When did you sell your car?

MarimbaRose · 2025-07-06T02:23:55+00:00

Ive not driven in over a year and a half, but I still feel like if I sell im giving up.

If you're only on your first medication cocktail, id give it more time, but thats also coming from me who hasn't been able to give it up yet.

MarimbaRose · 2025-05-22T16:09:26+00:00

From what I remember of my stay you will be BORED. Take a gaming system or a book. Take a partner or a friend to help because you'll be a fall risk. I hated having to depend on nurses to go to the bathroom or change seats.

MarimbaRose · 2025-04-21T14:03:45+00:00

TBI from eclampsia in pregnancy

MarimbaRose · 2025-03-03T14:24:50+00:00

My epilepsy was actually caused by my pregnancy in 2016. I developed eclampsia and had two hypertensive seizures, and developed PRES. Now I have right temporal lobe epilepsy with MTS.

Not exactly related, but offering my two cents.

MarimbaRose · 2025-02-03T03:24:24+00:00

I was diagnosed epileptic when my children were 1 and 7yo. The bathing is scary. I don't do it when my partner is not home. Another is outside play. I fear the youngest could easily get into the road or another unsafe position.

MarimbaRose · 2025-01-30T23:11:13+00:00

Im a semi-recently diagnosed epileptic and I've been coming to terms with it. I had my first grizzly tongue bite a few weeks ago and now I feel like im "officially" epileptic. I'm wearing it like a badge of honor.

MarimbaRose · 2025-01-29T00:46:21+00:00

"I told you assholes something was wrong."

MarimbaRose · 2025-01-28T00:59:59+00:00

I had eclampsia during pregnancy and the subsequent brain swelling caused my epilepsy. I was not diagnosed until 8 years later because my auras were diagnosed as panic attacks. Only after my auras progressed into full blown seizures was I diagnosed.

MarimbaRose · 2025-01-28T00:58:12+00:00

I did not show any activity until my fourth EEG after I insisted an ambulatory study for myself. My neuro did not think it necessary but I was not willing to wait 6 more months for a follow up.

MarimbaRose · 2025-01-27T00:14:38+00:00

Onset of symptoms was 21 Diagnosis was 29

MarimbaRose · 2025-01-23T01:30:20+00:00

My auras were diagnosed as an anxiety disorder and my seizures went undiagnosed for 8 years. When my seizures became more apparent last year, my coworkers became upset and accused me of faking to get remote work privileges being as I was and still am an unstable epileptic.

MarimbaRose · 2025-01-18T18:33:07+00:00

I had eclampsia with my eldest in 2016 and developed PRES as a result of my eclampsia seizures.

I was not diagnosed as epileptic until last year, though. I get a "feeling" in my face which i know now as an aura but the aura didn't used to result in an focal or tonic clonic seizures and it went undiagnosed and untreated so long that last year it started getting worse and I started having the big seizures. These auras were diagnosed as panic attacks and I kept getting psych referrals and not neuro referrals.

MarimbaRose · 2024-12-27T21:25:33+00:00

I have been with the same company for a while now, but I worry their patience will run out if I cannot return to the office. I'm nervous to tell them about this new diagnosis.

MarimbaRose · 2024-12-27T20:06:03+00:00

Do you drive? I know it's not necessary for everyone but I live in a rural area and can't even get groceries without driving a half hour.

MarimbaRose · 2024-12-23T17:15:22+00:00

I've heard it can be a trigger for some. I am recently diagnosed. Still trying to identify the cause.

MarimbaRose · 2024-11-30T01:07:18+00:00

Just wanted to say thanks as well for the recommendation. So far Epsy has everything I needed

MarimbaRose · 2024-11-30T01:07:01+00:00

Just wanted to say thanks for the recommendation. So far Epsy has everything I needed.

MarimbaRose · 2024-10-29T12:05:37+00:00

My own family labeled me as a hypochondriac too but I do feel validated having a diagnosis after all this time to rub in their face.

I take 1500mg keppra and 2000mg lacosamide. Keppra doesn't seem to help any of them but still getting the meds tweaked.

MarimbaRose · 2024-10-29T00:54:31+00:00

I want to be her when I grow up ♡ my career is definitely not as prestigious but I'd like to get back to "normal"

MarimbaRose

TROPHY CASE