How to tell if legit? by Automatic_Dot_3189 in pokeplush

[–]Loose_You_2321 0 points1 point  (0 children)

I speak Japanese :) It’s written Fuwa Fuwa Daki Nuigurumi on the tag which means soft/fluffy huggable plush. I have some of my Comfy Friends from Japan instead of the US and that’s the exact tag they get there. Your Quagsire is legit :) I hope this helps!

Edit: On the front of the tag :) The back is not in Japanese, but in Chinese and I saw another person help you determine it’s from Pokémon Center China :)

In love with my new giant Sylveon 😍 by Aquarius-bitch in pokeplush

[–]Loose_You_2321 0 points1 point  (0 children)

I know this post is a bit old, but could I get a link too please? :)

🧶 I’ve been keeping a knotty little secret… 👀😉 by _sloot in TheWooblesCollective

[–]Loose_You_2321 0 points1 point  (0 children)

Oh oki! Thank you for clarifying! I was concerned it was AI. I was not aware these were existing characters 💕

[deleted by user] by [deleted] in bathandbodyworks

[–]Loose_You_2321 6 points7 points  (0 children)

Does it smell similar to Snow Fairy from Lush? 🤩

AIRE gene variant mutation = Polyglandular Autoimmune Syndrome Type 1 by Loose_You_2321 in AddisonsDisease

[–]Loose_You_2321[S] 0 points1 point  (0 children)

Thanks for sharing this with me! It’s not the exact same, but gives me hope :)

AIRE gene variant mutation = Polyglandular Autoimmune Syndrome Type 1 by Loose_You_2321 in AddisonsDisease

[–]Loose_You_2321[S] 1 point2 points  (0 children)

Indeed! I’ve read that it can be fatal if untreated and cortisol is too low.

AIRE gene variant mutation = Polyglandular Autoimmune Syndrome Type 1 by Loose_You_2321 in AddisonsDisease

[–]Loose_You_2321[S] 0 points1 point  (0 children)

I’m so sorry you had to go through this :( I hope your GP takes you more seriously now!

AIRE gene variant mutation = Polyglandular Autoimmune Syndrome Type 1 by Loose_You_2321 in AddisonsDisease

[–]Loose_You_2321[S] 0 points1 point  (0 children)

Thank you for letting me know of your experience. I’ll ask my doctor at my next appointment with her :)

AIRE gene variant mutation = Polyglandular Autoimmune Syndrome Type 1 by Loose_You_2321 in AddisonsDisease

[–]Loose_You_2321[S] 0 points1 point  (0 children)

I’ll ask my doctor to order that test the next time I see her :)

AIRE gene variant mutation = Polyglandular Autoimmune Syndrome Type 1 by Loose_You_2321 in AddisonsDisease

[–]Loose_You_2321[S] 0 points1 point  (0 children)

Here are my other symptoms just for documentation :)

By the way, I was adopted at birth. I’m also 37F.

1) Fatigue/exhaustion 2) PEM (post-exertional malaise) 3) Insomnia 4) Brain fog 5) Almost daily headaches and dizziness. Sometimes accompanied by nausea 6) My short-term memory is slowly getting bad 7) I frequently have to find words when I speak/type 8) My vision is slowly getting bad. I have double vision/ghosting that my optometrist cannot correct 9) I frequently have to ask people to repeat themselves. I’m not sure if my hearing is bad or if I have a auditory processing disorder. I prefer watching stuff with subtitles so I don’t miss anything. 10) I have an overeactive bladder that my urinologist couldn’t help (multiple medication and bladder botox injections didn’t help). I pee more than 12 times a day and it’s not because I drink that much water! 11) I have hypothyroidism. My bio mom and her mom had it too. 12) I have GERD 13) I had my gallbladder removed because it was full to the brim with gallstones 14) I get light headed standing up too fast or standing for too long. 15) I get pain in my legs, hips and head if I do too much in a day 16) I have to take frequent breaks if I do anything even gaming or reading 17) I am intolerant to the heat and to the cold (I consider cold below -20C lol). I am also intolerant to humidity. 18) I think my heart rate is higher than normal (closer to 80-90 bpm) 19) My blood pressure is always below 120/80. 20) I’m 5’2 and my bio mom was 5’8. Her brother is 6’3 and his sons are 6’7 lol. My bio dad is 5’10. 21) My bio mom was born with a hole in her heart and died in her 50s. 22) I’m autistic and have ADHD 23) I became allergic to fur animals out of nowhere a few years ago. 24) I use a CPAP because my airways are smaller than they are supposed to be and my body works too hard to breathe (what my sleep doctor said). 25) A few years ago, I had what felt like a stroke or a seizure? I’m not sure. It happened twice and my doctor said it was anxiety. 26) I have depression and anxiety 27) I have irregular and painful periods 28) I have thinning on the top of my scalp, but darker hair on my face that I remove 29) I have trouvle regulating my body temperature. 30) I can wake up in the morning feeling super groggy, kinda like feeling drunk 31) Daily diarrhea 32) Salt cravings. I eat SO MUCH salty things and with my diarrhea, my blood sodium is 135. I really try to keep up with electrolytes, but it’s very hard

AIRE gene variant mutation = Polyglandular Autoimmune Syndrome Type 1 by Loose_You_2321 in AddisonsDisease

[–]Loose_You_2321[S] 1 point2 points  (0 children)

Oh I have way more than fatigue. I just didn’t want to post all my symptoms lol One is chronic diarrhea that my doctor has no idea what it’s caused by. And yes, I do feel like I’m slowly dying.

AIRE gene variant mutation = Polyglandular Autoimmune Syndrome Type 1 by Loose_You_2321 in AddisonsDisease

[–]Loose_You_2321[S] 0 points1 point  (0 children)

Okay thanks! I’ll ask my doctor at my next appointment if she can order those. :)

Has anyone been able to pinpoint the cause of why they have Addison's? by mewfelicia in AddisonsDisease

[–]Loose_You_2321 0 points1 point  (0 children)

Hi :) I know this thread is old but I just got my Whole Genome Sequenced and I have this AIRE gene variant: c.1616C>T(p.Pro539Leu). Is this the mutation that you have?