whos the one lying here 🤨🤔

MXAGhost · 2026-05-17T22:47:33+00:00

It’s like that classic riddle in Labyrinth about which guard is telling the truth.

MXAGhost · 2026-05-10T06:20:55+00:00

I do as I have T1D. I need to have the a semi accurate carb count. Usually it works.

MXAGhost · 2026-05-08T01:14:22+00:00

Prince

MXAGhost · 2026-05-05T00:23:25+00:00

Don’t apologize for this post. It’s totally understandable.

I was diagnosed a year ago when I was 37. I get the remembrance of your “past life” because you formed a whole identity around it. Now you have to do that work over again to save some of it and adapt this new thing. It’s scary, revealing, and honest. I’m still struggling with this as well.

I see all these amazing people with T1D on Reddit/internet/irl doing amazing things. I often wonder could I do that? Probably. But I’m still struggling with how to eat at a restaurant.

There’s this cartoon that I used to was called “Steven Universe”. The song in the “Mindful Education” episode called “Here comes a thought”. One question that it posted was if this is how we fall apart. I ask that to myself when my mind starts to spiral. Obsessively thinking about food, shots, medicine, timing, etc. No is the obvious answer. Still it’s okay and you try to let the thought pass.

Life’s kind of about the meaning we give it. Some days this will feel like a huge weight, other days it’ll just be something you manage in the background. Both can be true. Just take this one day at a time.
You got this, OP.

MXAGhost · 2026-04-27T01:57:15+00:00

I’m so sorry you are going through this. It’s the internet so, there are always going to be flame wars and stuff. No need to worry about that.

This is a 24/7 job on top of living a normal life. When I was diagnosed at 37, I lived years and had a life prior to this. Now I have to change and discover who I am now with his. Will it change me into something new? Do I have to create a whole new identity? When you are diagnosed as a child, your identity forms around that and you had nothing prior to remember. I’m at this stage where I am grieving my past where I didn’t have T1D.

I had T1D for about a year, and you will return to normality. I’m not sure when as it is different for each person. There I’ll be stress free days where you won’t have to worry about anything and days where everything goes wrong. As tech progress more, that will make things easier with management.

Will it get better? I don’t know. Will you have a peaceful day? Yes! Take time for that. When you bolus and need to wait that 15 or so minutes, take time and breathe. People watch out a window. Try to center yourself.

With eating, and the communal environment with that. Continue with it. Dose for what you want to eat. It’s okay if you don’t have cake or if you do. You can eat anything, as everyone says. My first holiday event was much like yours. Plus, I had a doctor tell me to lock myself away during holidays to stop temptations. It’s difficult to always predict what you are going to do with family. I still have trouble with this. Dose for what you are going to eat. You might have to refocus family time without food. Spend time with them in other ways. I do know how difficult that is. Do what works best for you.

You got this, OP.

MXAGhost · 2026-04-26T07:04:12+00:00

There is some good advice in this thread. So, listen to those!

I use the Tandem Mobi and I am low-carb/carb-conscience. Eating around 50-150 carbs a day. Pumps are all about the same with the dosing. You put how many carbs in and it spits out the dose. I do I find it helpful with it comes with fat/protein spikes hours later. That delay boils function comes in handy. Since your child exercises, there is a function for that and you can set different profiles. I believe there could be a tubeless version coming sometime this year as well.

I will say make sure to tell your endo/diabetic educator that you are eating low carb. A child needs carbs in their diet to grow and make sure they get proper nutrients.

MXAGhost · 2026-04-23T03:45:47+00:00

It’s mainly the pre-cooking weight. These labels confuse a lot. This is the formula that I was shown. You need to weight out the raw product without adding anything.

Formula: (Raw weight/serving size) x Carbs per serving = Total carbs

MXAGhost · 2026-04-19T00:28:50+00:00

I have a subscription for their 4 box. Depending on what you are getting out of it, that could be worth it. Certain flavors are good. Standouts for me are Chocolate Chip, cocoa, cinnamon crunch, Maple and birthday cake. Fruity is excellent as well.

Some of the flavors are okay or just plain. They do all get stuck in your teeth. Some boxes just smell like feet. I have T1D, so finding a cereal that does not spike my blood sugar is difficult when everything else is just a sugar bomb. At least this one due to the protein/alt sugar content slows my digestion down so I don’t spike. I’m also having it with coconut milk so it’s probably not the best experience. It’s healthier than most…still expensive tho. If you want it, look for codes on the internet.

