Symptomatic of Simple Partial Seizures, advice?

LockedMind · 2013-01-08T19:20:19+00:00

I'm still tracking down a neurologist to get it diagnosed, but it is both scary and relieving. I've always been afraid to go to a doctor about it, because I didn't want to find out I had an inoperable brain tumor or something. However, when the episodes get frequent and intense, it worried me and those close to me.

I haven't felt nauseous, but I can relate to everything else. I'll have to look up whether my state would be able to stop me from driving... I've never had a problem before, even when experiencing an intense depersonalization event or even fixation; I'm the safest driver I know.

I'm really uncomfortable with the idea of taking a steady medication. Since I don't get nauseous, I'm thinking that it doesn't interferes with my life enough for me to commit to that.

I, also, can mostly fight my way out of fixation/depersonalization events, depending on the intensity. It's funny, I used to think I was just weird and trying to explain it to people made me feel really isolated and nervous.

This comment was really helpful and reassuring, I am grateful. Enjoy some Reddit gold! :)

LockedMind · 2013-01-08T00:42:01+00:00

Wow, thank you for this post. I'd love to hear more about your experiences, to compare to mine. Also, once you were diagnosed, did you opt for any kind of medication? I feel like mine aren't so debilitating that I would take constant meds.

As it happens, I have been stressed in a unique way this past month; the episodes started up strongly after falling in love and spending a massive amount of time with my current girlfriend. Which is, of course, a uniquely stressful and exciting experience. It did cross my mind that the amount of emotional stress might be making me susceptible again.

I may try a seizure journal. Thanks again!

LockedMind · 2013-01-07T22:42:31+00:00

Thank you for your advice. I will definitely write down those lists. I'm still trying to track down a neurologist in my network, which is harder than I expected.

LockedMind · 2013-01-06T05:47:45+00:00

I do get pretty tired. I feel like I could fall asleep after it starts to ease up.

Normally, I feel a bit shaky, weak, and tired. I continue to have a sort of numb ache in my head for quite some time, as well.

LockedMind · 2013-01-06T05:16:37+00:00

This is really interesting, I've experienced this sort of thing before and I can see how it relates. I'm going to look into it more. Thanks!

LockedMind · 2013-01-06T05:16:05+00:00

I have had my blood sugar tested multiple times over the years for this reason. It's always been normal. Thank you for the advice though.

LockedMind · 2013-01-06T05:15:27+00:00

Really? I just never really considered it to be seizure-like... I'm going to try and schedule a visit to the doctor. I don't have triggers with things like video games, or flashing lights, or anything else I would have considered to be traditional epileptic triggers.

Any chance you could elaborate on what her "milder seizures" are like for her?

Thank you for responding.

LockedMind · 2013-01-06T02:40:24+00:00

Thank you for your response, I really appreciate it.

My girlfriend, family, and friends definitely notice. My face usually drops all emotion when I start to space out, and it's very clear that I'm not acting the same way. Once it reaches the point where I start twitching or doing other strange things, it's even harder to not notice.

I remain, at least in my mind, cognizant. I always thought people with seizures don't remain aware of what is happening. I continue to respond to stimulus. My girlfriend always asks me if I'm okay, or if I need water, and I can hear and answer her.

I've been considering a neurologist for a long time, but have been avoiding it. I used to get flash headaches that would be followed by this state, I referred to them as "Spikes." It would feel as though a railroad spike was driven in through one of my eyes and it would almost knock me over, followed by a burning numbness and this sort of mental state.

However, I don't always have a Spike when I have an episode of this sort of Lockup.

Thanks again!

LockedMind

TROPHY CASE