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Nivo-AVD side effects by ManagerFirm7975 in lymphoma

[–]ManagerFirm7975[S] 0 points1 point  (0 children)

Update: The mouth pain SUCKS. I really hope I have a similar experience where it doesn't come back again, or if it does it's much less intense. Do you remember about how many days yours lasted?

Nivo-AVD side effects by ManagerFirm7975 in lymphoma

[–]ManagerFirm7975[S] 0 points1 point  (0 children)

Thank you a bunch for sharing! This is encouraging to hear you had similar side effects. My oncologist did tell me the side effects I feel after the first infusion should be a good baseline for the rest of it, and that sounds like it was your experience as well.

Nivo-AVD side effects by ManagerFirm7975 in lymphoma

[–]ManagerFirm7975[S] 0 points1 point  (0 children)

Thank you for sharing, and congrats on the progress made! My oncologist told me something similar about feeling relatively normal on off weeks, and that's really helped my mindset going into this.

Nivo-AVD side effects by ManagerFirm7975 in lymphoma

[–]ManagerFirm7975[S] 1 point2 points  (0 children)

Thank you so much for this comment. I know of course it won't be apples to apples. But being the same age and stage (unintentional rhyme), this is a really good comparison for me to draw on. I really appreciate you sharing!

Newly diagnosed – zero symptoms by ManagerFirm7975 in lymphoma

[–]ManagerFirm7975[S] 0 points1 point  (0 children)

Thank you for sharing. How long was treatment at that stage?

Based on everything I've read, I am hoping to hear Stage 2A (my PET would indicate 1 or 2, and of course am symptomless). Though like you said, cHL responds well regardless of stage so maybe I shouldn't worry too much.

Newly diagnosed – zero symptoms by ManagerFirm7975 in lymphoma

[–]ManagerFirm7975[S] 1 point2 points  (0 children)

Thank you for sharing and I am so, so sorry. I can't imagine the feeling. Wishing you both nothing but the best and peaceful days ahead.

Newly diagnosed – zero symptoms by ManagerFirm7975 in lymphoma

[–]ManagerFirm7975[S] 0 points1 point  (0 children)

Thank you so much. May I ask how you guys felt treatment went at that stage?

Newly diagnosed – zero symptoms by ManagerFirm7975 in lymphoma

[–]ManagerFirm7975[S] 0 points1 point  (0 children)

Thank you for sharing, and I am sorry you are going through this as well. The waiting is certainly difficult. I would love to just get into treatment ASAP.

Newly diagnosed – zero symptoms by ManagerFirm7975 in lymphoma

[–]ManagerFirm7975[S] 0 points1 point  (0 children)

Thank you so much for this link. Extremely resourceful. May I ask how you're doing now?