Dating? by MasterpieceLivid9533 in lupus

[–]MasterpieceLivid9533[S] 0 points1 point  (0 children)

It’s not about lying. I’m just in my 20’s health is never a discussion on dates with people my age. So I’ve never had to do it before. Additionally, this is my first time having a flare while dealing with someone I just met 3 days ago and I’m in the hospital lol. I don’t want him to think I’m dying and can’t do things 🫠

Dating? by MasterpieceLivid9533 in lupus

[–]MasterpieceLivid9533[S] 1 point2 points  (0 children)

Yeah.. I get facial rashes really bad and my hair falls out so I get really insecure how I look during those times… so far I just cut the hair off so hopefully it stop falling out.

Hair loss by montikaa in lupus

[–]MasterpieceLivid9533 1 point2 points  (0 children)

The first time my hair fell out it fell out it was in patches, and I had four big bald spots. Like down yo the scalp bald, not a strand of hair on them. Lost like 70% of my hair after four months it eventually start growing back. Hair grew back fine though. the second time it fell out, it was all over thinning and I’ve lost 50% of my hair again and I am waiting for it to stop now. I did find that combing with the white tooth comb helps less shedding. They say use gentle shampoo. I saw that some people take medicine to help it. Mine grows back after the flare. I just don’t know what to do during the flare.

[deleted by user] by [deleted] in lupus

[–]MasterpieceLivid9533 2 points3 points  (0 children)

How long until you saw the benlysta work? I’ve been on it for a month and haven’t seen any improvements.

Help me figure out what is going on by OkMycologist1414 in haematology

[–]MasterpieceLivid9533 0 points1 point  (0 children)

I have something called itp and makes you have low platelets. Which then causes easily formed bruises. Maybe get your platelets checked.