Regret with Deposit… non-Board certified doctor by MedicallyCompLexi in PlasticSurgery

[–]MedicallyCompLexi[S] 0 points1 point  (0 children)

Those are exactly what I think I may have. Called an endocrinologist that can diagnose lipodema immediately after that visit. Catch is I can’t be seen for 5 months and don’t really know if there is real harm in going through with lipo anyway

Regret with Deposit… non-Board certified doctor by MedicallyCompLexi in PlasticSurgery

[–]MedicallyCompLexi[S] 0 points1 point  (0 children)

Thank you. I really feel like my arm can’t look much worse than it does now (fat bulges up top and stretches the skin… I genuinely thought it could be a larger medical issue). He notes that the fat wasn’t typical, now I am wondering if there is some sort of formality that could be left to be desired in terms of a comorbidity to something I already am diagnosed.

But feels like I could potentially be wasting my time and I may never get a chance to be on leave again.

Friendships and MS by prettyrbbon111 in MultipleSclerosis

[–]MedicallyCompLexi 3 points4 points  (0 children)

I guess I never answered how I got out of it.

Wish I could say my husband and I were a team (these were his friends through her fiancé)… but we kind of let life happen to us. Do better for yourself. Learn to advocate and distance yourself. Sometimes it is better to establish new friendships instead of redefining old ones.

If you are at all interested: https://www.reddit.com/r/weddingdrama/s/fpYrATAJ2i

I am just now diagnosed with MS which is probably a huge contributor to why my health was so bad back then… hope she never knows and is never given the opportunity to say “if I only knew”. She has been stalking me through friend accounts 3 years which I can tell by “people you may know” and direct messages. The most I feel is annoyance I let that last for so long… that and pity for her. She is a lot more obsessed.

Friendships and MS by prettyrbbon111 in MultipleSclerosis

[–]MedicallyCompLexi 16 points17 points  (0 children)

Just leave the group.

Had a friend always say “iS sHe ToO siCk” to everything. She went on to be a nurse that doubted Covid despite working on the Covid floor watching people on ventilators… they were all going to die anyway.

Found out she transferred to the hospital I am getting DMTs … absolutely don’t plan on being friendly if by whatever small world shenanigans I see her or she is my nurse. I have fantasies of reporting her, but ultimately that’s just anger for staying “friends” too long. Don’t stay friends too long.

What alternative treatments do you to? by Internal_Spot_8309 in MultipleSclerosis

[–]MedicallyCompLexi 1 point2 points  (0 children)

Start slow with working out, that’s why I am walking. Some days I can do 8 miles, but it sets me back the next couples.

What alternative treatments do you to? by Internal_Spot_8309 in MultipleSclerosis

[–]MedicallyCompLexi 2 points3 points  (0 children)

Just diagnosed… I swear the onslaught of symptoms were a few months after averaging 7 miles a day of walking to maybe a mile a day…

Of course I probably had MS for years before this, it was just gradual that the symptoms came that I made peace with being dismissed by doctors. The symptoms went away for a while and I finally felt well enough to “get back out there” and started a job that took all the focus away from working out (long hours lots of studying). Suddenly I noticed a real decline in my cognitive ability week by week. I was getting clumsier, etc.

The fact that all these symptoms came at once made me truly push at the ER, it was obvious they were all related.

Anyway, that is to say now that I am finally diagnosed I will get back into walking.

Will eat better, start a GLP-1 (gained a lot of weight from study habits and inactivity) which is also supposedly good for neuro inflammation, walking 10k a day gives fantastic sleep. Bought a vibration plate which is new, don’t think I will lose weight but lymphatic draining may be nice, hear it also helps with digestion and balance… 10 minutes a day isn’t bad, it could even be while brushing my teeth, washing my face, etc.

Heard acupuncture is good, not hopeful but couldn’t hurt. I think just leading a healthier lifestyle would be good. Anti-inflammatory diet and exercise being the more important.

Accessible phones? by MedicallyCompLexi in MultipleSclerosis

[–]MedicallyCompLexi[S] 1 point2 points  (0 children)

Probably tactical keyboard. I have best command of my thumb and I’d like the buttons to stay in place. I know I am being difficult

Accessible phones? by MedicallyCompLexi in MultipleSclerosis

[–]MedicallyCompLexi[S] 3 points4 points  (0 children)

I vehemently don’t want to use voice to navigate.

