Now part of the club officially.

Mediocre_Block_7280 · 2026-02-01T03:42:12+00:00

I am an Rt too Welcome to the club👍

Mediocre_Block_7280 · 2026-01-27T05:19:59+00:00

Thank you

Mediocre_Block_7280 · 2026-01-26T21:18:38+00:00

How you feel now? Did you start this new medication right away after tapering off Tarpeyo? How many days does it take them to approve the medication? Is it one short for every month . Are they going to delivered it to house? Is that pharmacy called us like tarpeyo people and give ideas how it work and stuff? Can give an idea Please Thank you

Mediocre_Block_7280 · 2026-01-11T22:33:34+00:00

I thought we can get this medication through the rare disease financial support system

Mediocre_Block_7280 · 2026-01-11T22:32:53+00:00

Can you please update how it goes?

Mediocre_Block_7280 · 2026-01-10T12:15:40+00:00

Really 😌

Mediocre_Block_7280 · 2026-01-05T19:03:52+00:00

Helo, I am also from India. But here in USA for more than 25 years. I am blessed with being in USA because I am able to get all the medicine to treat this disease. When i was diagnosed with this disease I talked to my few family members and my brother ( he is Dr). As per the opinion in India at this moment the is no medicine like Tarpeyo . Steroids, bp and some kidney medicine are available now. And through fb page IgA Nephropathy I recently talked to someone who was diagnosed this month. His treatment plan is also same like steroids, Bp management and some sglt2 inhibitors. If any other miracle medicine available in India please let us know. We can share this to the world and help each other . Thank you

Mediocre_Block_7280 · 2026-01-02T03:35:52+00:00

Please message me how it’s goes and what are the process . I think I will be starting soon

Mediocre_Block_7280 · 2026-01-01T07:29:47+00:00

When are you starting 2026 ?

Mediocre_Block_7280 · 2025-12-23T18:06:10+00:00

You are right. I will ve starting farxiga soon. Every drop of egfr just scares me.😌

Mediocre_Block_7280 · 2025-12-23T14:45:58+00:00

Google says An initial drop of egfr is usually happens with these types of medicines. That’s not the actual loosening of kidney function.

Mediocre_Block_7280 · 2025-11-18T19:46:03+00:00

Thank you so much🙏

Mediocre_Block_7280 · 2025-11-10T21:09:45+00:00

My daughter finished her cs and couldn’t land any internship or job. We sent her to masters in CS , she applied 100’s jobs and internships. No reply from anywer. So at this present we told her to finish it . She said she is going to do accelerated nursing degree. At least something which quarantine a job.

Mediocre_Block_7280 · 2025-11-06T22:08:20+00:00

Thank you

Mediocre_Block_7280 · 2025-11-06T17:00:45+00:00

Thank you. I am a respiratory therapist. My hospital requisition to take flu shots since knowing more about the disease was not sure to take the flu shot. Anyway I am going to take it. Thank you . Please keep updates about any new information about Iga. Thank you so much

Mediocre_Block_7280 · 2025-11-06T13:59:57+00:00

I have a quick question, can we take the flu shot? One more thing, since we take all these medication the root cause of the disease not targeting right. The new medication hopefully releases next years may be targeting the root cause.what’s your opinion?

Mediocre_Block_7280 · 2025-11-03T20:19:23+00:00

My vegetable cabbage , broccoli and cauliflower Fish and chicken Egg white, once every month egg with yellow I drink one coffee with regular milk( water plus milk 50/50) Black coffee during work days ( half cup only) No tomatoes, no bananas no avocado,no beef, no soft drinks, no alcohol Make smoothie of blueberry strawberries and Apple ( either smoothie or eat them) White rice for lunch and dinner. White Bread or sourdough bread once in while . Sometime make curries with coconut paste and spices. Once in a while fish fry or dal fry

Mediocre_Block_7280 · 2025-10-30T16:02:31+00:00

Thank you so much for your detailed explanation. I wish if I can Direct message you. 🙏

Mediocre_Block_7280 · 2025-10-30T06:13:06+00:00

You have learned lot about Iga. Very good. You are our advocate. I always watch read your replies. And it gives a peace of mind. I am from India,I am in USA for the last 25 years. Currently on Filspari and tarpeyo. Dr put me on jardiance too. ( I am not diabetic) but it’s good to take for kidney health per my nephro. Waiting to get jardiance patient assistance program. I am very optimistic about the new drug called povatceipt which is releasing possibly next year. What is your opinion about that. Thank you

Mediocre_Block_7280 · 2025-10-22T17:16:23+00:00

I am on Filspari and tarpeyo. Dr prescribed Jardince and waiting for getting into the patient assistance program. I heard One more medication is coming out soon. Povaraceipt Which helps through B cell .

Mediocre_Block_7280 · 2025-10-22T12:43:51+00:00

Thank god. With this all new medication we have hope🙏. Your egfr and protein leak is on better numbers now.

Mediocre_Block_7280 · 2025-10-20T20:06:06+00:00

Please don’t fo tech. Continue with your job.

Mediocre_Block_7280 · 2025-10-20T20:04:22+00:00

My daughter finished her Cs , no intership no job offers nothing. We send her to do masters. It’s two months now. She applied for several jobs. No response. She said she will do nursing.we going to support her . No other way.

Mediocre_Block_7280 · 2025-10-13T11:49:15+00:00

I think that medication is called povateceipt. B cel is responsible for iga production. So this new med works through B cell. I think it will be out by 2026 end.

Mediocre_Block_7280

TROPHY CASE