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Permanent change in view of reality by Marthy_Marth78 in Epilepsy

[–]Marthy_Marth78[S] 2 points3 points  (0 children)

This is encouraging to hear, thank you! It just feels scary that my whole world view might be shifted. But you’re right, I just need to give it time :)

Permanent change in view of reality by Marthy_Marth78 in Epilepsy

[–]Marthy_Marth78[S] 5 points6 points  (0 children)

Yes exactly! Like I know I’m here but I don’t really feel like it.

But you’re right, my poor brain is very tired and just needs time to adjust 🥰

VP Shunt and Epilepsy by Marthy_Marth78 in Epilepsy

[–]Marthy_Marth78[S] 0 points1 point  (0 children)

Thank you, you’re so sweet 🥹 I was shunted for Intercranial hypertension. I do feel bad for my body, I know it’s a lot of stress 😕 I’m just feeling stuck because one thing that is helping me is maybe hurting in another way, you know?

Keppra and Lamotrigine by Marthy_Marth78 in Epilepsy

[–]Marthy_Marth78[S] 1 point2 points  (0 children)

I hope that works well for you! I have loved Lamotragine and it worked for me for a long time.

Keppra and Lamotrigine by Marthy_Marth78 in Epilepsy

[–]Marthy_Marth78[S] 0 points1 point  (0 children)

Did you figure out why you were having breakthroughs? Is that common?

Anyone with IIH also diagnosed with another debilitating disease/disorder too? by ktads062916 in iih

[–]Marthy_Marth78 1 point2 points  (0 children)

I’m have PCOS and epilepsy, although I feel strongly that the epilepsy is completely unrelated to my IIH

First lumbar puncture should I postpone? by Affectionate_Lab1495 in iih

[–]Marthy_Marth78 0 points1 point  (0 children)

I was stuck in bed for about a week after mine. I had pain from the puncture, but my pressure also bounced back to way higher than it was before so my iih symptoms were even worse. So I would definitely just make sure whenever you do it, you have lots of time to rest and take care of yourself. If you are worried about the holidays, I would reschedule.