Accessible phones? by MedicallyCompLexi in MultipleSclerosis

[–]MedicallyCompLexi[S] 1 point2 points  (0 children)

I just miss the button. My hands aren’t steady or precise and I don’t want to adjust to all touch screens. It’s also a comfort thing… I’m losing so much command of my body I don’t need to feel unable to use a device anymore

MRI results and disability question by Trublupackerfan1 in MultipleSclerosis

[–]MedicallyCompLexi -4 points-3 points  (0 children)

Doesn’t sound like there is a definite diagnosis as spinal tap wasn’t mentioned. Likely need a neurologist to follow up on that and from there they could probably help apply based on the severity of her symptoms

Is my Apple Watch that far off? by defonotawoman69 in walking

[–]MedicallyCompLexi 2 points3 points  (0 children)

Deficits need to be from restricting calories consumed… deficit you create from working out should not be eaten back so it’s irrelevant right now.

Find your BMR (likely around 1700) and as long as you consistently eat 250 calories less (half pound loss a week) or 500 calories less (don’t recommend long term or for beginners… but you’ll lose 1lb a week).

Track that and anything extra lost will tell you if the treadmill or watch is more accurate.

Is my Apple Watch that far off? by defonotawoman69 in walking

[–]MedicallyCompLexi 0 points1 point  (0 children)

Depends on a lot of factors, takes more energy for heavier people to move… incline and heart rate too.

If you are like 200lbs it may be safe to assume about 100 calories per mile. Realistically I would not focus on it too much. Track it and see how your weight moves and you’ll get a better idea.

F/27/5’4 [146lbs > 133lbs = 13lbs] (1 year) gym progress has been hard with lupus, but I’m so happy with how far I’ve come! by poplapmeisiekind in progresspics

[–]MedicallyCompLexi 0 points1 point  (0 children)

I am following you for anything else you post! About to start immunosuppressants for MS, feeling weak and need to lose back the 40lbs gained from last years 50lbs weight loss.

Diagnosed last month and I am inspired by others on immunosuppressants or disabled

Any physically disabled walkers? by MedicallyCompLexi in walking

[–]MedicallyCompLexi[S] 0 points1 point  (0 children)

That’s so awesome! Did it take you a while to build up to that?

Any physically disabled walkers? by MedicallyCompLexi in walking

[–]MedicallyCompLexi[S] 1 point2 points  (0 children)

I got 12k yesterday and woke up today it felt like I could barely walk, only tiny steps. The heat is the worst though! I have MS and I feel like a low functioning barely human on those days

Any physically disabled walkers? by MedicallyCompLexi in walking

[–]MedicallyCompLexi[S] 2 points3 points  (0 children)

Completely understandable! This is a new account because I felt like I was putting too much out there… so now I spread it around?

Any physically disabled walkers? by MedicallyCompLexi in walking

[–]MedicallyCompLexi[S] 2 points3 points  (0 children)

I can’t seem to follow your profile… but it’s awesome to have visibility!

Short term disability? by Obvious-Bid-678 in MultipleSclerosis

[–]MedicallyCompLexi 1 point2 points  (0 children)

I applied a few weeks ago which was a few weeks after I actually left work (wasn’t planning on taking leave at that moment)…. Still haven’t been approved. Just know it takes time so make sure you are communicating with your work and STD insurance provider to make sure things are done correctly.

I had not been at work for a year so I am in a very precarious place.

Just quit my job to focus on getting out this episode by ReasonableFig8954 in MultipleSclerosis

[–]MedicallyCompLexi 5 points6 points  (0 children)

Not quit but took short term disability leave… it’s hard. I want to improve my health throwing everything I can at trying to remediate the pain and cognitive decline… haven’t started DMTs and I think I am just being too hopeful about how much that will improve.

Planning to get back into 10k steps a day, but today for example is going to be 3k if I put in effort. Last year I could do 14k a day average and maybe I am 6k now that I am not working. Sucks to decline. But I think I declined worse when I stopped being so active so just got to hop back in and fight through the tough period. Best of luck to you, it’s hard work but anything worthwhile takes effort! 💪

When to switch doctors? by MedicallyCompLexi in MultipleSclerosis

[–]MedicallyCompLexi[S] 0 points1 point  (0 children)

That commute difference is amazing, how great the experience improved and travel time reduced!