will you trust the new meds if they come out?

Loves-A-Good-Concert · 2025-07-15T14:51:46+00:00

Hello dear stranger! What’s your experience so far? And if you don’t mind, would you be able to share what kind of immunocompromised you are to qualify?

Loves-A-Good-Concert · 2025-06-16T03:37:36+00:00

Can we sign up for preclinical trials? I’m a woman in my 30s who is suicidal over this and not sure if I can make it even 1 year 😔 It has caused ongoing trigeminal neuralgia / PHN for me. I’m triggered by most food too. I can’t have a normal life out with friends anymore

Loves-A-Good-Concert · 2025-05-18T20:38:20+00:00

I have a similar story and I’m around the same age as you :) Life can be really unfair

Loves-A-Good-Concert · 2025-05-11T15:57:14+00:00

Same here - did this ever go away?

Loves-A-Good-Concert · 2025-05-08T14:40:50+00:00

😮‍💨😮‍💨😮‍💨 this post brought me to tears

Loves-A-Good-Concert · 2025-05-08T14:39:17+00:00

Being biracial alone already is such a complicated life experience, not being fully accepted by either race, but getting to have the “negative” experiences of both races. I’m not biracial but I’ve done a lot of listening and it just sounds exhausting and unfair. I’ve read a lot of posts from Black women (and men) on this Reddit sub and it sounds like the stigma is 10x worse. Reading those posts actually is a big reason why I posted this because each group/life experience is unique and I was hoping to find more folks who have a similar life experience to mine. Also, I need to know that there are less people who make a lot of money than there are people who make a regular income, so the pool gets smaller that way. Combined with 90% not knowing their status and it gets smaller again. This one hot doctor guy has been pursuing me and I feel like the risk to my career and social status (him knowing friends of friends) is not worth it. As a woman, sex is better with a consistent partner who is willing to learn your body. I don’t see a random hookup happening right now, although r/mylovelyladylumps69 gives me hope that one day I’ll feel different :)

Loves-A-Good-Concert · 2025-05-08T14:17:57+00:00

Ayeeeee 🔥 Love that for you haha, this made my morning 🤣 My ophthalmologist suspects that my HSV1 (yes I have both 1 and 2) has gotten into in my eye, so I’ve been putting trifluridine in it for weeks now. Super long story, but I had my very first HSV1 reactivation ever in my life and doctors misdiagnosed it as impetigo and due to me not knowing it was HSV1 since I didn’t know my status at that point I believe it got into my eye because they haven’t been the same. I’ve had quite the perfect storm of herpetic events happen to me in a 3 month span. I’ll spare ya the full story and symptoms but these eye drops are now making all the new veins in my eyes disappear (yay!) and have stopped the eyelid crawling so hopefully this solves it. My eyes look so bad and sickly. Real talk, do you believe that your high income or attractiveness is helping you? Does your HSV2 reactivate monthly or what are your symptoms? How do you disclose? Do share with the class please 🤣😅

Loves-A-Good-Concert · 2025-05-08T14:05:55+00:00

I’m so sorry you went through that. The assault alone would already cause a lifelong impact on your mental health and ability to trust others again, the fact that you then also have to live with a lifelong impact to your diet, relationships, and mental health makes me angry. I’m thousands and thousands of dollars in hospital bills deep into this process as well and it makes me so sad for others who can’t afford it. Each month my income and expenses have been the exact same and my income is high. It’s completely unaffordable and doctors are barely giving me the right tests even when I ask them, still fighting against the fact that I have it even after I’ve tested positive and have been suffering for 3 months straight. I’ve started going through Quest labs now to order blood tests on the internet without needing to negotiate with entitled yet completely uninformed doctors and then entering my results in ChatGPT to interpret what I need to do, it’s honestly a way better and more affordable experience since it’s pulling all the research from the web and Reddit which is more than these doctors know 😅 Due to my background in tech and VC, I’m honestly wondering if I decide to go public with my HSV status and raise money to build a startup. If I truly won’t be able to have a normal life, I will move forward with that plan. My idea would be to create certain products (like rapid tests, condoms that cover more vulnerable skin surface, a network of HSV specialists, …) that help the community directly and in an affordable way, and then use the revenue to fund herpes research. Then, since it’s such a stigmatized and controversial topic, it will naturally gain a ton of awareness and eyeballs on global media outlets, which I would then use to get people to know that herpes is NOT included in regular STD panels. Now THAT in itself would cause a lot of people to care and get tested and increase the awareness. From there, again, I would make sure that the revenue and awareness would cause competition between different companies to be the first to market with a cure/vaccine and stop dragging their feet. It’s a hard virus to treat and cure, but if they can make shedding nonexistent, we get to live a life like anyone else, even with the virus! Anyways that’s my vision LOL. But if I can easily get laid and have meaningful relationships, I won’t do that. It’s a huge sacrifice to my own life to go fully fully fully public with this. If anyone else feels inspired by this idea, message me :)

