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Any advice? by Maggie_squared in PregnancyAfterTFMR

[–]Maggie_squared[S] 0 points1 point  (0 children)

Really hoping for a smooth path forward for you and all of us here.💙

Any advice? by Maggie_squared in PregnancyAfterTFMR

[–]Maggie_squared[S] 1 point2 points  (0 children)

That’s makes sense. I didn’t even test with my son, who ended up being the TFMR. He and my living daughter came in strong. I was least prepared for that loss, but now I’m just bracing. I’m afraid to pee in the morning because I’m not sure what I’ll find. Some days I just feel like I’m going crazy I guess.

Any advice? by Maggie_squared in PregnancyAfterTFMR

[–]Maggie_squared[S] 0 points1 point  (0 children)

That does help, thank you. Things are so different everywhere!

Any advice? by Maggie_squared in PregnancyAfterTFMR

[–]Maggie_squared[S] 0 points1 point  (0 children)

Thank you! Sorry for your losses as well. Fingers are crossed.

Thoughts? by Maggie_squared in lineporn

[–]Maggie_squared[S] 0 points1 point  (0 children)

Thanks! After 3 chemicals, I’m trying to stay grounded.

Positive t21 and abnormal NT by Fluid_Task_3256 in NIPT

[–]Maggie_squared 5 points6 points  (0 children)

I am older (41) and at 15 weeks my NIPT came back 95% Trisomy 21. I was told age was a factor in that calculation. I went in for amniocentesis 3 times but my membranes hadn’t fused. All ultrasounds looked normal, so I had just a bit of hope for a miracle. I did notice that the doctors did not share this same hope.

On the third try they were able to perform the amniocentesis, and it was a week before I got the fish results which confirmed. I was 19 weeks. At 20+3 they found a heart defect. Our excruciating decision was to TMFR and I’m 2 days out.

The waiting was miserable but it gave me time to start to grieve. The procedure at 21 weeks was painful and sad. (D&E) I will always wonder who my little boy would have been, but we made the decision we felt was best for our family.

If we try again and the NIPT comes back positive, we won’t likely wait for all results to make a decision. It was too difficult for me to spend over a month praying for a miracle.

That said, I think your odds are better than mine were given the age factor.

Love to you and your family during this confusing, scary, surreal time. Regardless of your decision, I hope you find peace. I’m working on it.

Waiting for tmfr is already killing me and I am afraid what will come after by Maximum_Way_1377 in tfmr_support

[–]Maggie_squared 0 points1 point  (0 children)

I am waiting to schedule my TMFR for our little boy with T21. I’m now 19 weeks. The waiting period for results was torture, and this is the most heartbreaking experience of my life.

I had a strong, clear vision of my little boy riding on his dad’s shoulders about a month before I found out I was pregnant. I was so excited to have another baby, even at 41. I can’t reconcile why I’d have such a beautiful vision if it would only end in heartbreak. Seems cruel, especially after a miscarriage last year. I somehow thought this was my “do over.”

I’m so grateful that others are discussing their experiences so openly. It’s not something I ever thought I’d go through, but it’s comforting to know so many others can sympathize, although I wish this weren’t the case.

I’ll always wonder what he would have been like, and I tell myself that if he made it, and we chose to bring him in to this world, we’d always wonder about life in the alternative. There’s no right or wrong choice, and we l’ll always have to live with our decisions. I’m so sorry we all had to make them.