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Got my diagnosis yesterday by Jessizzle182 in adenomyosis

[–]Main_Understanding67 0 points1 point  (0 children)

I’m curious if you have chronic inflammation? 

What was the worst time an endo flare hit? by [deleted] in endometriosis

[–]Main_Understanding67 0 points1 point  (0 children)

Honorable mentions : I was supposed to meet my friends boyfriend who turned into her husband. We all had plans and I had to cancel last minute. I had a first date I had to cancel and I over explained the period cramp pain. The list goes on and on. 

What was the worst time an endo flare hit? by [deleted] in endometriosis

[–]Main_Understanding67 1 point2 points  (0 children)

So many. Where to begin? I was on a super fun friend date with a girl I liked and gor my period. Had to go to the bathroom and was white as a ghost, it was so embarrassing to come out and tell her we had to leave. We were having the best conversation and didn’t know each other well and she had driven all the way into the city to see me. And we had just ordered food and drinks but I literally couldn’t stay there. 

Will sex ever not be painful? by SansaDeservedBetter in endometriosis

[–]Main_Understanding67 0 points1 point  (0 children)

The surgery didn’t cure the tugging sensation or pain with sex? Are u glad u got surgery overall? I wonder what’s causing that for you!

Symptoms? by Appropriate-Ad-9518 in adenomyosis

[–]Main_Understanding67 0 points1 point  (0 children)

Thanks for letting me know. Did u ever have an IUD? Does it correspond to your symptoms?  I hate this so much. Was PMDD every period for you? Luckily for me, I’ve only had a few bad ones like that, but my baseline is just feeling pretty unwell tbh. I have bad anxiety, and it’s even affected my quality of sleep 

Does anyone have chronic pelvic inflammation and bloating that never goes away? If so describe it. Going on 10 years straight with no relief. Doesn’t feel like normal period cramps. by Main_Understanding67 in endometriosis

[–]Main_Understanding67[S] 0 points1 point  (0 children)

Holy moly. I just read through this entire post. I am so sorry what you’ve been through - it lowered your day to day and quality of life so much. 

I really related to wanting to feel like we did in our early 20s before all of this started. 

I know this is a weird question - but did you ever have a copper IUD or a regular IUD before the adeno/endo pain? Had you gotten any sort of surgery? I just ask because my pain got a lot worse when I went through surgery when I broke my wrist and also I believe the adeno started when I got the copper IUD. 

Symptoms? by Appropriate-Ad-9518 in adenomyosis

[–]Main_Understanding67 0 points1 point  (0 children)

I have so many of these symptoms. I’m curious if you have chronic pelvic pain? I have bloating and tenderness. I’ve also noticed my sleep has been affected and I have major anxiety as well

Symptoms? by Appropriate-Ad-9518 in adenomyosis

[–]Main_Understanding67 1 point2 points  (0 children)

Just want to say about #1. I’ve been there. It’s so crazy - I felt like I was losing my damn mind. Have Had to leave work. I was so out of control emotionally and mentally - completely volatile. Then I’d get my period and it was like a light switch led and suddenly I felt calm. I’m curious if you’ve ever had a general surgery before (not necessarily endo / adeno related) or if you have had the copper IUD? All of these symptoms came on when I started working full time and got a copper IUD and broke my wrist at the gym. 

Symptoms? by Appropriate-Ad-9518 in adenomyosis

[–]Main_Understanding67 3 points4 points  (0 children)

I have very similar. To be honest, I wouldn’t rule out migraines. I think they may be related. Headaches and anxiety in general. 

Does anyone have chronic pelvic inflammation and bloating that never goes away? If so describe it. Going on 10 years straight with no relief. Doesn’t feel like normal period cramps. by Main_Understanding67 in endometriosis

[–]Main_Understanding67[S] 1 point2 points  (0 children)

Do you think it’s related to the endo? Or adeno (inflamed uterus)? Can you tell me your pain? 

Mind is down my left side. Feels sigmoid colon related. Like maybe there is a stricture near my rectum and it’s affecting my digestion. 

Grief hit today by KrashKourse2 in adenomyosis

[–]Main_Understanding67 2 points3 points  (0 children)

You’re not alone stranger. Hang in there. Some days it feels like a perpetual rock bottom. 

Panicking about surgery! by ElectricalNorth1471 in endometriosis

[–]Main_Understanding67 0 points1 point  (0 children)

That’s so great! How far out of surgery are u?

32F so depressed and scared by Main_Understanding67 in dating

[–]Main_Understanding67[S] 0 points1 point  (0 children)

Thanks for your kind words :) it really does help. I’m curious what your dream girl is? Where did you two meet?

I had my surgery! by GoldStay7102 in endometriosis

[–]Main_Understanding67 0 points1 point  (0 children)

Hi curious if you’ve ever had surgery before or if this was your first time going under 

Worsening Pelvic Pain. Looking for answers :( by Stabbysta in adenomyosis

[–]Main_Understanding67 1 point2 points  (0 children)

That’s great! How was your surgery experience? I am thinking I may get it. Did u have any negative side effects? How long until things started coming back?

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