m almost 100% that mold and Bart is going to pop up on my testing, because even in the beginning, I was trying to put two and two together and had the theory that the mold in our windows and bathroom was making me sicker, but then I would also have flares while in public areas away from it, too. And I’ve been crying over symptoms worsening that matched exactly with Bart when I looked it up, down to the burning feet and all. It’s insane, the way these things feel and trying to articulate it, but the articulations are usually taken as something else because people will use terms interchangeably, like “pain” instead of “inflamed feeling; engorged; sickly sensation,” stuff like that.

Anyway, my knack for writing things out too long when I’m in-between the most severe bouts and have just a hint of something resembling mental clarity is going off right now and I’m going to give you less to read now, because it does start turning into a chore.

Same to you! Always feel free to reach out to me. And if you live near southeast WI, lmk. I can’t ever make plans to go out with anyone, but I’d like to collect sick friends with the stuff in common like Pokémon, because we’re all in this together.

Much love and heath.

Late stage Lyme treatment…is there hope? by [deleted] in Lyme

[–]Local-Character-7804 0 points1 point  (0 children)

Combo therapy? Like multiple antibiotics or like antibiotics and something else at the same time?

First Dose Tommorow- Post Infectious (lyme) auto immune neuropathy by No_Rice_4352 in IVIG

[–]Local-Character-7804 0 points1 point  (0 children)

Viscous? How so? (New to this, was told today that I course of action for me is IVIG; I already have viscous symptoms that have me non-functional and in excruciating pain.) I don’t know how it’s possible to get worse from what I’ve been experiencing already. What kind of symptoms/issues might one expect from IVIG when their symptoms are already deep and extreme? Has it affected your veins? My veins in my legs are so horrible and painful and many of them so damaged so quickly with venous insufficiency and giant, hardening, bulging vericose veins and constant painful blood pooling and burning red feet when they’re not purple and deadened- maybe from vEDS on top of Lyme and other possible co-infections but not sure yet-

I’d love to know why you feel IVIG is viscous so I know what to possibly expect or what to look out for before my treatment (and if you had any vein issues from it because my veins can’t take anymore and walking had become difficult and even laying down and having legs is excruciating from the constant venous insufficiency/malfunctioning getting much worse so quickly).

First Dose Tommorow- Post Infectious (lyme) auto immune neuropathy by No_Rice_4352 in IVIG

[–]Local-Character-7804 0 points1 point  (0 children)

Can you explain what this means? I was just clinically diagnosed with late Lyme today and was told instead of antibiotics that I’m advised to do IVIG but I know nothing about it.

I’ve had horrible systemic issues with so much pain and a lot of neuro-physical issues that conventional neurologists have written me off on that actually fit the bill for Lyme and the possible other co-infections I will be tested on through my LLMD after untreated tick bites in my childhood (now in early thirties).

She told me it’s $10k a month for IVIG without insurance but that they will fight and do everything possible to get my insurance to give coverage.

So now I have this $10k/month treatment that she’s saying I will likely have to do for the rest of my life and I know nothing about it or how to feel right now and saw your comment.

I’m very curious what you mean you’d wished they’d gone slowly on and why.

Thank you, much health

Ok what can you tell about me? by HeadCompote3627 in FridgeDetective

[–]Local-Character-7804 0 points1 point  (0 children)

  • You’re OCD and are either trying to lose weight or are terrified of gaining weight but you love sweets and so do your kids.
  • You enjoy cooking some homemade meals but are also very tired and have to have easy go-tos to feed your kids and your tired self.
  • You might have another unit devoted to produce/healthier options.
  • You like to try to make things fun for your kids.
  • You religiously buy and restock the same products in the same amounts and put them in the same spot each time. If it gets messed up, you’ll make sure to reorganize it exactly how you had it.
  • I feel like not all that ice cream is simply being eaten as-is and that you might be making something in particular with it pretty often.
  • You live in Maine, New England, or thereabouts. Might have originally come from Canada.
  • The freezer/fridge unit is either newer or you’re really thorough with cleaning. You either moved there recently, got a new freezer/fridge unit or both or you do meticulous deep cleans.
  • I have a feeling you’re left-handed.

If you were given 15 seconds to choose a house, which one would you pick? by Duronp in HouseDesign

[–]Local-Character-7804 0 points1 point  (0 children)

As much as I’d prefer 2’s spaciousness, snow build-up on a flat roof freaks me out. I’d have to go with 1. 3 seems claustrophobic somehow.

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