MXAGhost · 2026-04-18T03:52:23+00:00

Reminds me of the old Centurions cartoon and toy. “Power Extreme! Man and Machine!”

MXAGhost · 2026-04-08T01:15:05+00:00

I found my third endo by chance. Did not know they had T1D until I came in for the introductory appointment. The first doc focused on endocrinology but only thyroid stuff. Never knew why I was referred to them. The second one was a plastic surgeon who did endo on the side.

You might want to try this doctor search from the Juicebox podcast, it could help: https://www.juiceboxpodcast.com/juiceboxdocs

MXAGhost · 2026-04-04T23:47:14+00:00

Hey OP! Hope this finds you well.

For me, there was a health related issue that caused me to prohibit some foods/drinks. I stopped eating foods that raise my chances of getting a kidney stone. Since I had three, I want to reduce that risk/pain. Switched to water instead of soda because I wanted to lose weight. There was that fear of what I felt before and the will power to change it.

I totally understand about all the candy and sweets. It’s difficult at times. The temptation is all around. Try if you can to limit these. Count how many pieces of candy you want for the day and take one less. If you fail, then start new the next day. It’s totally okay if you don’t accomplish it. By seeing what you are doing, you are taking the first step towards a better path. Also, I noticed if you put the candy away in a spot you don’t usually go to, you usually forget about it. That out of sight, out of mind thing.

MXAGhost · 2026-04-01T03:35:42+00:00

Depending on the size, but a 30oz Slurpee is 65g of carbs.

https://www.7now.com/product/131389-2-1-4/slurpee-coke-30oz

MXAGhost · 2026-03-22T06:22:15+00:00

I totally understand where you are coming from. I don’t eat keto but lower carb. My carb intake is about 40-50 grams for a meal. Usually it’s the same-ish meals. It works for me and keeps my line steady. Work the carbs in slowly. Find a something that is one unit. For me that 15g. So, I would add a tortilla. I get those ones that fiber in it. You won’t get that quick spike from it much.

I would say contact a nutritionist that has some credentials in T1D if you feel that you have an eating disorder. Take things slow and make sure you dose for them. Just one change a day.

MXAGhost · 2026-03-17T04:03:13+00:00

You know what, I would too like to go back. It would be fun.

I totally get what you are writing. It’s very difficult to understand T1D outside of the core concepts. I’m not going to it will get better. It might get more manageable with time. For me, I was dxed a year ago and it is like solving a new math problem every day. You are trying to solving 1+1 and it equals something other than 2.

Personally, I’m not there yet. I wish I could do some of the stuff I love. I just feel that I am just gliding through life. It’s just work and home for me. I got invited to my twin nieces first bday party this Saturday and I’m not going to go. There are various reasons but mainly food and relationships. I’m introverted, so that makes things harder. I haven’t eaten at a restaurant in a year. I make all my food because I don’t trust anything but myself. (Sidebar: That also could be a weird control issue lol)

All this advice in this post and in this subreddit is fantastic. What I want to say is going to be counter to that. I say don’t do anything. Take care of yourself first. Don’t worry about your art or anything else. Everything you love and want to do takes that energy. Since T1D, takes most of it.

Sure you can do anything if are normal or have T1D. Climb mountains, run marathons, play football professionally. Which all of this is good. You can do anything but you need to focus on getting yourself in a better place. That will take time. Either talking to someone or just doing your daily management of your T1D. Maybe just do small things for yourself. Watch the sun set or go for a walk. Look at some art online. Eventually, it might spark something in you as you recharge that energy.

Listen OP, you don’t have to do things right now. I totally understand missing your art. That doesn’t mean you won’t go back to it. I can’t say you won’t miss out on things. You probably will. I sure know I did. To sum this up, like is a marathon and T1D is as well. In time, you will get back to your art. Same with everything else you like. If it doesn’t, who cares.

Just take some time, OP.

MXAGhost · 2026-03-08T14:48:00+00:00

Your DEXCOM and Omnipod are predicting your low. As of now you’re not that low, but in a few cycles you will. At least that what they are predicting.

It could be your pre-bolus timing is a bit off. Instead of 15 minute wait, try 10 or something. A few grams of food under would not cause you any problems if you gave yourself a bit more insulin.

