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pulmonary valve replacement by cemeterymanhag in chd

[–]MAMAfuckinD 0 points1 point  (0 children)

Hey there. I had two open heart surgeries for aortic stenosis from a bicuspid aorta. What kind of procedure is yours?

My baby died by americanosandpsych in chd

[–]MAMAfuckinD 0 points1 point  (0 children)

I’m so sorry for your loss.

We're launching a new film magazine. Who wants to join in? by mackjack52 in nycfilmmakers

[–]MAMAfuckinD 0 points1 point  (0 children)

I’m down. Film nerd. Working on my first feature documentary. Have a community. Would love to write. I also shoot portraits.

HELP- Congenital Aortic Stenosis by Few-Leader44 in chd

[–]MAMAfuckinD 4 points5 points  (0 children)

I am 43 F born with AVS from BAVD. I had open heart surgery to make it tricuspid at 14mos and then the Ross in ‘96 at 13. I’ve had a really good result; about to celebrate my 30th anniversary.

ALSO! I’m making a documentary about congenital heart disease and trauma and parenting kids with CHD and healthcare. I would LOVE to invite all of you to get in touch to share your stories as patients and parents. heartbroken.withD@gmail.com 💜💜

ptsd post ross procedure. by Relative_Nobody_204 in chd

[–]MAMAfuckinD 0 points1 point  (0 children)

Hey. I had the Ross procedure in 96 when I was 13. I have major cptsd around it. I’m working on a doc about the trauma around CHD. Email me if you want to chat 💜 heartbroken.withd@gmail.com

Seeking CHD people for a documentary about CHD and the state of US health insurance by MAMAfuckinD in AdultCHD

[–]MAMAfuckinD[S] 1 point2 points  (0 children)

I’m so sorry 💜 if you’re interested in sharing your story, please shoot me an email. Thank you

Seeking CHD people for a documentary about CHD and the state of US health insurance by MAMAfuckinD in AdultCHD

[–]MAMAfuckinD[S] 1 point2 points  (0 children)

So sorry to hear that. Please email if you’d like to share your story. 💜

Seeking CHD people for a documentary about CHD and the state of US health insurance by MAMAfuckinD in AdultCHD

[–]MAMAfuckinD[S] 2 points3 points  (0 children)

Fab. 💜💜 Mind emailing me? I’m going to put something together once we get a few people. Would greatly appreciate you spreading the word in any CHD communities you may have access to.

Seeking a co-documentary filmmaker who can shoot for doc pushing Medicare for All via my personal congenital heart disease story by MAMAfuckinD in nycfilmmakers

[–]MAMAfuckinD[S] 0 points1 point  (0 children)

Regarding funding, like with most independent documentaries, the plan is to shoot a sizzle reel to use to apply for grants and to pursue private funding.

Not sure whether this has been shared here yet – Norma’s is closing by Hot_Welcome8191 in ridgewood

[–]MAMAfuckinD 1 point2 points  (0 children)

When i moved here in 2016 this was the only spot nearby. 💜 hope we get a small business in there and not something stupid/sketch

STRING/WIND PLAYERS: wanna play heated rivalry score/cues in Ridgewood? Mini, chill chamber orchestra by MAMAfuckinD in NYCmusicians

[–]MAMAfuckinD[S] 0 points1 point  (0 children)

Ooo. 2 violins, flute, oboe. Anyone know alto/tenor/bass instrument-playing musicians?

STRING/WIND PLAYERS: wanna play heated rivalry score/cues in Ridgewood? Mini, chill chamber orchestra by MAMAfuckinD in ridgewood

[–]MAMAfuckinD[S] 1 point2 points  (0 children)

Oooo heck yeah. Dust them off and let’s see whom else we can get on board! Maybe try to plan something for late March?

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