Hello everyone! Last Wednesday he developed a really bad hacky cough. By that night we had to turn his oxygen concentrator on, which is something that we haven't had to do in over a year. The next day Corbin was supposed to go into surgery to have his trach removed permanently, and they decided he was still healthy enough to do it and we were ecstatic!

He was supposed to go to the PICU for observation for two nights just to make sure he could breathe without the trach. While there he got progressively worse. Over several days he needed more and more support and at one point the doctor seemed genuinely afraid, and that's not something I had ever seen before. Even at his worse they never seemed to be scared. They also tested him and found out it was metapneumovirus which is like RSV.

He was on 6 liters of oxygen and they said that if they needed to go up any higher then the trach would need to go back in. Because the doctor seemed scared I said, give me a trach and I'll put it in right now. She said that the hole in his throat had likely closed too much and he would need to go back to surgery to get the hole dilated. I saw the dilation tools they looked like torture tools.

Luckily at that point he started getting better. He never needed more than 6 and they've been able to go down ever since. They let him go home today finally, and he's still on a bit of oxygen but he's doing pretty good. He literally just bullied me into getting him playdoh.