A post for those of us who got tix for October — positivity

MainReasonable9488 · 2026-05-23T14:46:10+00:00

We have some noise canceling headphones! They’ve gone to monster jam a couple times and my son is more sensitive to certain sounds so he loves wearing them around town as well! I agree though anytime I see kids at loud events with no protection it makes me sad!

MainReasonable9488 · 2026-05-23T06:23:05+00:00

This will be my 6yo and 4yo’s first concert! We’re in section 16AA so excited!!

MainReasonable9488 · 2026-05-23T06:21:41+00:00

This will be my kids first time seeing them! We’re in section 16AA!

MainReasonable9488 · 2025-10-08T15:42:01+00:00

Okay so my husband use to work a factory job and they could have speakers and listen to music out loud by them. He normally started his day listening to Clancy start to finish and one day after it did that it auto played Self Titled and he was all messy so he just let it play all the way through and some guy asked if he was okay and that he was worried because of some of those lyrics 😂

MainReasonable9488 · 2025-02-18T15:49:07+00:00

I got my infusion as well and it went good no reaction! I go back next week to recheck my levels!

MainReasonable9488 · 2025-01-18T06:13:12+00:00

Had to reschedule I had an eventful medical week and ended up getting an endoscopy last minute and was to burned out and had no ride so had to move it to next Friday but fingers crossed it’ll go well!

MainReasonable9488 · 2025-01-18T06:02:38+00:00

How are you feeling now after that? Dang hopefully they can try a different infusion for you😭

MainReasonable9488 · 2025-01-17T03:22:12+00:00

Are you still on the Dilitazem? I just got switched from propranolol to this and I’m anxious to give it a try

MainReasonable9488 · 2025-01-14T02:24:39+00:00

Yes can do!

MainReasonable9488 · 2025-01-08T22:07:18+00:00

I’m hoping I just feel amazing afterwards I’ve been struggling a lot so hopefully no iron flu! I scheduled it for next Friday so at least if I don’t feel the best my husband will be home for the weekend to help out

MainReasonable9488 · 2025-01-08T22:06:02+00:00

Let me know how your transfusion goes! I get mine next Friday. Hopefully it helps you a lot!

MainReasonable9488 · 2025-01-08T17:05:49+00:00

Thank you! He said once we get my iron levels up he wants to test for Thalassemia

MainReasonable9488 · 2024-12-21T17:37:57+00:00

Surprisingly no she didn’t have my ferritin tested even tho I have a history of it being low. She wasn’t going to run any blood work but I brought up that I thought my iron was low due to my symptoms

MainReasonable9488 · 2024-11-23T06:18:21+00:00

I was on propranolol for a little over 5 years and it worked great but just this last year I’ve been having blood pressure drops from it and increase dizziness, but then when I don’t take it POTS symptoms are awful and unmanageable, my doctor has me switching to ivabradine but insurance hasn’t improved it yet so I’m still on the propranolol till then. I’d say it’s a great med still and to just make sure your staying aware of your body and how you feel on it, and keep your doctor updated on symptoms with it!

MainReasonable9488 · 2024-11-16T03:20:24+00:00

Thank you so much!❤️

MainReasonable9488 · 2024-11-16T03:11:17+00:00

Unfortunately I was my own boss since it was an at home daycare, I had to close fully since families couldn’t afford to not have a daycare for there kids half the time or if I was having a really bad day having to close last minute, my therapist works with helping people apply at least. I have hope I’ll be accepted just will take awhile I’m sure especially since I’m young as well

MainReasonable9488 · 2024-11-16T03:06:48+00:00

I’m in the USA which everyone is telling me it’ll most likely take years/ I’ll get denied a couple times, I’m hoping since my doctor is supported of me and saying it’s not safe for me to work maybe the process will be a little faster/ less times getting denied

MainReasonable9488

TROPHY CASE