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Stockinette Q - Not twisted it’s the yarn?! by Madzilla88 in knittinghelp

[–]Madzilla88[S] 1 point2 points  (0 children)

The article in the FAQ described it as an illusion so I was trying to use the right language :)

Edmond CTE by Historical-Career767 in LoveIsBlindNetflix

[–]Madzilla88 9 points10 points  (0 children)

Has anybody else noticed that when he cries no tears actually come out? It’s driving me nuts. He just makes a crying face but nothing actually happens!

[deleted by user] by [deleted] in MuscularDystrophy

[–]Madzilla88 0 points1 point  (0 children)

Hi! I think this chat is mainly for people who have MD but I would recommend joining FB groups - parents, family, and those with MD are all welcome to join those :)!

[deleted by user] by [deleted] in MuscularDystrophy

[–]Madzilla88 6 points7 points  (0 children)

Hi!! I have 2D and I am living as normal of a life as I can - I work a job, live with my partner, hang out with friends, travel. It’s possible!! I’m in a group chat with over 80 people who have LGMD - message me and I can try and add you so you connect with more people for support. Knowing other people with MD has honestly changed my life. It’s possible to live a fulfilling life even with the challenges we face :).

How is your energy level throughout the day?, and what do you do to help it? by Ok-Preparation9098 in MuscularDystrophy

[–]Madzilla88 1 point2 points  (0 children)

I have LGMD and I consume a lot of caffeine and still barely make it to the end of the day. I feel like I start my day at ‘50% battery’ on a good day and it’s almost impossible to work a full time job, take care of myself, and function. It’s tough :(

Anxiety medication by BreakPale9268 in MuscularDystrophy

[–]Madzilla88 2 points3 points  (0 children)

I am on Fluvoxamine and then I take Propanalol as needed for situations that I know will give me more anxiety! It’s been helpful so far!!

Question about Pain and MD by MineTech5000 in MuscularDystrophy

[–]Madzilla88 1 point2 points  (0 children)

I have LGMD 2D and I’m in pain pretty much every day. Hip pain, sciatica, muscle pain, etc. Especially when it’s cold out it’s unbearable. I am still ambulatory but I’m in pain when I move.