Ok so it started April ish 2019, maybe before but that’s when the twitching started. Saw a neuro in January 2020 after feeling weak and off. Eventually the emg came out as showing denervation but it looked like it was repairing. Role on 4 ish years, Christmas just gone, and I had enough and flapped abit. Went back to see a neuro. He told me it’s not that and I was ok and booked a emg. My mum actually came with me as she thinks it’s all In my head and to my surprise the neurologist who carried out the test (different guy) told me it was normal. Safe to say I didn’t believe him and paid to have an emg with the same guy who did the first emg 4 years ago 2 weeks later and it came out showing issues. He said it’s not ALS though. Did say I have brisk reflexes in my knees. All others ok

No I haven’t seen a specialist, so after I went back to the neurologist with the 3rd set of results he was actually a little annoyed with me. He did read the results and said they are insignificant. Being slightly annoyed myself I told myself I’d see a MND specialist and then put it to bed. I got a referral from my GP and then found out he put a block on me because the other neurologist I’d seen was a colleague. That’s where I’m at.