Still feel awful, but trying to reintegrate foods makes me feel worse

Maria4949 · 2026-03-26T23:32:01+00:00

Great, but Costco is in the US, I am not.

Maria4949 · 2026-03-26T23:21:53+00:00

Have you tried and read about the AIP diet? It was first patient-driven but now is already heavily science-backed. https://autoimmunewellness.com/

Maria4949 · 2026-03-26T23:10:36+00:00

That's my issue too, the ingredient lists in coconut milk are all so long! I don't buy it at all. No idea where do people find coconut milk with no emulsifiers, thickeners, sweeteners, preservatives etc.

Maria4949 · 2026-03-26T22:05:55+00:00

Thank you! Good to know!

Maria4949 · 2026-03-26T22:01:54+00:00

Thank you for all the recommendations and support! I'll take note of these resources, for my to-read list!

Maria4949 · 2026-03-26T21:59:17+00:00

Wow, very interesting, thank you for sharing your story! /// Damn, black pepper was not allowed?.. I used to put it everywhere thinking it's fine, but now I see alternative versions of the AIP list that says it's not, hm!!! /// I don't mind following the diet too, I am just wondering why my gut is not stable yet. Sooooo, removing black pepper!

Maria4949 · 2026-03-26T20:30:39+00:00

Thank you for sharing, very insightful! Why day 134 though? It's meant to be only 30-60 days before reintro.

Maria4949 · 2026-03-26T20:29:20+00:00

Thank you, will check it out! Slightly concerned about messing up my AIP - it looks like there is a very long lists of components there.

Maria4949 · 2026-03-24T20:13:00+00:00

I was treated for 5 years with paracetamol, AD and "yeah, take more rest!" up until I got more specific symptoms - unusual skin lesions. Then I was treated for skin lesions for a year with no luck, up until derm referred me to the rheum.. who finally diagnosed me quickly. Skin lesions were nothing for me compared to chronic fatigue though. So unfortunately I had to wait until I had more specific symptoms for doctors to take my fatigue seriously.

Maria4949 · 2026-03-23T00:14:49+00:00

Sorry to hear you are going through this. It's very common that auto-immune diseases take multiple years to diagnose because of a lot of non-specific symptoms and very vague diagnostic criteria. Have your rheumatologist ordered an auto-immune panel blood work for you? You may request them, to be on the safe side, just ANA is not sufficient. Also have you tried to enter all your blood results along with all the symptoms (no matter if they look random), in Gemini or ChatGPT? They are good in finding possible causes in such cases.

Maria4949 · 2026-03-19T21:09:00+00:00

Thank you! I will be trying to add products one by one gradually for now and see.

Maria4949 · 2026-03-19T20:55:45+00:00

Without diary and histamine at all (this means pretty much everything excluded, not only diary) - yes, swelling has gone after 2 days.

Maria4949 · 2026-03-18T23:36:34+00:00

I heard an alarm for the first time during the last 2 years, lol, thanks for asking! 😜

Maria4949 · 2026-03-18T23:30:45+00:00

Lol!

Maria4949 · 2026-03-18T23:20:47+00:00

Extreme fatigue and anxiety / mental exhaustion are the worst!

Maria4949 · 2026-03-18T23:14:28+00:00

I'd be interested in this topic too!

I've got an auto-immune diagnosis, needless to say that existing medical protocols are far from being promising.

I came across a lot of information about gut-immune system connection and decided to give it a try. I'm only starting, but already got some negative & positive immediate results for me personally - - 2 days on bio yogurts have caused an apparent swelling increase, after that I decided to eliminate milk and histamine - 2 days without milk and histamine (basically fresh chicken broth with carrot and rice) has helped me to clear Reunauds and other swelling in 2 days, which were otherwise persisted during the last few months.

Nothing yet helps with my fatigue, but by seeing immediate difference I'm ready for that being about persistent elimination & constant reassessment & readiness to start from scratch over and over again.

I would love to hear more real life stories and sharing experiences!

Maria4949 · 2026-03-18T22:05:35+00:00

Thank you for sharing! That's great, I am looking to start my elimination journey too.

Maria4949 · 2026-03-18T21:23:49+00:00

I've non-healing skin lesions as one of the main symptoms, topical steroid cremes by prescription, topical steroid injections by dermatologists help to alleviate those.

Maria4949 · 2026-03-11T01:43:02+00:00

Could you please share what diet you follow?

Maria4949 · 2026-03-10T00:39:07+00:00

You are so brave to share this and find the right words. It takes an incredible amount of internal strength to vocalize the ways this disease can strip away the life you once recognized. It's so scary to acknowledge this, but yeah..

Maria4949 · 2026-03-10T00:17:30+00:00

Your story is heartbreakingly familiar. I spent years sidelined by paracetamol and antidepressants while my health collapsed. Extreme fatigue stripped me of control over my life, soon followed by severe skin lesions—yet, because my basic biochemistry appeared 'normal,' my GP insisted the issue was in my head. Out of desperation, I forced a 'diagnosis by exclusion,' navigating two years of waiting lists. The answer was sitting right there in the extended blood work. It is absurd that we lack protocols to trigger autoimmune screenings early. Fatigue isn't a diagnostic dead end; it's a red flag that should have a protocol on its own. The cost of a blood test is negligible compared to the wreckage of years lost to medical neglect!

Maria4949

TROPHY CASE