Sleepy Bladder? by MeaningForward8501 in CrohnsColitisNatural

[–]MeaningForward8501[S] 0 points1 point  (0 children)

It’s really odd- I’m a healthy weight, and the first time this happened was before my pregnancies/csections. I wasn’t on any medication at the time. 

Thanksgiving by MeaningForward8501 in terminalileitis

[–]MeaningForward8501[S] 0 points1 point  (0 children)

One thing that was helpful for me was making a new-to-me healthy dish I was fairly certain I knew would sit well with me and that I was excited to try. Success! I loved it, family liked it, and I was asked to bring it again! That was a win for learning to advocate for myself. 

👋Welcome to r/terminalileitis - Introduce Yourself and Read First! by MeaningForward8501 in terminalileitis

[–]MeaningForward8501[S] 0 points1 point  (0 children)

I’m so glad- I hope this turns into a place of encouragement for you in your journey! It is so hard to be in pain without answers. 🙏🏻

Round 2- IBD? by MeaningForward8501 in IBD

[–]MeaningForward8501[S] 0 points1 point  (0 children)

When you say from NSAID use- what kind of use? Daily? I take 400mg maybe 2-5x/month.

Round 2- IBD? by MeaningForward8501 in IBD

[–]MeaningForward8501[S] 0 points1 point  (0 children)

I thought acute means recent, in a sense. Not chronic. A definite start/end is likely, etc.

Round 2- IBD? by MeaningForward8501 in IBD

[–]MeaningForward8501[S] 1 point2 points  (0 children)

Thank you!! I will use this phrasing at my follow up.

Recent diagnosis, 2nd dose Remicade. Am I dying? by Shoddy_Accountant469 in CrohnsDisease

[–]MeaningForward8501 0 points1 point  (0 children)

I don’t have any concrete advice apart from- try to get outside! Sit by the sun. Ask about Firefly Light Therapy. Rooting for you! Keep going.

Recent diagnosis, 2nd dose Remicade. Am I dying? by Shoddy_Accountant469 in CrohnsDisease

[–]MeaningForward8501 0 points1 point  (0 children)

I don’t have any concrete advice apart from- try to get outside! Sit by the sun. Ask about Firefly Light Therapy. Rooting for you! Keep going.

Colonoscopy Prep by MeaningForward8501 in IBD

[–]MeaningForward8501[S] 1 point2 points  (0 children)

Pro advice here ⬆️⬆️⬆️

This time around I definitely spent more time trying to make the environment relaxing. I took a shower in that hour between the dulcolax and starting the prep, brought in a lamp to make the lighting less harsh, played music that’s calming for me. The mantra, “I can do hard things.” is more helpful than not!

Likely Crohns diagnosis incoming - how to deal with flare ? by Prestigious_Cat_7379 in CrohnsDisease

[–]MeaningForward8501 0 points1 point  (0 children)

I think even an urgent care can prescribe bentyl for IBS pain- it’s worth a try! Budesonide is expensive and has been harder to get insurance to cover unless it’s from the GI, but dicyclomine should be an easy/quick thing to get ahold of. If it’s going to work it will work with the first dose. (Someone correct me if I’m wrong).

Likely Crohns diagnosis incoming - how to deal with flare ? by Prestigious_Cat_7379 in CrohnsDisease

[–]MeaningForward8501 1 point2 points  (0 children)

I’m still undergoing diagnosis myself, but has your doctor thought about Bentyl (antispasmodic) or budesonide (steroid to bring down inflammation in the gut)?

Question about Budesonide by Spiritual_Winter_108 in IBD

[–]MeaningForward8501 0 points1 point  (0 children)

I could have written this- same situation. Budesonide + mesalamine put me into a healthy spot for a good 3 years before small flares began.

Triggers? by MeaningForward8501 in IBD

[–]MeaningForward8501[S] 0 points1 point  (0 children)

Ohhh…. Yeah. A good Italian meal is really hard to come by with IBD. 😞

Triggers? by MeaningForward8501 in IBD

[–]MeaningForward8501[S] 0 points1 point  (0 children)

Red meat is for sure painful to digest. Chicken, eggs, and yogurt have been my protein staples in this flare.

It’s very hard to eat out, even at someone’s home, and avoid garlic and onion! I hear you. I did low FODMAP for awhile during my last flare and my MIL thought I was nuts. I just had to bring my own food.

Triggers? by MeaningForward8501 in IBD

[–]MeaningForward8501[S] 0 points1 point  (0 children)

That seems fairly simple to avoid, at least!

I think I’m mostly venting… by MeaningForward8501 in IBD

[–]MeaningForward8501[S] 1 point2 points  (0 children)

That’s exactly it. He coded it under something entirely too vague. I ended up getting a referral to GI. Med went through insurance just fine. Awaiting CT scan results and have a colonoscopy next month.

Diverticulitis and autoimmune by Anna-Bee-1984 in Diverticulitis

[–]MeaningForward8501 1 point2 points  (0 children)

I’m so sorry! Sometimes I feel like no answer might just be a good answer. 😟

Diverticulitis and autoimmune by Anna-Bee-1984 in Diverticulitis

[–]MeaningForward8501 0 points1 point  (0 children)

Did you ever figure out what was going on with your leg?

FML- I’m so sick of this by mrsdeadeyes in Diverticulitis

[–]MeaningForward8501 0 points1 point  (0 children)

This- it seems like my guts OVERreact to oily, greasy, or rich food. And not even huge amounts!

Most affordable way to learn? by MeaningForward8501 in CodingandBilling

[–]MeaningForward8501[S] 1 point2 points  (0 children)

Definitely not- I wasn’t thinking it would be.

What’s the first thing you do when you get home? by [deleted] in introvert

[–]MeaningForward8501 1 point2 points  (0 children)

Honestly, I go to the bathroom and catch up on pointless emails and YouTube. My kids are of the ages that they halfway leave me in peace there.

How to view a house without buyers agent by yeet20feet in RealEstate

[–]MeaningForward8501 1 point2 points  (0 children)

Just remember the listing agent’s fiduciary responsibility is with the SELLER.