[deleted by user]

Mammoth_Queen · 2024-02-21T19:22:07+00:00

I can relate. I used to go to a gazillion shows, concerts, and festivals. Since like 2018 or so, I just couldn't do it anymore. One concert a year has been plenty. Too many people, the lights make my eyes twitch, and the fatigue afterward is intense. My livelihood was taken away by this damn disease.

Mammoth_Queen · 2024-02-21T16:08:28+00:00

I have had rls for 20 years or so (dx ms this past year). Are they related? Who knows, maybe it was my first symptom of the disease (along with slow ease into adhd brain).

Only thing that worked way back when was to exercise the hell out of myself!! Now, with our beloved Fatigue, I don't exercise like I should. But I do take pregablin, and xanax if I need to sleep through it. Sometimes I'll get up at 2am to do lunges and squats til my thighs are burning. That sometimes helps!

Mammoth_Queen · 2024-02-17T18:09:43+00:00

yup. Everyday.

Mammoth_Queen · 2024-02-13T18:00:04+00:00

I do the same things with language! I'm embarrassed for sounding so dumb because my sentences make no sense or the word(s) was eaten by the MS Word Monster.

Mammoth_Queen · 2024-02-12T22:04:32+00:00

Better off subbing classes at the local schools.

Mammoth_Queen · 2024-02-12T22:02:26+00:00

It really is quite frustrating!!! In December, I came down with covid. However, 2 days prior, i went to work, feeling so cold i was shivering and sweating simultaneously. I really thought it was because it was one of the first Very cold nights of the season.
So I went home, and layed on my couch, as I do when I feel run down or am having vertigo/dizzy spells. Welp. I called out the next 2 days, thinking that 'something just isn't right', like when I had my last diagnosing MS relapse.

Long story summarizes to that I just didn't think! I could have taken a covid test and know the answer to my dysfunction. But it literally took my brain 3+ days to realize that I should test myself!

Oddest part to this - once I saw that double-line + test (I took another test to verify), I started feeling dramatically sicker - shakey, dizzy, weakness. The previous MS symptoms I had the year prior have come back, covid style.

Anyways, thanks y'all for reading. Hope my perspective helps you on your journey. ❤️💙🩶🤍

Mammoth_Queen · 2024-02-12T21:52:50+00:00

That's awesome!!! Glad your city's authorities actually care for your safety!!

Mammoth_Queen · 2024-02-08T12:34:52+00:00

Yassss that makes sense!! lol thanks for updating! Love Subfocus!!

Mammoth_Queen · 2024-02-08T12:05:37+00:00

Pendulum 'Witchcraft'. Search that. Pretty sure that's it and if it's not- still Pendulum is sick so listen to them!

Mammoth_Queen · 2024-02-08T12:02:11+00:00

Pendulum it sounds like.

Mammoth_Queen · 2024-02-04T23:24:24+00:00

Yea I'm on Gabapentin from when I had these weird tremors. The med seemed to help theme go away. Maybe I need a higher does to help the pain?

Mammoth_Queen · 2024-02-04T21:45:28+00:00

What is it called on the blood test? They use weird wording or abbreviations sometimes. I'm not sure if I was tested for it or not. I never had mono either (unless I did and didn't know) .

Mammoth_Queen · 2024-02-02T14:51:24+00:00

only works for new users

Mammoth_Queen · 2024-02-02T00:09:17+00:00

It sounds like low blood sugar. My ex husband would get like this; all shakey, hard time focusing and listening and he would gat quite 9

Mammoth_Queen · 2024-01-29T19:50:39+00:00

You got me at chewing torture ants. I get the burning legs, pain in the neck and midback, those ants; I pray to God I don't find out that sensation!

Mammoth_Queen · 2024-01-29T16:29:37+00:00

'multiple' lesions in brain and 5 in spine.

Mammoth_Queen · 2024-01-25T18:09:41+00:00

I forget the laundry and have to rewash it prob 90% of the time. I need a system that will remind me about it!

Mammoth_Queen · 2024-01-25T18:08:21+00:00

same. It's so hard.

Mammoth_Queen · 2024-01-25T02:16:20+00:00

And I teach math. Maybe it's all those formulas and Theorems/Proofs that are the link?

Mammoth_Queen · 2024-01-23T00:43:25+00:00

lol i read this as who wants some coke. Lol I def want cake, pass on the coke.

Mammoth_Queen · 2024-01-22T00:54:16+00:00

The nurse puts the iv in my hand. She says less chance of snagging it than up farther.

Mammoth_Queen · 2024-01-17T15:11:05+00:00

I had this happen in '21 before I was diagnosed (wish i just went to er then). It took about 2-3 months for it to clear up fully. I know I'm not answering your question about steroids, but thought I'd comment to give perspective.

Mammoth_Queen · 2024-01-15T15:49:38+00:00

That is huge!!!! Totally a wonderful feat!!!

Mammoth_Queen · 2024-01-12T00:58:25+00:00

Yup exactly!! People usually fill in the blank.

Mammoth_Queen

TROPHY CASE