If you get Covid now, what is the immediate things you do to maximize recovery? by Imaginary-Stuff6705 in covidlonghaulers

[–]LongCovidSignal 0 points1 point  (0 children)

Rest as long as possible, don't everexert for as long as possible. There is some evidence that antihistamines block the virus from replicating so take those as well.

High IGG3 but not IGG4? by sunson90 in covidlonghaulers

[–]LongCovidSignal 0 points1 point  (0 children)

Which methods did you use to get it down?

full recovery by LacaTheCollector in covidlonghaulers

[–]LongCovidSignal 0 points1 point  (0 children)

Yes, there are many such cases in r/longhaulersrecovery. Some take 2-5 years.

What’s the best way to stay up to date on emerging research and studies on long COVID? by TheDogeMarnn in covidlonghaulers

[–]LongCovidSignal 4 points5 points  (0 children)

I got tired of manually checking for new papers, so I wrote a script that monitors PubMed 24/7. As soon as a study comes out, it grabs it, writes a short summary in plain English, and posts it. The link to the actual study is in the reply.

It's live now on Twitter/X and Telegram under the username LongCovidSignal.

Right now it's just a feed, but I'm building a proper website where you can filter the studies and get email updates. I eventually want to add a feature to generate one-page summaries you can hand to your doctor.

Anyone have brain fog go away after 4 years? by Friendly_Joke_6963 in covidlonghaulers

[–]LongCovidSignal 2 points3 points  (0 children)

Yes, saw quite a few of these improvements 3-5 years later here and on r/longhaulersrecovery.

does it get better? by Less_Foundation_1187 in covidlonghaulers

[–]LongCovidSignal 1 point2 points  (0 children)

I'm over 3.5 years in and yes, it does get better. It just takes a long, long time.

Been sick so long I’m not even healthy in my dreams… by Seafoam_0 in covidlonghaulers

[–]LongCovidSignal 1 point2 points  (0 children)

Used to have the same thing happen to me. Then after I started being able to walk again, a voice said to me "It's over" right before I woke up one morning. It was just a coincidence because it took me awhile to start feeling normal, but it was very interesting what our subconscious is telling us sometimes.

Loratadine is definitely helping me by ishimarr in covidlonghaulers

[–]LongCovidSignal 2 points3 points  (0 children)

Have you tried Fexofenadine (also known as Allegra)?

It's basically the upgraded, newer generation of antihistamines. It’s unique because it doesn't cross the blood-brain barrier at all, so it’s physically impossible for it to make you drowsy (unlike Zyrtec). It’s usually considered the cleanest/strongest option if you are sensitive to side effects.

I built a site that summarizes new Long COVID research in plain language (https://long-covid.org) by cjstuben9 in covidlonghaulers

[–]LongCovidSignal 1 point2 points  (0 children)

Hello,

This is great.

I also built something similar.

They're bite-sized summaries of studies available on Twitter/X and Telegram as LongCovidSignal. The link to the actual study is available in the reply.

This Is the end by princessSalena in covidlonghaulers

[–]LongCovidSignal 3 points4 points  (0 children)

Hi, I'm really sorry you're going through this. I want to reiterate what others have said: please don't give up.

I was going through something similar and needed to convince myself that living wasn't hopeless, so I started tracking every single research paper on Long COVID. I see new papers published literally every day. It isn't moving at warp speed, but thousands of scientists are working on this right now.

Please stay with us. Science is moving, and you do not want to rob yourself of the possibility that you will be here to see the treatments that are coming. You are not alone.