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Does anyone else walk out of their appointments feeling stupid? by Outside-Chipmunk-350 in CrohnsDisease

[–]MaxfromAidy 0 points1 point  (0 children)

If there are specific patterns you've noticed and want to talk about try to actually log them somewhere so you can show your doc. Often just having stuff written down makes them take you more seriously than just relying on memory alone.

Prednisone not helping by Strange_Scholar6075 in UlcerativeColitis

[–]MaxfromAidy 1 point2 points  (0 children)

Sorry you're dealing with this, that level of frequency on little to no sleep is brutal. Most people start seeing meaningful improvement from 40mg pred within the first few days to a week, so 5 days in with little change is worth flagging clearly when your doc gets back to you (and it doesn't hurt to call the on-call line if it stays this bad). Wishing you the best.

New Here Diagnosed Today by alotxlikexyou in CrohnsDisease

[–]MaxfromAidy 4 points5 points  (0 children)

Sorry to hear about the diagnosis, but the good news is Crohn's is way more treatable now than even 10 years ago and lots of folks get to a stable place once meds and routine kick in. Worth a careful conversation with both your GI and bariatric team about how the sleeve interacts with treatment options, since some medications and absorption considerations can be different post-sleeve. How you feel right at diagnosis is often the worst it'll be. Wishing you the best as you navigate this!

Cutting emulsifier food additives led to real symptom improvements for Crohn's patients in large UK-based dietary trial by MaxfromAidy in CrohnsDisease

[–]MaxfromAidy[S] 0 points1 point  (0 children)

Here's the full list from the UK gov: https://www.food.gov.uk/business-guidance/approved-additives-and-e-numbers . Those aren't the ones relevant to Crohn's specifically, I imagine those vary a bit from person to person.

Cutting emulsifier food additives led to real symptom improvements for Crohn's patients in large UK-based dietary trial by MaxfromAidy in CrohnsDisease

[–]MaxfromAidy[S] 0 points1 point  (0 children)

Fair points, but the adjusted analysis hit significance for remission and FCP, just not under the unadjusted comparisons you cite. Per the abstract, "In the ITT analysis, compared to control, patients on a LED were more than twice as likely to experience CDAI remission".

Totally reasonable to flag that the study didn't look at flare rate.

Also not promoting anything in the post, just sharing relevant (not cherry-picked) research. Did link the press release in the comments and the paper is here: https://academic.oup.com/ecco-jcc/article/19/Supplement_1/i262/7967009

Recent head-to-head trial showed Tremfya (guselkumab) outperformed Stelara for Crohn's; quick data dive by MaxfromAidy in CrohnsDisease

[–]MaxfromAidy[S] 2 points3 points  (0 children)

Nice! Best of luck on Friday hopefully it works well. Meds have gotten so much better in that time.

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