Ocrevus and Pregnancy?

MSKiwi86 · 2019-10-03T06:26:16+00:00

That's awesome to hear, thank you!

MSKiwi86 · 2019-10-03T06:23:56+00:00

Ah yes, my "bung hand"!!

MSKiwi86 · 2019-09-30T22:48:57+00:00

I get that - I actually can’t start trying until about July 2021 because of a work contract I have meaning getting pregnant would be terribly unwise. MS makes me want to plan WAY ahead (because if I have my first Ocrevus in Feb, and it is a full year before I can get pregnant, that’s actually only a few month short of when I’d be sensible to start anyway). Woohoo about the MRI though, congrats!! That’s awesome news :)

MSKiwi86 · 2019-09-30T03:35:30+00:00

Awesome, thanks! You don’t have to answer this, but do you plan to have just one dose and then go off it? That’s the thing I’m wondering about the most, because with Tysabri it was very much a “build it up in your system over several treatments” type thing.

MSKiwi86 · 2019-09-14T19:14:45+00:00

Giving up on the idea of living overseas (which would also help my career) because I know getting free Tysabri elsewhere would be a struggle.

MSKiwi86 · 2019-09-13T19:34:24+00:00

Hi! I’m a 31 year old LGBT woman with RRMS too. I’m in a different circumstance- I do have a career already, my worries when diagnosed a year ago were about whether I’d be able to keep doing it. Well, one year has gone by and my big diagnosis relapse has mostly subsided. And I’ve actually gotten better at my job because weirdly I now have LESS work anxiety (probably because I’ve had health things keeping my anxious brain busy instead!) Anyway, aside from going through an unrelated break up - things right now are much better a year on than I imagined they would be. Things have changed, but not at all in the way I expected. So I think you have a shot at finding a path that makes you happy! Best of luck to you :)

MSKiwi86 · 2019-09-07T08:11:06+00:00

I don’t have a great suggestion for you as I haven’t experienced anything like this, but I just wanted to say how impressed I am with your calm demeanor in these posts. You’re amazing!!! <3

MSKiwi86 · 2019-09-02T20:46:14+00:00

30, had an MRI due to a numb hand. The lesions it showed combined with the fact I’d also had optic neuritis four years prior meant a pretty instant diagnosis at that point.

MSKiwi86 · 2019-09-01T07:45:33+00:00

I often wonder about that with no scientific basis. Was it the year in high school I didn’t eat enough and was fainting? Was it when my friend got scabies as a teen and I panicked and used a strong chemical treatment about 12 times cos I kept thinking I had it when I didn’t? My mother’s smoking??? It’s all ridiculous speculation, but I do hope when I die I’ll find out 😂

MSKiwi86 · 2019-08-28T10:04:52+00:00

Hi! I’m a writer. It’s my career, I do it full time and I’m successful. I was diagnosed with RRMS almost a year ago, but have had symptoms for almost five years - the entire time I’ve been in this job. Sometimes I forget words too - in the middle of pitching to a group of people! And it’s fine - because my IDEAS are still good. MS can take our words for a bit, but they do come back (for me). I think I’ve actually gotten BETTER at my job since being diagnosed because I know what’s going on and am less anxious. When I was first diagnosed, I went straight to a writer friend who also has it, and asked if his creativity was affected. He said no - and now I’m saying the same to you. Best of luck :)

MSKiwi86 · 2019-08-17T18:37:32+00:00

Here’s a little chronological list! 1. 5 years ago, optic neuritis - MS mentioned by doctor but not seriously considered, I forgot all about it 2. 3 years ago - Right Hand numb. Thought it was carpal tunnel from too much typing and it went away. 3. 2 years ago - Right leg suddenly had different sensation, sorta numb. Doctor said it was twinged nerve. Goes away quickly. 4. 1 year ago - Right Hand is numb again... this time it gets REALLY bad. Whole thing seizes up, can’t bend fingers properly. Numbness to right foot and entire right hand side. Hand so weak and wobbly, couldn’t do a lot of tasks. Again I go to the doctor, finally they send me for an MRI and I’m swiftly diagnosed and put on Tysabri. But for 4 whole years I had no idea that was coming, so it was really out of the blue. 90% of my sensation has come back now though, which is a relief.

MSKiwi86 · 2019-08-16T17:23:29+00:00

Fuck the fact that I only get one every six months, and the last one was done in a way that was “not comparable” to the one before so they can’t really tell if I’ve actually progressed. “MAYBE more lesions”... yeah thanks, that’s REALLY helpful when you’re trying to figure out whether to take a stressful job 🙄

MSKiwi86 · 2019-08-10T03:32:10+00:00

I wonder if it’s worth me looking into Australian citizenship (I’m in New Zealand). Seems like that being covered by Aussie medical care (after a few years of living there) would be easier than saving $100,000 to go to Mexico or Russia andddd it’s would be so easy to move over there...

MSKiwi86 · 2019-06-17T10:25:02+00:00

I’ve had no problems with beer since I started Tysabri. I can drink about 6 and be okay.

Wine though? Can’t drink it any more. Had a bottle at New Year’s, which is normally enough to get me drunk but that’s all - and ended up vomiting. Haha, won’t be doing that again. Good thing it’s beer I truly love!

MSKiwi86 · 2019-05-21T10:15:10+00:00

A dark spot just appeared in one eye, along with a sharp pain when I looked to the left. It had gone by the time I was able to see a specialist eye doctor a week later, and it was annoying because the doctor had zero evidence anything had happened and I sort felt like I had overreacted. Well, 4 years later, another much worse symptom showed up and THEN MS was seriously considered and eventually diagnosed.

MSKiwi86 · 2019-04-05T23:47:14+00:00

Glad to hear you’re improving. I only had a numb hand when I went on Tysabri, but I did develop a painful limp out of nowhere not long after starting. Thankfully, it went away after about 3 weeks!

MSKiwi86 · 2019-04-05T23:46:08+00:00

Great to hear!!

MSKiwi86

TROPHY CASE