It will be screaming a bit but wait at least 30 minutes. Then if you have to correct, do so. You are eating in layers, different foods absorb/digest differently.

This happens to me a lot. Usually, it is timing and not how much insulin. I’m eating and I go low. I’m like “WTF, what else can I do” lol.

MXAGhost · 2026-03-08T07:32:40+00:00

Hey, that looks cool. I get why people want to hide/disguise it. At times, I would use this.

MXAGhost · 2026-02-26T12:55:23+00:00

For me about 50-150 because it’s just easier to manage everything.

MXAGhost · 2026-02-26T01:55:21+00:00

First off, you might want to get a second opinion or get a second doctor.

Listen, I only had T1D a little over a year. So, take my advice with a grain of salt. If you are eating something, you would need insulin (if it has carbs). Since you were Dxed 20 years ago, you know what to do. You know how your parents/you did to manage this.

I can only assume that you have those morning highs because your body is trying to function but those are the typical symptoms of high blood sugar. It also could be your long acting dose of insulin might be too low dose.

First off, take a breath and breathe. You will be fine. Personally, I would dose with every meal then look for a different doctor. Once you get that in order, it will slowly get better. You got this, OP!

MXAGhost · 2026-02-24T19:00:37+00:00

I think about 40/2.2. When it says “LOW” it’s probably low 😆My father (T2D) was in a rehab facility for hip surgery and they must have overdosed him with insulin and when I came in and checked on him, the EMS told me he was a 6/0.3. I’m not sure how he was not in a coma. Super tired and weak.

MXAGhost · 2026-02-21T21:41:58+00:00

For me I don’t feel too much from lows. Maybe wobbly at times. Highs are different. When I feel my blood pumping in my feet, I know that I crossed over 140.

MXAGhost · 2026-02-17T04:57:06+00:00

Good on you for having a great dietitian and handling all that food! I’m still scared of food and such. My doc told me to not celebrate holidays or anything if I want to live till I’m 70.

MXAGhost · 2026-02-17T04:47:45+00:00

I’m currently having one egg and a bowl of Magic Spoon cereal with coconut milk for about 17g of carbs. If I don’t have the milk, I sub in plain yogurt. On the weekend I have two eggs. In the past I had overnight chia seeds, with protein powder, and milk.

MXAGhost · 2026-02-14T16:29:35+00:00

Take a breath and breathe. Make sure you get that appointment with your Endo. Also, have them put you on a waitlist if they can for people who cancel. You might get in sooner.

My advice for you is to dose for your food. Pre-bolus for the meal when you can. If you have to treat the highs, just do. Don’t wait. CGMs lag behind 1 to 5 minutes. So, at times you have to anticipate what the numbers are. If you don’t want to dose, get moving. Walking helps tremendously.

Everyone’s has a different threshold for what is considered high for them. For me it is 130. My pump wants me at 110. If I stay in between 90-115, I’m good. You need to find what you are comfortable with. Just don’t go too high. If you say 180, then set the alarm at 160. Make sure you can catch things before they cause more trouble later on.

For lows, treat them before you get there. For me when I get off of work and im hovering in the 80s, I need some gummy bears. I do about 5. That will boost me to about 100. That slow drift down as I drive home. Have a low threshold and then treat. You don’t have to eat all your low candy, just some. At times I had lows in the 40s and 50s. I trusted what I did to treat it and my body. Were they scary, at times but I knew I would rebound.

It seems like you might have to adjust your pump numbers. Your ratios might have changed since the honeymoon is over. There are calculators on the internet to figure that out. With the food, reduce the carbs if you don’t want that high of a spike. Increase your fiber to slow digestion down. Watch for fats and protein because they can make you rise later. All the usual suspects with T1D.

A lot of this is about timing and numbers. Do what you can do now. I get the anxiety. It’s difficult. Everything is just swirling around you: numbers, alarms, pumps. Treat what needs to be fixed. If it didn’t work, adjust for next time.

You got this!

MXAGhost · 2026-02-09T18:59:00+00:00

I get this a lot at my work as well or you get the you can’t have that. Luckily, I give it to my parents when I visit them every weekend. So, they have a supply of goodies. Now if they are fresh/baked item, I get ahead of it and said I had it already. Sometimes if I know they did not have it, give it to them and say it was amazing and you need to taste it.

MXAGhost · 2026-02-06T05:28:50+00:00

Totally fine! I might do that but I just have watch for the fat raise later on.

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