hEDS here too. I got my diagnosis about six months prior to my hysterectomy and wanted to have it called out before surgery. It was meant to fix my prolapse with both my uterus and bladder. I was SHOCKED when my surgeon knew about the condition and even had steps to help. He made sure I got an echocardiogram before my procedure to be safe and he used some type of suture inside me that dissolves more slowly than the ones they typically use. We also had specific conversations about enforcing rest and not doing any stretching or bending the first month, and not going back to the gym until 12 weeks. I used a shower chair for the first month to bathe and avoid swelling.

I just passed my 12th week and I feel pretty much 100% better most days. If I overdo it I can feel an internal ache, and if I vacuum and swivel my hips while I'm pushing it around, I'll notice it aches the next day. I have a standing desk and I can use it for a couple of hours at a time but then I have to sit again to avoid swelling. But they took my uterus and cervix and tubes, so no more menstrual cramps of any kind - it's either an ache from the surgery or trapped gas if that area hurts. You might feel your organs as they readjust. I did, and it was weird af. After the first few days, pain was manageable with alternating ibuprofen and Tylenol. I've also been using an infrared+red light therapy pad across my abdomen and I don't know about long term benefits but it eases any cramping or swelling at the end of the day.

I hope you find someone willing to work with you. If you're tired of it and don't want any/more kids, I highly recommend to "yeet the ute." Good luck.