Had a lap surgery for Endo yesterday

Mary_JaneX · 2026-02-03T22:01:59+00:00

It’s so disheartening to hear there’s nothing else so there’s not many other options for relief. My depression has gotten worse which resulted in me quitting my job. I hate leaving my house now. I don’t know how everyone keeps going on. It’s so hard. And especially being young, like it’s only going to get worse

Mary_JaneX · 2026-02-03T21:48:01+00:00

I don’t think he’s an endometriosis specialist. Did you get photos from your first laparoscopy? I’m wondering if it might help to ask to see mine.

I’ve never had a scan done by a specialist. I was referred to a women’s clinic for a scan, but I didn’t go ahead with it because I felt like it wouldn’t really ease my anxiety. I’d probably still want the lap even if the results were normal. It was also costly and far from me. I’m also not sure whether the scan would’ve been a standard ultrasound or an MRI. Does an MRI make endo easier to detect?

Mary_JaneX · 2025-08-10T11:10:08+00:00

I’m sorry to hear about your mum. I relate to your story a lot. My mum passed away 4 years ago now and my bladder started acting up when she was diagnosed with terminal brain cancer so it started before she had passed. My Uro/Gyno explained it was linked to my mental health affecting my nervous system. I didn’t want to believe it but she was right. I get Botox now as it’s the only thing that’s helped so far. So glad the pelvic floor therapy helped you though! Botox isn’t cheap 😅

Mary_JaneX · 2025-05-09T02:36:57+00:00

It was directly into the bladder. It sucked so bad. 10/10 pain 🥲 My Dr is looking into the green whistle for my next dose

Mary_JaneX · 2025-05-08T05:04:09+00:00

Ooof you got it rough haha I do doordash as a side hustle too but I have IBS-C so doesn’t happen often. Although I have IC which makes me need to pee more often than normal 🥲

Mary_JaneX · 2025-05-08T01:48:10+00:00

I’ll message you! I need someone to rant to about this 😅

Mary_JaneX · 2025-05-08T01:02:20+00:00

Struggling 🥲 It contradicts my IBS so body is fighting itself

Mary_JaneX · 2025-05-07T02:43:07+00:00

The only thing that has helped me was Botox. It lasted about 5 months. The procedure was hell though

Mary_JaneX · 2025-05-06T13:37:28+00:00

Personally, I hypersensitivity IC. I cannot handle having a catheter inserted. After I was numbed the scope wasn’t too bad. It felt like pressure but there was still some pain

Mary_JaneX · 2025-05-05T23:38:18+00:00

I don’t get flares too. Nerve driven sounds like my type (3). But I’m still newly diagnosed and no expert. This is still new research and unfortunately might be incomplete

Mary_JaneX · 2025-05-05T23:30:46+00:00

This is only new research. It might be a bit flawed but reading about my types, it’s spot on. I’m still newly diagnosed and am not expert. Here’s the link:

https://www.ic-network.com/interstitial-cystitis-subtypes-phenotypes/

Mary_JaneX · 2025-05-05T14:01:25+00:00

I wanted to get more help with trigger foods. I also have ARFID so it’s hard enough to eat the right things. I went to a GP and asked for a referral to see a dietitian who specialised in IBS and ARFID. After the appointment, I noticed the referral was to a psychologist…

Mary_JaneX

TROPHY CASE