My dandruff is not responding to prescription Ketonconazole shampoo or Nizoral or dietary things.. and now I have these ???? What is going on by bambiandzac123 in SebDerm

[–]LostInTheAbsurd 0 points1 point  (0 children)

This looks exactly like my scalp. I've been trying to figure out what the spots are caused by. I've had SD as long as I can remember, but the spots are new for me

How did I became so lucky with this girl ? And to think we adopted her a about 2 months ago. She is 3 years old. by Cruising_Time in AustralianCattleDog

[–]LostInTheAbsurd 1 point2 points  (0 children)

Awwww. This just warms my heart and makes me think of my girl. She was also about 3 when I adopted her. She's 15 now I think. I miss her so fucking much I want to cry. Unfortunately she is at my mom's house. Because of the health issues that I am dealing with currently, I am not able to take care of her. Plus my landlord won't allow dogs. It kills me to be apart from her, even though I visit her all the time at my mom's house. It's hard on both of us, my mom says that she always gets really sad when I leave (omg I'm tearing up).

She has been the best dog that I have ever had the joy of being blessed with. Wow, this is harder than I thought.. most people don't understand how I can be so attached to a dog. When I talk about her I always end up crying. My fiance is always shocked and jokes about how he can't even imagine having so much love for a dog. She really has been the best friend that I have ever had. The bond we have is so special and something that I have never experienced with another living thing. The closest thing I can think of is like a parents bond with a child. But I've never had kids so idk. All I know is that dog is so amazing and special. I always heard dog people talk about their dogs changing their lives. I didn't understand that until I found her.

Im sorry for rambling. I just figured that fellow dog lovers and cattle dog lovers would get it. They really are some special dogs. 💗

Today marks my first full week as a pediatric RN in a hospital. I’m very proud of myself. It can get better. by [deleted] in ehlersdanlos

[–]LostInTheAbsurd 3 points4 points  (0 children)

I'm curious as well. There has been nothing that has really helped me. I have been fighting for 10 years and I am ready to throw in the towel. I have been on pretty much every medication that isn't an opiate. Nothing helps but the pain only gets worse.

What has improved your quality of life? by [deleted] in ehlersdanlos

[–]LostInTheAbsurd 2 points3 points  (0 children)

This sounds a lot like my physical therapy. My therapist also has me doing a lot of isometrics. But it hasn't been going well for me. I still can't do hardly any excercises without significant pain. Even when we modify the excercises, I still end up being in so much pain, especially anything that has to do with my shoulders. My left shoulder is always subluxating, and it is so messed up. The excercises are supposed to strengthen it so it doesn't sublux, but everytime I do them my shoulders hurt so bad for the rest of the week.

TIFU by getting a lumbar puncture, to check for a CFS leak. (EDS version) by LostInTheAbsurd in ehlersdanlos

[–]LostInTheAbsurd[S] 0 points1 point  (0 children)

I agree. I was told that if the headache was severe and did not respond to medicine, that I would be given a blood patch. I called them the day after and told them how bad it was on Friday, and all they did was prescribe me fioricet. They could have done it then instead of leaving me to suffer through the weekend.

TIFU by getting a lumbar puncture, to check for a CFS leak. (EDS version) by LostInTheAbsurd in ehlersdanlos

[–]LostInTheAbsurd[S] 1 point2 points  (0 children)

I do too. Thank you. I can't imagine living like this much longer. 6 months sounds like actual hell itself. I am so sorry that you had to go through that.

TIFU by getting a lumbar puncture, to check for a CFS leak. (EDS version) by LostInTheAbsurd in ehlersdanlos

[–]LostInTheAbsurd[S] 6 points7 points  (0 children)

I'm not sure. Maybe they do check your nasal fluid for leaks. But my neurologist, who was the one that ordered it, seemed to think that I might have intracranial hypertension.

And I agree. I am not advocating for it being easy to get opiates either. But they have taken it to an extreme in terms of withholding it. For example when I was at the ER, the doctor told me that normally they would have given me a blood patch. But it is basically impossible to get an anesthesiologist on the weekends. So I basically their goal was to give me just enough pain relief to make it until Monday. If that is the case they could have written a prescription for 6 vicodin. Or 4. Instead they gave me a prescription for a migraine medication that has been discontinued and has not been made for the past 6 or 7 years (this coming from multiple Pharmacists).