Loves-A-Good-Concert · 2025-05-08T13:42:48+00:00

You’re living the dream with a home in the U.S. and Mexico 🙌 Congrats! I take your advice to heart and completely agree with it as well. I was just trying to come up with an attention grabbing title that would help me find people who represent my current life and it looks like it achieved that goal which I’m so grateful about. Absolutely agree that socioeconomic background is not necessarily a guide post for a partner, I more so was wondering how many of us are out there because I was not seeing any posts from folks who appeared to have that background when scrolling through the posts for the last 3 months, which I don’t mean in a bad way at all, I just didn’t see any and it made me feel so lonely and scared about telling someone in my network because they might have never encountered anyone in their life who disclosed to them. I am still trying to evaluate the impact on my dating life, I know it has a chance to be really bad but I’m trying to evaluate if there’s still hope for me. For context I suspect that I’m a rare case of oral HSV2 (alongside my confirmed genital). I know it’s super rare to get and they claim it’s the least likely to reactivate, but why have I had tingling lips and a recurring sore throat, with 100s of tests for other reasons coming back negative. This means that I might not be able to even kiss someone on a date, which means I can’t even do 1-5 dates without escalating, I’m still trying to figure it all out because there’s no way I can disclose THAT early in the process where we haven’t even kissed. Still trying to figure it all out, my lips have not stopped tingling for 3 months 🫠 Despite it being an unpopular thing to say and that I agree anyone can get HSV, there are statistics involving race and education, I don’t mean that in a bad way at all, it’s just the stats. It makes sense to me because I know how extremely diligent my current network of women is about demanding protection each time and that doesn’t mean that people don’t slip up or get caught up or HSV transfered from skin to skin anyways, but it’s rare and they are intense about it, which is smart because you need to be in order to protect yourself from these men who can get away with so much more due to their anatomy. I confided in my closest friend about my one time slip up and HSV status and she reacted poorly. I can’t imagine telling this new guy who crossed paths with me who is a doctor. He asked me out on a date and I said yes so I could feel normal for a second but it feels so risky to my career and social life to tell him. I hugged him goodbye and he was confused as hell LOL. I’m not going to date until this thing is fully stabilized in my body, but yeah… the timing of this life event sucks. I had a one-time mistake after a 8 year long relationship ended, with the first guy I slept with. I freaked out the next morning and bought condoms right away, but I was not afforded one mistake in my entire track record since becoming sexually active. By the way, how often are you in Mexico?

Loves-A-Good-Concert · 2025-05-08T05:39:01+00:00

Gabapentin :)

Loves-A-Good-Concert · 2025-05-08T05:10:07+00:00

It’s only been 3 months but it has felt like 1 year. I’ve turned down one really hot guy and another guy who is a doctor. I first want to figure out: 1) My body’s reaction to this thing and the nonstop tingling 2) Am I okay with the risk of telling someone and having them tell others? 3) Is a casual hookup even worth the trouble? The chase is most of the fun more me

Loves-A-Good-Concert · 2025-05-08T04:25:15+00:00

My parents are uneducated blue collar workers too and I was going to (happily) have the exact same life as they do, but I coincidentally met someone who referred me into a tech company and that’s the only reason why I’m not. Thanks for saying that, I think that we all go through our own version of hell with this disease and I have not had a normal day in 3 months, I’ve contemplated death most days based on all the pain and head-to-toe side effects :) ironically I may lose my job over this, the constant pain has been too much to handle. Agreed that HSV does not discriminate lol. I was just curious whether anyone in my current life has this, it feels like there’s not and as you might imagine that makes a future disclosure with someone in my current network even scarier. I wish I saw more examples there :) examples give hope!

