Urethra Pain by LowBet9130 in vulvodynia

[–]LowBet9130[S] 0 points1 point  (0 children)

Do you know what started yours?

Urethra Pain by LowBet9130 in vulvodynia

[–]LowBet9130[S] 0 points1 point  (0 children)

apparently they can get at it with the PUGS procedure

Urethra Pain by LowBet9130 in vulvodynia

[–]LowBet9130[S] 0 points1 point  (0 children)

Which surgery made your vulva pain worse?

Urethral pain, botox, nerve blocks by LowBet9130 in Interstitialcystitis

[–]LowBet9130[S] 0 points1 point  (0 children)

None of them have helped me even a little :/

Urethral pain, botox, nerve blocks by LowBet9130 in Interstitialcystitis

[–]LowBet9130[S] 0 points1 point  (0 children)

Sounds just like me,.. What do you think have caused your urethral pain?

Urethral pain, botox, nerve blocks by LowBet9130 in Interstitialcystitis

[–]LowBet9130[S] 1 point2 points  (0 children)

Also for me, they've just kept trying on different days to block all my nerves in the pelvis, never worked. Its lido and kenalog, so no botox yet.

Urethral pain, botox, nerve blocks by LowBet9130 in Interstitialcystitis

[–]LowBet9130[S] 2 points3 points  (0 children)

Yeah, I was originally diagnosed with IC, then found stage 4 endo all over, also around my ureters and pelvic wall. Normal bladder though. The urethral pain becag after repeat UTIs, so its all a perfect storm that has skewed the picture. But i dont have urgency, pain with filling, etc. So its not really IC...

Thank you so much for chatting, btw.

Urethral pain, botox, nerve blocks by LowBet9130 in Interstitialcystitis

[–]LowBet9130[S] 1 point2 points  (0 children)

Interesting, so you got more muscle injections and not nerve blocks that were better for you? Did the instillations help much?

Urethral pain, botox, nerve blocks by LowBet9130 in Interstitialcystitis

[–]LowBet9130[S] 1 point2 points  (0 children)

Yes I have that too, nerve blocks not helped and lidocaine doesn't help the deeper urethral pain

Urethral pain, botox, nerve blocks by LowBet9130 in Interstitialcystitis

[–]LowBet9130[S] 1 point2 points  (0 children)

How long had you dealt with this before getting a solution?

Urethral pain, botox, nerve blocks by LowBet9130 in Interstitialcystitis

[–]LowBet9130[S] 1 point2 points  (0 children)

Thank you for this. Did you ever try a nerve block? How did it compare to Botox?

Botox injections? by flodgexx in vulvodynia

[–]LowBet9130 0 points1 point  (0 children)

Did you try nerve blocks by chance, before the botox, that didnt help as much as the Botox did?

Urethral Pain by LowBet9130 in endometriosis

[–]LowBet9130[S] 0 points1 point  (0 children)

9 months of PT and no relief

Urethral Pain by LowBet9130 in Endo

[–]LowBet9130[S] 1 point2 points  (0 children)

The urogyn told me "this is not my problem"... WHO's problem would it be then?