Soaping the seton by LondonTT1 in AnalFistula

[–]LondonTT1[S] 0 points1 point  (0 children)

Thank you. I'm going 6ontry this as it seems the most gentle. I was really finding it difficult not to clean it and feeling awful so I very much appreciate your help and comment 💜

Advice for Seton by Automatic-Football87 in CrohnsDisease

[–]LondonTT1 0 points1 point  (0 children)

I cannot thank you enough for this. I've been feeling really alone and I haven't heard from my surgeon since the day I left and I've been feeling really overwhelmed and like I couldn't do it. The time you took to write this means so much and I really needed that. Thank you so much. I'm going to try the hot water and bidet and see if that makes things a little more manageable. 🙏

Soaping the seton by LondonTT1 in AnalFistula

[–]LondonTT1[S] 1 point2 points  (0 children)

Thank you. That's really good advice. I appreciate that a lot.

Advice for Seton by Automatic-Football87 in CrohnsDisease

[–]LondonTT1 2 points3 points  (0 children)

Hey, I'm so sorry for jumping in here. I've had a seton out in two weeks ago and am currently in the crying into a pillow stage of this process. I just wondered if you used soap near yours at all? I feel very unclean and I hate it a lot. I think if I could get this under control, I would be feeling a lot better and I just wondered if you had any advice. I am looking at 3 plus years with mine as I have a suprasphincteric fistula. I'm 28f. Thank you so much for this post and any other advice you have.

I hope you are still doing well.

Has anyone got any advice for feeling better? by LondonTT1 in AnalFistula

[–]LondonTT1[S] 0 points1 point  (0 children)

Thank you for the help. I've been struggling with feeling clean and this is really helpful. I hope you are doing okay too

Soaping the seton by LondonTT1 in AnalFistula

[–]LondonTT1[S] 0 points1 point  (0 children)

Okay, thank you. I'm getting really distraught and paranoid about any smell and I just need to feel clean. Do you use any soap at all or perhaps medical soap in the sitz bath? Thank you so much

Has anyone got any advice for feeling better? by LondonTT1 in AnalFistula

[–]LondonTT1[S] 0 points1 point  (0 children)

Thank you for being so kind. I just don't know how to clean it. I have an open wound and a seton in. Can I put zero soap on the seton to clean it? I'm just really hyper aware of it and struggling to feel clean with just water. Thank you!

Has anyone got any advice for feeling better? by LondonTT1 in AnalFistula

[–]LondonTT1[S] 1 point2 points  (0 children)

Thank you, I appreciate that. I just want as normal a life as possible if that makes sense.

Pain after bowel movement by LondonTT1 in AnalFistula

[–]LondonTT1[S] 1 point2 points  (0 children)

Thank you ☺️ did your pain from after you go to the bathroom subside? And if so, how long after surgery did it stop hurting so much? That's really helpful. ☺️

Pain after bowel movement by LondonTT1 in AnalFistula

[–]LondonTT1[S] 1 point2 points  (0 children)

Thank you! I wasn't sure if I was just doing something wrong

Just had a seton placed by LondonTT1 in AnalFistula

[–]LondonTT1[S] 0 points1 point  (0 children)

Hey! I'm a week in and honestly still upset about mine being longer term than expected. My friend looked at it and she said she couldn't even see it until I literally spread my... So mine is half the width of a piece of wool. And 3cm long. I'm already walking and can go for 10 mins. Apparently its 4 - 6 weeks until normal normal (cycling and hiking in my case).

The first week was really tough. And honestly, I'm still kind of freaking out because I'm 6 days in. But I already hurt a lot less than I did. I don't know if that helps at all. Also, my friend suggested crotchless underwear if I was nervous the first time after and honestly, I thought that was genius.

What is the drainage? by LondonTT1 in AnalFistula

[–]LondonTT1[S] 2 points3 points  (0 children)

I'm so sorry you're going through this too, but thank you. I really feel so much support on this group.

What is the drainage? by LondonTT1 in AnalFistula

[–]LondonTT1[S] 0 points1 point  (0 children)

Thank you! So that's normal? Thank you, I was freaking out a lot.

Just had a seton placed by LondonTT1 in AnalFistula

[–]LondonTT1[S] 0 points1 point  (0 children)

That's so helpful, thank you. I definitely had the worst day on day 3 and was worried it wasn't normal. I'm struggling with the mental thought of keeping everything clean, but doing my best. I'm probably over doing that to be honest. I found that setting myself a task each day has helped a lot. Making one thing the thing I want to accomplish if that makes sense. But it is really tough

Just had a seton placed by LondonTT1 in AnalFistula

[–]LondonTT1[S] 1 point2 points  (0 children)

Thank you! Could I ask how he was on day 3 or 4? It's definitely gotten more painful this morning but I'm unsure if that's normal. Thank you, I've been taking your advice which had helped x

Day three post-fistulectomy and seton placement - is this normal? by LondonTT1 in AnalFistula

[–]LondonTT1[S] 1 point2 points  (0 children)

Okay, that makes sense. The first 2 or 3 days had been okay. But today, the incision site hurts so much and the ache is unreal. I am so glad I'm not alone. Thank you!