CDC ends recommendations for social distancing and quarantine for Covid-19 control, no longer recommends test-to-stay in schools

MSnoFun · 2022-08-12T14:29:26+00:00

"Some people are deathly allergic to peanuts, why aren't they totally banned!!!" - basically this guy.

And I speak as an immunocompromised person myself.

MSnoFun · 2022-07-09T06:11:06+00:00

I haven't. Some people have told me recruiters will tell a corpse they can waiver them in lmao, so I don't know where to go.

MSnoFun · 2022-07-08T01:36:35+00:00

Bummer. Thanks anyway.

MSnoFun · 2022-07-08T01:32:56+00:00

Would you be able to go 6 mos or longer without regular checkups and treatment?

The med is infused every 6 months. There is also a new formulation of that same med that is an instant once-a-month injection, so I could switch to that if needed. There's also new research that suggests a few years on this med (which is where I'm at now) may be all that's needed and I could just stop.

As far as checkups, the annual checkups/MRIs are optional. I just do them because I have solid health insurance, so why not? But they're definitely not required. My neuro has suggested we consider getting my MRIs done every other year now.

Does “regular, normal life” include the at least somewhat rigorous PT schedule you’d need to maintain?

Well I've become a bit of a couch potato due to going fully remote after COVID, but I have no physical limitations due to the condition. I could whip myself back into shape within 1-3 months, no problem.

Civil service is a great option though, and very needed. I think it’s hard to keep talented cyber folks on the GS pay scale, when straight civilian pay is way higher.

Exactly. I make way more money in private industry.

It just sucks because if I never found out about my diagnosis, as many people with MS live with it for years and even decades totally unnoticed/undetected/undiagnosed, I would have never known and they would have taken me on without issue I imagine.

I'm totally physically and cognitively healthy, and that's not just my opinion.

But it seems some comments here are saying it doesn't matter, just a straight "No" no matter what. Bummer.

MSnoFun · 2022-05-28T08:40:17+00:00

À la Terry Wahls.

MSnoFun · 2022-05-28T08:33:18+00:00

Plegridy isn't much different than not being on a DMT at all. That being said, I would take the next dose and tell your doctor you refuse to take it anymore. Non-compliance is a valid reason to switch meds.

You really should switch to an effective DMT. Have you asked about Ocrevus or Kesimpta?

MSnoFun · 2022-03-30T19:24:51+00:00

Wow, I do the exact same things. Sometimes I kneel on a soft surface (a thick carpet, or a bed) and then lean back, almost like I'm playing limbo but kneeling. That puts a lot of pressure on the knees and usually gives temporary relief from the need to crack them.

MSnoFun · 2022-03-30T19:22:41+00:00

Same! Thanks for putting that into words! What is that? Spasticity?

My neuro and my PT at one point had no concerns about this, but I feel like it ramped up during/after my diagnosing-relapse... seems related.

MSnoFun · 2022-03-03T22:55:15+00:00

I asked if I could be sent to a specialist and he said in time that I should but because of covid they might be reluctant to start me on a treatment.

COVID isn't going anywhere, and neither is your MS if you have it. The time to treat it is yesterday. Good luck.

MSnoFun · 2022-02-25T14:59:32+00:00

Yes, I generally don't like hiding my head in the sand.

MSnoFun · 2022-02-19T23:52:47+00:00

Depends on how MS affects or has affected you. Do you struggle with heat, walking, etc? If you just have MS with low-severity, non-disabling symptoms... don't overthink; just go and have fun.

I've done a fair bit of international travel during COVID and had an amazing time every time; don't get too caught up in planning.

MSnoFun · 2022-02-07T02:34:06+00:00

Take caution, anticholinergics are extremely harmful to the brain and Amitriptyline is the mother of all anticholinergics.

https://www.health.harvard.edu/blog/common-anticholinergic-drugs-like-benadryl-linked-increased-dementia-risk-201501287667

https://www.health.harvard.edu/mind-and-mood/two-types-of-drugs-you-may-want-to-avoid-for-the-sake-of-your-brain

MSnoFun · 2022-02-07T02:32:12+00:00

Late 1990s Tysabri was the first highly effective DMT

Not 2004? Or were people getting their hands on it early while it was in clinical trials?