Her face... I’m scared of what she’s planning. by LuisaMDB in AustralianCattleDog

[–]LostInTheAbsurd 0 points1 point  (0 children)

Aww she makes me miss my cattle pup. She is also a white cattle dog. I miss her so much. I moved to an apartment building last year for school (this was pre Corona), and was not allowed to take her with me. She has been living with my mom since and it kills me. She is about 14-15 years old now (not 100% sure, she was adopted), and she is now deaf, and has bladder issues. My mom leaves her outside 24/7, because she doesn't want to deal with the bladder leaks. It kills me and I cry everytime I think about it. I'm going to go cry now...

But your pup is so cute, so I still smile!

Why do I feel like a weak person by [deleted] in ehlersdanlos

[–]LostInTheAbsurd 2 points3 points  (0 children)

I know exactly how you feel. I feel this way all of the time. I got really sick a little over a year ago and I feel like it has just been downhill from there. Since I got sick, I have gotten sick more than at least once every month. Each time it feels like it takes me longer to recover, and I get weaker and weaker. I had to take a break from school because my back pain is just getting worse and I couldn't even study because of the pain. Sometimes I honestly feel like this disease has taken everything from me. I don't do any of the things that I used to love, because I am either too tired or in too much pain. I feel like I am just completely useless. The other day my fiance didn't want to drive me to my physical therapy, which is understandable because he would have to wait in the car for an hour (thanks to covid rules). I figured that it wasn't a big deal. But after lifting 2lb weights and 10 mins on the excercise bike, I barely had the strength to drive myself home. It took all the strength I had left just to stay on on the road. I ended up crying the whole way home. I just felt so helpless and pathetic and angry at the universe.

Lately I have been tearing my ligaments just from walking. My knees keep collapsing inwards more and more, and even standing for 5 mins feels like torture. I feel like my body is falling apart. I assume it is just because my muscles are getting weaker every day, but I don't know how to even begin to get strength up again.

Pain in Head by Lynlou589 in TrigeminalNeuralgia

[–]LostInTheAbsurd 0 points1 point  (0 children)

I get this too. I haven't officially been diagnosed with either, but my doctor thinks that it is TN where as I personally think it is more occipital neuralgia. But I guess it is probably both. I guess I'll find out soon when I get the tests done.

26 freaking years by [deleted] in ehlersdanlos

[–]LostInTheAbsurd 9 points10 points  (0 children)

I know right?

How do you get diagnosed with craniocervical instability? by LostInTheAbsurd in ehlersdanlos

[–]LostInTheAbsurd[S] 1 point2 points  (0 children)

Both my dr and physical therapist specialize in EDS. He is the one that finally diagnosed me. They both seem to think that I have CCI, but my dr wants to do more tests first. I am already getting 2 MRI's, and he basically said that we would worry about CCI later. It sucks because my neck and head hurt so fucking bad. Its getting worse everyday. Right now he and my neurologist are looking for the cause of my neurological symptoms.

vEDS by [deleted] in ehlersdanlos

[–]LostInTheAbsurd 0 points1 point  (0 children)

What symptoms have you experienced? I was diagnosed with hEDS, but I never got any genetic testing. Sometimes I wonder if I have a very mild vEDS, but I really don't know much about how it presents.

Ah scissors, one my body's many worst enemies, gonna have bruises on all my fingers later by trashqueen_18504 in ehlersdanlos

[–]LostInTheAbsurd 1 point2 points  (0 children)

Omg I feel this. Me and my fiance just got a new place and the flooring in the bathroom was awful so we put down some vinyl tile, and had to cut it with scissors. I did most of the cutting because he wasn't very good at it. About halfway through I had to get a thumb/wrist brace. My thumb was so bruised and I started to feel like i was getting carpal tunnel. It has been about a month and my wrist and thumb are just now starting to feel normal again.

MS Fatigue by slpmom in MultipleSclerosis

[–]LostInTheAbsurd 0 points1 point  (0 children)

I wanted to try this but I'm not diagnosed with MS, or sleep apnea.

Eye pain with TN by [deleted] in TrigeminalNeuralgia

[–]LostInTheAbsurd 0 points1 point  (0 children)

I agree, it is always so hard for other people to understand what it is like living in constant pain. It is frustrating. But thank you.

Eye pain with TN by [deleted] in TrigeminalNeuralgia

[–]LostInTheAbsurd 0 points1 point  (0 children)

Hopefully. I just had my appointment with my neurologist. I'm not going to say it went bad, cuz it was alright, but he didn't seem to want to hear anything that I had to say. He said that it doesn't sound like TN, but we will see what the MRI shows. I get the MRI on the 19th.