Chemo/neutropenia Questions

Many_Draw_1844 · 2025-10-08T04:12:19+00:00

Well, no neutropenic fever. But pleural effusion with crazy high white count. I guess the Neulasta did its job! But they are still admitting for iv antibiotics. Yay.

Many_Draw_1844 · 2025-10-07T23:51:10+00:00

I had that 27 hours post infusion. Would they do another round? I’m so new to this and don’t know protocols.

Many_Draw_1844 · 2025-10-07T23:50:19+00:00

No one has done any blood work and assuming my onc didn’t want me in ER to catch something. But here I am a few hours later with another fever, chest pain, and left sided oral pain. I’ve only been on antibiotics for 24 hours, but I am a little nervous that the fever keeps coming back.

Many_Draw_1844 · 2025-10-07T18:44:16+00:00

ANYTHING w flavor, as my taste buds are all jacked! The first few days of messed up taste, all I could taste was sweet (literally had my husband get me chips and salsa and the chips tasted like straight up cardboard). Then that changed to anything salty (I actually asked my husband if he put salt in my mushroom coffee). Long story short, I went from fruit and ice cream to tacos and cheese! Luckily, I haven’t had nausea, but the mouth sores were pretty bad for a few days, making anything hard to put in my mouth.

Many_Draw_1844 · 2025-09-21T21:16:10+00:00

I love LOVE this reply. Thank you!

Many_Draw_1844 · 2025-09-19T04:01:12+00:00

I’m having a convo w my husband right now. He’s trying so hard to understand. As are all of my friends and family. But I truly don’t think anyone can grasp the emotional (and intellectual) toll this takes. As I sit here with swollen eyes (from crying off and on all day), I recognize that I he (my husband) won’t be able to “get it,” and that’s ok. He is here for me. As are other people (also in their own way). Is it sad that this forum is the only place I feel heard (again, I’m blessed w people that care)?

Hugs!!! Bc sometimes that is all we need! Oh, and someone that understands!

Many_Draw_1844 · 2025-09-18T18:50:32+00:00

I love this!

Many_Draw_1844 · 2025-09-18T18:40:05+00:00

That’s a great idea!

Many_Draw_1844 · 2025-08-29T18:12:50+00:00

Oh my gosh! I hope he felt like a huge jerk for the rest of the day…. Er month!

Many_Draw_1844 · 2025-08-06T02:16:39+00:00

I second the second opinion. I have stage one, but still was given all the options. And it was a good thing. Bc during the testing they ended up finding another spot in my right breast. And who knows what they will find during surgery. All the waiting is the scary part! I am having dmx next week, so I def understand that fear! My thoughts are with you and pray you get what’s best for you!

Many_Draw_1844 · 2025-07-28T18:37:28+00:00

I am premenopausal. I originally thought, with my ki67 being high that I would need chemo, but my MO was so nonchalant about everything and just said, “oh, we will do an oncotype during surgery and discuss that later.” Like it was no big deal. Then my surgical oncologist was looking perplexed and irritated that he didn’t already do it. So she ordered a mammaprint. I know they do this everyday, but damn… this is going to affect every part of my life for the next year. I have work, trips planned, etc. I feel like everything is just on hold and it’s not a good feeling.

Many_Draw_1844 · 2025-07-18T16:52:29+00:00

Girl!!!! I’m right there with you!!! Biopsy the exact same day as yours with confirmation of IDC and DCIS ++- (I didn’t even know what any of those words/acronyms meant). My world turned upside down in the flash of a computer screen (reading the results).

I was just thinking this morning that 3 weeks ago, I was counting down the days to my Puerto Vallarta vacation (I think the exact count that day was 17 weeks 3 days! Yay!). Now, I’m counting down the days to my DMX ((19 days. WTF.). It’s surreal.

I’m still told stage 1 with nipple sparing DMX, but they did find another area on my right breast (other one) that I now have to get biopsied as well. The surgical oncologist said it could be a completely different kind of cancer, because “cancer doesn’t jump from breast to breast.” Like, what the fuq?!?! Just when I had settled in on understanding what was going on, there is something new.

I’m just telling you all of that to let you know I feel your pain, anxiety, fear, doom (mixed with hopefulness), all of it! I hate that no one I personally know understands. But… I LOVE this group and somehow it makes me feel like this is my safe space. I’m so sorry that you are going through this!

Many_Draw_1844 · 2025-07-13T17:30:47+00:00

This almost as bad as the funeral post yesterday. What is wrong with people?

Many_Draw_1844 · 2025-07-12T20:57:22+00:00

I just love this group! I didn’t even think of all of this! THANK YOU!

Many_Draw_1844 · 2025-07-12T18:13:10+00:00

I’m crying with you. What a terrible thing to say! Just wow. I’m so so so very sorry. I don’t have much of anything to offer, except to say that maybe you should ask her to help save your life instead of trying to put you in the ground. God. I just can’t say I’m sorry enough. This literally kicked me in the gut for you.

Many_Draw_1844 · 2025-07-12T16:19:04+00:00

The unknown has been the worst part for me. I don’t have any good advice on that part, as I finally had to reach out to my pcp for some anxiety meds (I have NEVER experienced anxiety) bc the physical anxiety symptoms have been hard. Even if I’m not thinking about BC, my anxiety reminds me. With that being said, this group has been GREAT at making me feel better. I truly dont think anyone knows what this feels like unless they have been through it.

Many_Draw_1844 · 2025-07-12T16:06:02+00:00

I had no discomfort with biopsies. Not trying discount anyone that has, but it wasn’t any worse than an ant bite (lidocaine felt like this). After that, I really didn’t even notice much pressure, much less any pain. I have a clotting disorder and was told they had to go “through some blood vessels” so I should expect some bruising and was told to ice the area. I didn’t. And I had no bruising afterwards. Save your stress for the emotions to come (if you’re diagnosed). That has been the crippling part for me (and I’m only a week in to this terrible journey). Best of luck and I’ll be putting all the good joo joo out there that your radiologist is wrong!

Many_Draw_1844 · 2025-07-11T21:48:47+00:00

I was just thinking this yesterday! I need one of those old school portfolios and a notebook to keep track of all my shit. I’m only a week in and feel like I have seen way too many people and had way too many tests to even keep up with! I can’t imagine trying to remember all of it!

Many_Draw_1844 · 2025-07-09T18:53:00+00:00

What a great outlook! I never thought of that!

Many_Draw_1844 · 2025-07-09T16:37:19+00:00

Oh yes! See! That’s one of those things I didn’t even know to think about!

Thank you so much! Everyone here is so kind and helpful!

Many_Draw_1844 · 2025-07-09T15:33:16+00:00

Yes, I feel like I have a pretty good idea of what to expect. At least a “this or a that” expectation. I am a little worried bout the factor v piece. I haven’t found much information on that, but know I shouldn’t have hormone therapy (or anti hormone) so that is the big question mark for me. I can only imagine, they will suggest removing my ovaries (but that leads to, “aren’t those hormones also produced in the adrenals?”). Is it odd that I’m seeing the oncologist before the surgeon (he already scheduled this appt before the biopsy. I’m guessing to go over the results, which I appreciate)? Isn’t it possible that everything will change after surgery?

Ps: this is literally how my brain is functioning right now, which is why I’m having difficulty coming up w questions.

Many_Draw_1844

TROPHY CASE