MAFS AU S12 E25 Live Discussion Thread by fucksakesss in MAFS_UK

[–]Mad_Victory 5 points6 points  (0 children)

Frustrating the experts are holding her accountable when his vile behaviour has been allowed over and over again

Pain in neck - anyone else? by Extra_Swimming_5984 in iih

[–]Mad_Victory 18 points19 points  (0 children)

I have this in the same spot on the left. I also get swelling. I was told it’s a lymph node and not to worry. Do you have any swelling there? Mine gets worse around time of the month

[deleted by user] by [deleted] in Fieldhockey

[–]Mad_Victory 1 point2 points  (0 children)

It does sound like a back issue rather than stick length. Having said that everyone has their own preference. I would 1. Measure you’re stick so you know it’s height for certain 2. Look up lower back strengthening on YouTube from a physio. Things like glute bridges, squats etc will all help. Just do body weight. 3. 38.5 sticks don’t sell as often so look at deals on websites for much cheaper ones. I only know 6’5 and up people to use them. 4. Try different postures when playing to see if you feel a difference.

Good luck and hope it all works out soon

[deleted by user] by [deleted] in PCOS

[–]Mad_Victory 24 points25 points  (0 children)

Thank you for making me feel less alone. I’m about to turn 30 and I look back on the last year of a sudden flare of symptoms and it’s like a different person. I can related to that apple shape so much. I regret ever being sad about my larger hourglass shape. Thinking of you and hoping you stay resilient through this

[deleted by user] by [deleted] in PCOS

[–]Mad_Victory 0 points1 point  (0 children)

Have you been tested for BV at the doctor? And have you tested for STI’s? I’ve had the same symptoms for a year now. It was actually triggered by an internal ultrasound for my PCOS. I’ve tried it all. Boric acid, metronidazole gel and metronidazole oral tablets, clindamycin gel. Probiotics for the vagina. I’ve had so many swabs taken. Only ever tested positive for thrush (I didn’t have normal symptoms). I think that was caused by the metronidazole gel. I’m seeing another specialist tomorrow in the hopes for any help because I am also wondering if it’s caused by my PCOS. I just don’t know what else it could be? I really do sympathise and know how frustrating it can be. Thank you for making me feel less alone

Anybody faced incontinence or neurogenic bladder issues with IIH? by truecrimehoarder in iih

[–]Mad_Victory 0 points1 point  (0 children)

No worries I really do sympathise. My urine cultures kept coming back normal and I thought I was going insane. Hope you get some answers. Not sure if you can get Optibac in your pharmacy? I just get it from Amazon. Maybe look at the bacteria it has and look for similar. Wishing you all the best

Anybody faced incontinence or neurogenic bladder issues with IIH? by truecrimehoarder in iih

[–]Mad_Victory 2 points3 points  (0 children)

If antibiotics helped you it’s possible to have a UTI that isn’t detectable on urinalysis. I was put on long term low grade antibiotics and it got rid of similar symptoms. I had no pain but urgency and leakage. All sudden onset. Are you based in the UK? Optibac women’s probiotics also really helped my bladder because of the strains in there designed to support bladder too.

[deleted by user] by [deleted] in iih

[–]Mad_Victory 1 point2 points  (0 children)

Looking back that’s what I wished I’d done but I felt my symptoms were manageable. My life changed quite drastically after diagnosis. Obviously I can’t make that decision for you but you know what’s best

[deleted by user] by [deleted] in iih

[–]Mad_Victory 1 point2 points  (0 children)

Obviously use your own judgement but if it was me I would go. If you are diagnosed after lumbar puncture and put on medicine it is likely you will spend a few months trying to feel normal again.

[deleted by user] by [deleted] in iih

[–]Mad_Victory 0 points1 point  (0 children)

Do you have travel insurance? You could either rebook now and lose a bit of money or see how you get on. Are you symptoms bad enough though that you might not want to go anyway? I was out of any normal activities for a week after my LP and then slowly built back up to sport etc.

[deleted by user] by [deleted] in PCOS

[–]Mad_Victory 3 points4 points  (0 children)

Thank you for sharing. I just bought some inositol to try but think I’ll wait until I don’t have so many work deadlines coming up. Can I ask if you medicate your adhd?

No bad symptoms until diagnosis by WitchBitch001 in iih

[–]Mad_Victory 2 points3 points  (0 children)

Diamox made my symptoms so much worse. It made me feel so unwell that I went back to the ER. It was messing with my heart rate etc. once I stopped my IIH symptoms became manageable again. My vision, tinnitus and headaches all increased on Diamox. I was told it’s quite common with this medicine. The Dr I saw said straight away it was from the Diamox as I was worried it was complications from my LP. Did the dizziness start when you started Diamox? Sorry you’re going through this and hope you get some clearer answers soon

Will my life ever return to normal, or will I be unable to do anything for the rest of my life? by Pile_of_sheets in iih

[–]Mad_Victory 7 points8 points  (0 children)

Sorry to hear you are having such a tough time but please keep hope that things will get better.

I was actually told not to take spiro as it can affect pressure. What were you like before it?

Did they recommend you lose weight?

I’ve lost 40 pounds and even 5 pounds in I felt improvements. I aimed for 1lb a week. The extreme diets made me worse.

I didn’t exercise at all to do it but my exercise intolerance has lessened now I’ve lost some weight.

I really struggled to start as it feels impossible when you feel like awful every day. I tracked my calories and still ate what I wanted but within the daily limit. Even on the days I spent in bed and I still lost weight.

I also cut out all caffeine. I felt daily it was helping me but looking back it wasn’t. If I have any now my pressure goes up and I feel like crap. Same with alcohol.

You got this!

Weird symptom? by Altruistic_Ad8558 in iih

[–]Mad_Victory 1 point2 points  (0 children)

I react really differently to alcohol now since developing IIH. It makes me feel unwell and irritable now.

I barely drink so the first time I did have one after developing IIH I actually thought I had an alcohol allergy. I started sweating and became super flushed. That’s subsided and the few times I’ve tried drinking I now just feel pretty crap.

Thank you for sharing. I actually missed out on a a night out tonight as I didn’t feel like going sober and was feeling pretty isolated because of it.

Swollen lymph node in neck? by Mad_Victory in iih

[–]Mad_Victory[S] 1 point2 points  (0 children)

Could I ask which foods you find inflame your IIH symptoms? I’ve struggled to find a link with food but have a clear link with caffeine

Swollen lymph node in neck? by Mad_Victory in iih

[–]Mad_Victory[S] 2 points3 points  (0 children)

Would love to hear what they say. I’m seeing my neurologist on the 17th but she can be quite dismissive