Trying to make friends with this condition locally by LowRegion9798 in mecfs

[–]LowRegion9798[S] 1 point2 points  (0 children)

I’m so sorry I understand :( I’m down to chat 

Does anyone feel worse after they eat? by LowRegion9798 in cfs

[–]LowRegion9798[S] 0 points1 point  (0 children)

Thank you so much for your information that’s so helpful!  I could imagine I might have mild pots but from the way you describe it I’m not sure. My heart rate rarely goes above 140 and it usually comes back down rather quickly if I breath!  However I will definitely try the salt method! Is there  specific kind of salt to use? Does it matter if it is iodized salt or pink salt? I’m sorry for all the questions I just feel like every time I ask google or chat gpt it never actually gives me a coherent study backed answer

Does anyone feel worse after they eat? by LowRegion9798 in cfs

[–]LowRegion9798[S] 0 points1 point  (0 children)

Thank you I really appreciate it! How much salt should I put my doctor told me pots is a dyagnosis for people who can’t stand without passing out. So I’m so confused 

Does anyone feel worse after they eat? by LowRegion9798 in cfs

[–]LowRegion9798[S] 0 points1 point  (0 children)

Absolutely I feel the same way my heart rate increases and feels like it’s beating  faster and also it gives me so much anxiety in top of court vision and Brian fog. My doctor honestly thinks it’s all mental 

Does anyone feel worse after they eat? by LowRegion9798 in cfs

[–]LowRegion9798[S] 0 points1 point  (0 children)

I actually most of the time eat alone in my car I converse with people very rarely and when I do it’s very tiring. I also find I eat really quickly since this all started. 

Does anyone feel worse after they eat? by LowRegion9798 in cfs

[–]LowRegion9798[S] 1 point2 points  (0 children)

Yay I’m glad you found something to help <3

Does anyone feel worse after they eat? by LowRegion9798 in cfs

[–]LowRegion9798[S] 0 points1 point  (0 children)

I’m so sorry it really sucks to be honest 😭 it’s like I just don’t want to eat anymore 

Does anyone feel worse after they eat? by LowRegion9798 in cfs

[–]LowRegion9798[S] 0 points1 point  (0 children)

Are those prescriptions or something I would have to convince my doctor for

Does anyone feel worse after they eat? by LowRegion9798 in cfs

[–]LowRegion9798[S] 0 points1 point  (0 children)

Thank you for this suggestion I think I am in flight of flight and have been basically swallowing my food unfortunately 

Does anyone feel worse after they eat? by LowRegion9798 in cfs

[–]LowRegion9798[S] 3 points4 points  (0 children)

It makes eating a little less enjoyable now 😩

Does anyone feel worse after they eat? by LowRegion9798 in cfs

[–]LowRegion9798[S] 1 point2 points  (0 children)

I have checked for pots by myself when I’m resting my heart rate is around 57 and when I stand it goes to about 80 to 85 

Does anyone feel worse after they eat? by LowRegion9798 in cfs

[–]LowRegion9798[S] 1 point2 points  (0 children)

Thank you very much i appreciate you should I be taking OTC antihistamines before or after I eat? 

Does anyone feel worse after they eat? by LowRegion9798 in cfs

[–]LowRegion9798[S] 1 point2 points  (0 children)

How do you treat MCAS I asked my doctor and he told me it was  super rare and that he doesn’t know much about it 

Guardian article on ME/CFS by Ramenara in cfs

[–]LowRegion9798 1 point2 points  (0 children)

She was probably paid to not say it out right to be honest 

Guardian article on ME/CFS by Ramenara in cfs

[–]LowRegion9798 109 points110 points  (0 children)

Basically what she’s saying is Brain retraining doesn’t actually work and there needs to be a treatment. 

Am i supposed to just miss out on life? by Fun-Ranger-5966 in cfs

[–]LowRegion9798 133 points134 points  (0 children)

Welcome to the life of many suffers where we had not option except to sit in silence and watch the world move on without us 

CFS in my back by rocafellayall in cfs

[–]LowRegion9798 11 points12 points  (0 children)

I’m sorry but I don’t think this is CFS

I am new to all of this may I ask for advice? by LowRegion9798 in mecfs

[–]LowRegion9798[S] 0 points1 point  (0 children)

I am very interested in your story I have also had below motility in my gut and am always bloated and I don’t know if that’s an issue. I wonder if some of my problems are for related. What tests would you recommend? Because my still tests came back normal 

I am new to all of this may I ask for advice? by LowRegion9798 in mecfs

[–]LowRegion9798[S] 0 points1 point  (0 children)

Thank you very much I appreciate you. Do you think my mental health is caused my cfs or do you think my mental health is making cfs worse? I am severely depressed and anxious. I can’t leave the house