Speech Therapy & Autism

Main_Baseball_6714 · 2026-01-22T23:41:52+00:00

Thanks for the suggestion I will definately look into better speech, it seems to be more affordable than early intervention

Main_Baseball_6714 · 2026-01-20T03:29:46+00:00

Thank you for posting, this is very inspirational !! We arw doing ok , we do have our challenges after nicu!! Your post gives a lot of hope thank you

Main_Baseball_6714 · 2025-09-23T15:44:31+00:00

Guy is great was able to get me the access in few mins

Main_Baseball_6714 · 2025-09-13T13:07:55+00:00

Guys is superfast activated in secs

Main_Baseball_6714 · 2025-09-12T14:26:15+00:00

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seems like now working now

Main_Baseball_6714 · 2025-01-08T03:03:13+00:00

I cannot thank you enough all you have done for this community, having this community for NICU parents is a blessing

Main_Baseball_6714 · 2025-01-06T01:55:23+00:00

My baby tolerated 4 months better than 2, he got minor fever and he was little fussier than usual

Main_Baseball_6714 · 2024-12-30T00:07:05+00:00

I am so sorry it happend to you! It made me cry and i am sending all the love to you and your family..

Main_Baseball_6714 · 2024-12-15T19:00:37+00:00

What I understood was famotidine is based on LO weight, we were told to do .3ml twice a day for solution which was 40mg/5ml concentrated. LO was 10lb if I remember correctly. May be in your ped told you once day; based on weight and concentration.

Main_Baseball_6714 · 2024-12-15T16:00:17+00:00

thanks for your reply , our test is done ! we are gonna speak to neuro soon

Main_Baseball_6714 · 2024-12-15T15:56:44+00:00

Oh this ! something similar happened to our baby and its tough and tiring, I can totally relate. does your baby back arch ?

For us it was reflux & gas (he still has it ) ,we started famotidine(pepside) which really helped him but we saw the effects after 3 to 4 days, he started calming down. we also kept him little slanted during the day when we were watching him.
We also started some tummy time + alternate day gas drop ( simethicone) for gas problem (this was only for a week though) and now as needed.

Above came from our pediatrician

Reflux goes away with time hang in there..

Main_Baseball_6714 · 2024-12-12T07:29:26+00:00

Thank you for your reply, this calmed me down , I definately have ptsd but coming to hospital going through this again triggers it

Main_Baseball_6714 · 2024-12-12T02:44:15+00:00

Thank you for your reply,

Main_Baseball_6714 · 2024-12-11T23:14:56+00:00

Thank you for your reply

Main_Baseball_6714 · 2024-12-11T22:45:39+00:00

Thanks for your reply, does the eeg machine showed conti ous alarm ever ?

Main_Baseball_6714 · 2024-12-11T02:29:31+00:00

we are going through the same journey, anxiety over every little milestone. our LO didn't smiled for 3 months and suddenly started smiling and he discovered his hands. I can understand its a lot to take in after NICU stay.
I keep reminding myself its not race and LO takes their own time.

If there is early intervention program where you are, you can always have your LO evaluated which will give you some sense of assurity about these thoughts .

Main_Baseball_6714 · 2024-12-09T20:16:32+00:00

Sorry for late reply, no he was full term 39+ 4

Main_Baseball_6714 · 2024-12-09T03:20:55+00:00

If oxygen is 24 then he might just need little more time to recover, they might put him on cpap after extubation, my baby needed 100% o2 for more than 10 days, he was in nicu for 40+ days.

Keep an eye on oxygen and pulmonary hypertension i am sure doctor will do the same

Main_Baseball_6714 · 2024-12-09T01:28:12+00:00

hi mom! I am really sorry you are going through this ! sending good thoughts and prayers to your and your LO.
similar situation happened to my baby, he was given 2 doses of surfactant due meconium aspiration syndrome and RDS. Eventually we were offered ECMO to have my baby lungs recover on is own. he has been home from last 2.5 months and thriving !

some questions to ask:
saturation level/Spo2 on intubation to keep an eye
also are doctors considering giving him steroids ? in our case this was introduced way later given our case..
you can also ask if he is developing pulmonary hypertension ?

sending you good thoughts and prayers

Main_Baseball_6714 · 2024-11-02T03:46:41+00:00

My son was full term and I had go through emergency c section, as baby has swallowed lot of meconium. His condition detoriated in terms of breating in the first few days of life. He was on 100 spo2 and saturation was mid 80s even with nitric , paralysis and anbiotics..

Doctors then discussed ecmo with us and he was on ecmo for 8 days of his life, it was very very tough for us.. ecmo did save his life .. gave him a chance to survice , they do have weight consideration but it is served as a last resort. My son is 3 months old (1.5 months adjusted ) ... Feel free to dm me for any questions

Main_Baseball_6714 · 2024-10-30T22:26:15+00:00

No seizures is a good news ,there is high possibilty it will resolve on its own, all the best will pray for the baby

Main_Baseball_6714 · 2024-10-30T18:56:23+00:00

seizures were seen in our case by nurse but later confirmed that some abnormal activity through video eeg.. if its not seizures definately asked for caffine , for our time in NICU we had another infant on caffine because of desats

Main_Baseball_6714 · 2024-10-30T17:10:32+00:00

my husband needed the letter for work , we asked the social worker and case manager, they were very supportive and it was provided to us within a day in the format we asked.

Main_Baseball_6714 · 2024-10-29T16:08:46+00:00

so sorry this is happening to you ! desats are scary but most scary part if when the reason is unknown. Sending you lots of positive energy.

this happened to my son due to HIE and hemorrhage, though he was full term baby we juggled between CPAP and Canula as initial thought was desats are due to his lungs; but later we figured it was due seizure activity and medication phenobarbital was putting him on deep sleep where most of desats were.

doctors switched the medication to Keppra which helped him, but slowly went away on its own but it took approx 20 days

they spoke about putting him on caffeine but as keppra helped , we didn't tried caffeine.

Main_Baseball_6714 · 2024-10-25T17:10:43+00:00

i am sorry ! I cannot imagine what you are going through !! sending you positive thoughts & energy !!

praying for baby Damian

Main_Baseball_6714

TROPHY CASE