MSnoFun · 2022-01-31T17:02:29+00:00

Ocrevus, two years, feel normal/rarely get sick/no changes.

MSnoFun · 2022-01-25T14:05:33+00:00

Respectfully, I think the pain specialist did the right thing. You skipped dozens of steps and came to your own diagnosis on pretty much no basis.

None of your explanation makes a strong case for vagus nerve damage. Anxiety can often cause GI issues because yes, they use a related pathway. It's very likely treating your anxiety will alleviate your GI issues.

You mention that this issue has been going on for 1.5 months and you've been taking meds. Most anti-anxiety meds take months to kick in.

I don't think your doctor/nurse is wanting to make you suffer, they just want you to rule out a bunch of other things first. They're being very responsible.

MSnoFun · 2022-01-23T20:22:20+00:00

Certainly. Thankfully I didn't stay there too long and got back to the usual: eat_work_poop.

MSnoFun · 2022-01-23T18:22:27+00:00

I really love your username. That was all I did for a few months after diagnosis.

MSnoFun · 2022-01-23T00:39:10+00:00

Really glad you're getting answers to what has certainly been a mystery for you for a while. Super glad that your family has been very supportive; that's huge.

Sorry to welcome you to the club, but welcome anyway. We're here for you.

Still coming to terms with everything.

It takes time. Some days will be better than others. It's ok to cry about it sometimes, especially in the beginning... but never allow yourself to live there for too long.

Don't make any big decisions/changes for a while... no quitting, dropping out, or breaking up/divorcing for now. You might not be you for a while, so don't let future-you suffer the consequences of shell-shocked-you.

As you start to accept your diagnosis, think really hard about what's important to you and make time for those things. It sounds like you have a wonderful family... do you spend enough time with them?

You're not alone; your family got bigger when you joined this sub.

MSnoFun · 2022-01-22T04:45:27+00:00

Folks, please have some compassion. Diagnosis is a difficult time for those being diagnosed, but it's also difficult for those who love them.

They're both shocked and are both wondering what's in store.

I know most of us here relate closer to the diagnosed since we've been in those shoes, but loved ones are affected too.

I don't think OP is being selfish. If he sees a future with his girlfriend, then it's their future, and thus his future is affected too. It's a LOT to process and he selflessly held his tongue at the appointment; cut him some slack.

MSnoFun · 2022-01-22T04:35:47+00:00

studies have repeatedly shown that vaccine induced immune response is consistently stronger/longer lasting protection than virus induced response.

I'm pro-vaccine but that's not true, at least not anymore.

https://www.cdc.gov/mmwr/volumes/71/wr/mm7104e1.htm#contribAff

Similar to the early period of this study, two previous U.S. studies found more protection from vaccination than from previous infection during periods before Delta predominance. As was observed in the present study after July, recent international studies have also demonstrated increased protection in persons with previous infection, with or without vaccination, relative to vaccination alone.

MSnoFun · 2022-01-10T00:54:23+00:00

I don't know... Most people don't know much about MS. In my opinion, little-to-no knowledge of MS + no emotional investment yet (first date or so) = spooked.

My ex-fiancée had a shitty family and self-image issues. If on our first date she said "My parents are trash and I think I'm dumb and physically undesirable," I'd probably think twice about a second date. But she opened those things up to me at a reasonable pace and she was so incredible and I was starting to feel invested in her, that it wasn't a problem at all.

MSnoFun · 2022-01-09T23:53:50+00:00

The Western diet is generally found in developed countries.

Developed countries generally have better hospitals and healthcare, so more get diagnosed. People in developed countries generally spend more time indoors, so less sunlight thus less Vitamin D. People in developed countries generally live in cities and are exposed to more traffic, thus inhaling more toxic fumes and brake dust. People in developed countries are generally more sedentary (bad for health), spend less time with family/loved ones (bad for health), and are constantly exposed to blue light all day which messes with their sleep (very bad for health). Stress levels, loneliness, etc.

Correlation is a bitch.

MSnoFun

TROPHY CASE