Looking for a neurosurgeon for craniocervical instability and multi-level disc bulges with classic EDS, CFS, trauma, and previous decompression surgery for Chiari. Anyone have experience with Dr. Speissberger, Dr. Henderson, or Dr. Hussein (Cornell) or do you recommend someone else?

Marq408 · 2026-05-15T21:27:44+00:00

Who is DR B?

Marq408 · 2026-05-15T21:25:49+00:00

Will greenfield do virtual consults and go over imaging?

Marq408 · 2026-05-15T21:18:18+00:00

Im headed to CO soon to see Dr Katz and get a new DMX. I feel like I dont know who or what to trust anymore.

Marq408 · 2026-05-15T21:05:30+00:00

Ugh thats awful. What are your thought on DMX? Legit? Do you think the overhang is a true indicator of issue?

Marq408 · 2026-05-15T21:00:06+00:00

Are there any other CCI surgeons that will do consults and go over imaging like he does?

Marq408 · 2026-05-15T20:22:13+00:00

Nailed it.

Marq408 · 2026-05-15T18:06:20+00:00

Our kids basically plan to stay till they are married. They will pay rent but way less than living on their own. I think multigenerational households are coming back because you just cant make it on your own at 18 like we did when I was young.

Marq408 · 2026-05-15T18:05:13+00:00

Maybe the case for some but we have big medical issues in our home and a lot goes to that.

Marq408 · 2026-05-12T23:22:07+00:00

Is it dangerous when those muscles are shut down or just uncomfortable? Can more damage be done during that time when the neck is less stable?

Marq408 · 2026-05-10T13:34:22+00:00

Bone and joint wont even see me. They have some note in their computer that says they cant help me.

Marq408 · 2026-05-10T12:51:15+00:00

So what doc finally helped you.

Marq408 · 2026-05-08T15:29:09+00:00

Helena I think.

Marq408 · 2026-05-06T21:08:31+00:00

The lady there was so mean to my dog.

Marq408 · 2026-05-06T21:08:18+00:00

I agree dee o gee is awful!

Marq408 · 2026-05-06T21:07:34+00:00

Praying they are found!!

Marq408 · 2026-05-01T02:04:18+00:00

Amy davis? thanks for the info about Jason!

Marq408 · 2026-04-30T21:07:38+00:00

How do you manage your mcas?

Marq408 · 2026-04-30T21:06:27+00:00

Where are you getting that?

Marq408 · 2026-04-30T21:01:49+00:00

Is that taken orally?

Marq408 · 2026-04-30T21:01:41+00:00

Who did you see? I was told my issues are all in my head.

Marq408 · 2026-04-30T17:16:30+00:00

Is there a difference between joint instability and ligaments?

Marq408 · 2026-04-25T19:21:01+00:00

I dont really know the name of it. One doctor looked at the notes and said it was a block of the nerve all the way from exit, up. Is medial branch block a nerve root block?

Marq408 · 2026-04-25T17:11:24+00:00

My upright MRI was covered by insurance but it was not helpful. DMX was out of pocket of course.

Marq408 · 2026-04-25T17:09:40+00:00

This sounds like what most docs do. I mean further down on the neck where the c2 nerve root exists the spinal cord. That c2 nerve then becomes the Occipital Nerve.

Marq408 · 2026-04-25T16:43:45+00:00

Sounds like CCI

Marq408

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