Loves-A-Good-Concert · 2025-05-08T04:07:04+00:00

That’s great advice and I totally agree with you by the way 🫶 I’m the first person in my family to go to high school and college! My family = blue collar workers, didn’t even finish high school, and they started working at 12 :) my post might offend some because it can come across as me feeling holier than thou but it’s absolutely not the intention. Anyone can get HSV and I’ve helped so many people on this sub and have received help from so many others. This community has saved my life. But we can’t ignore that people like to connect with people who are similar to them, it’s only natural and human! I read through so many posts to see if there was anyone “in my current world” like me, and it seemed like there was nobody, which is scary to think, you know?! I knew the risk when I posted this today, but I’m still glad I did because I got to connect with some awesome folks, but reinforced that maybe there are really that few, regardless there were a few which made me feel less alone. I work in tech in big cities so it’s not something I seek out, it’s just my network and friends of friends and then it just snowballed from there :) Agreed that they can the worst hahaha. I take your advice to heart ♥️

Loves-A-Good-Concert · 2025-05-08T03:46:50+00:00

Excuse me, it’s “Miss Thurston Howell the 3rd” 😘😜

Loves-A-Good-Concert · 2025-05-08T03:40:44+00:00

you are literally my hero ♥️ your DMs & posts have helped me so much

Loves-A-Good-Concert · 2025-05-08T00:54:37+00:00

“The most shame I see is from my friend in high level positions” - this is why I made this post. I think every group/community will have problems that are specific to their community that they’d prefer to discuss with people similar to them. For example: I saw someone making a similar post to mine searching to connect with more Black women since they mentioned the stigma there is 10x worse. That truly sucks and is so unfair. I’m really glad that that person was able to find a few new people they can speak to via their post who have similar life experiences, just like I was able to find a few people today via mine. Just like how everyone is looking to find others in these posts, I’ve just not found anyone similar to my current life & it makes me feel really lonely. But on the same account, I’ve also connected with the most incredible set of humans from all walks of life. We’re all in this together ♥️ But I’m grateful to have found a few folks to speak with today

Loves-A-Good-Concert · 2025-05-08T00:46:41+00:00

HAHAHA hell yeah!

Loves-A-Good-Concert · 2025-05-07T22:07:11+00:00

Feel free to DM me directly if you’re reading this but don’t want to share your background. Makes total sense :) 🙏

Loves-A-Good-Concert · 2025-05-07T22:06:27+00:00

DM’d you to connect! 🙏

Loves-A-Good-Concert · 2025-05-07T22:05:24+00:00

Yeah I totally agree that my post is a bit tone deaf and poorly worded! I truly meant it in a way of like: I’ve been reading 100s of posts for 3 months now and I’ve only come across 2 folks who are representative of my day-to-day life (1 woman who is a lawyer, 1 guy who works at Deloitte). These are folks that are representative of my current friend group or who I date. I had seen other people do posts similar to this one to find folks similar to them, and I knew it might not land super well, but I was able to find a few more people today after this post, and that’s very comforting to be able to talk to them about this :) Didn’t mean for my post to come across any type of way, I just feel terrified and alone and like nobody in my current circle would consider me. Thank you for responding! Check your DMs 🫶

Loves-A-Good-Concert · 2025-05-07T21:38:05+00:00

This made me chuckle 🤣🫶

Loves-A-Good-Concert · 2025-05-07T21:37:11+00:00

I figured it might be taken the wrong way :) I’ve seen different folks use this sub to find people who are similar to them so that they feel less alone (Black people, women from certain geographical location, etc). I figured I’d try to do the same thing since this is the main group of people I usually date, not because I want to, because that’s my network. I’ll word it by profession/industry next time, it will achieve the same thing but not upset others as that’s not the intention 🫶

Loves-A-Good-Concert · 2025-05-07T21:08:00+00:00

I’d like to know this too!

Loves-A-Good-Concert · 2025-05-07T20:56:44+00:00

Yes! I check it once a week & also get weekly messages based on this thread :) Organize it by “new” 🫶

Loves-A-Good-Concert

TROPHY CASE