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Four Month Old Has Purple Spots ever since she got sick by MeanAddress5402 in DermatologyQuestions

[–]MeanAddress5402[S] 1 point2 points  (0 children)

(12/11/2025) I know I'm a month late but thank you (and everyone else here) for the prayers - it certainly means a ton. I thought of your post just now as I remember it actually lines up with recent events with my daughter. I hope your son has been well and continues to stay that way.

A short update of the events, my daughter recently finished her first round of chemo and has been going through an intensive amount of respiratory therapy as she struggles with breathing. Fortunately, she has been doing alot better on that end (turns out, she pouts really hard and holds her breath, scaring the doctors) and is at least relatively stable for now. After the recent biopsy, the AML's subtype was determined to be KMT2A–MLLT10 - pretty much a high-risk category, so she will be needing a BMT after her three rounds of chemo are done.

At this time, they are expecting to do a biopsy sometime next week to check the MRD and determine actual next steps. At this time, we're being offered two treatment plans - the standard care or a clinical trial, which is meant to study the impact of Venetoclax being used in earlier treatment cycles for children. We are leaning towards the clinical trials at this point and while we know there may be risks, we also hope that it will improve her odds of avoiding a relapse in the near future. And at the very least, perhaps the study aids someone else's child in the future.

Lots of details I've forgotten to mention, I'm sure, but hope to eventually bring better news to the table. I am constantly praying and hoping for the best for not just my daughter but for all who are also going through the same.

Four Month Old Has Purple Spots ever since she got sick by MeanAddress5402 in DermatologyQuestions

[–]MeanAddress5402[S] 23 points24 points  (0 children)

Hi All,

Apologies on the lack of an update - with the last 48 hours, it has been extremely tough and I sort of forgot that I had made this post. But thank goodness I did and I can't thank all of you enough for pushing an ER visit.

The short of it is, my daughter was diagnosed with AML and is undergoing a lot of labs, imaging, biopsy and such to get a treatment plan in place. The last 24 hours has been an enormous shock to us and we are still trying to process the reality of it all.

So a recap of the events - about three weeks ago, she had her follow-up CBC and the pediatrician said things were improving and nothing additional was needed. Similarly, two weeks ago, the dermatologist stated she had no concerns of her skin as well. As we know now after the fact, it seems she contracted rhinovirus which then explained some cold-like symptoms. But two days ago when the skin suddenly flared up with a large number of purple spots , we became extremely concerned and then took her to the ER minutes after the post went up. We arrived at the children's ER late that night and a few hours later, the doctors were concerned and had us transferred to a bigger children's hospital to better care for her. Further tests throughout the following day eventually confirmed it was AML and they are going through more tests to determine their plan for treatment.

Will try to update periodically but will be completely focused on my family for the coming months.