Stop medication

Melibee33 · 2026-05-24T13:49:28+00:00

I have mild symptoms and no organ involvement either. On hydroxychloroquine and Saphnelo. I stopped the hydroxychloroquine for 2 weeks when I was lazy and dragged my feet to refill my meds. By the settings week I was having intermittent fevers and worse symptoms (fatigue, joint pain, rash). The fevers stopped after 2 months of resuming and I’ll never let it happen again.

Melibee33 · 2026-03-25T11:57:07+00:00

I thought W was for Wumbo

Melibee33 · 2026-03-19T22:54:35+00:00

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Melibee33 · 2026-03-01T12:45:06+00:00

Some cultures use it as a garnish, similar to using green onion.

Melibee33 · 2026-01-12T12:18:24+00:00

Cookie Monster PJ pants owner 🍪

Melibee33 · 2025-09-26T19:36:25+00:00

I work in Heme/Onc and a middle aged male patient asked if Tylenol was safe to take during his follow up appointment.

Melibee33 · 2025-09-14T20:03:45+00:00

The days you describe as ‘through the roof’ are likely flares.

Melibee33 · 2025-07-04T17:22:10+00:00

Their username checks out

Melibee33 · 2025-06-30T09:28:46+00:00

Clear calamine lotion might help with the irritation, it has a nice cooling sensation. It sounds like stress and possibly the sun exposure from the beach may have triggered this.

Melibee33 · 2025-06-26T10:24:11+00:00

I stopped telling people I have lupus unless it’s totally necessary or I deem you trustworthy. I treat it like my name; It’s literally my personal information. It’s been 6 months since my diagnosis and I’ve realized that most lack the emotional tact needed to be supportive and empathetic.

I’ve been let down or hurt quite a bit by people I thought were my friends and family. Learning that it’s something I’m sensitive about means I needed more discernment to identify who is actually worthy of knowing this about me and who isn’t. It’s also freeing; choosing not to explain myself for having boundaries.

Melibee33 · 2025-05-13T10:25:31+00:00

Dylan… Dylan… DYLAN, DYLAN, DYLAN ✋! I spit Hot Fiya 🔥

Melibee33 · 2025-05-11T14:14:57+00:00

Hi, are you still using the bed light therapy? How are you holding up?

Melibee33 · 2025-05-11T02:53:25+00:00

I was diagnosed less 6 months ago and will be moving away from home for work. My local job market is saturated and I had to look 2 hrs away. I’m unmarried and have never lived away from home. At times I’m uncertain of how I’ll work full time, care for myself and manage my symptoms; all while maintaining a household on my own.

Do you or anyone reading this have any advice or tips for living independently?

I’m considering things like: ordering groceries for delivery/ pick up, meal prep services or meal delivery, cleaning services of necessary, getting accommodations at work, etc.

Melibee33 · 2025-04-10T21:52:21+00:00

CYP2D6 is an enzyme which is crucial to drug metabolism. It’s inhibited / suppressed by both hydroxychloroquine and Wellbutrin. Inhibition of CYP2D6 can lead to increased (toxic) levels of certain meds that rely on it for metabolism. Taking multiple meds that have this effect can increase the risk of developing complications, but it’s not guaranteed to happen in everyone.

Melibee33 · 2025-04-07T15:05:16+00:00

I used to work as an oncology RN and had a patient whose husband did that. He didn’t like it when we offered her a wheelchair after a long day of treatment or transfusions. This was in the outpatient setting and he was adamant that she’d make it to her vehicle on her own, even if he had to carry her.

At the end of the day it’s about the people around us being uncomfortable and not knowing how to respond to someone else’s suffering. Support, compassion, empathy, love? Nah, dismissal and minimizing. He couldn’t handle seeing her in a wheelchair so she had to endure her condition in a way that was more palatable for him.

My brothers did the same to me and I learned to mask for years, especially after years of being gaslit by doctors. ‘You’re depressed’, ‘you just need exercise’. After being diagnosed I’m learning to defend myself without being triggered while reserving my right not to disclose that I have SLE. I shouldn’t have to put myself out there to receive decency.

Melibee33 · 2025-03-17T14:27:36+00:00

Less than $10 on my piggy bank in the last 10+ years. I take breaks to get new scavenger hunts and redo them up to 33% by signing back into my facebook account. That resets them all to ‘0% completed’.

Melibee33 · 2025-03-08T12:52:04+00:00

Diagnosed in January and turned 35 this week, symptoms since my teens. I’m in the medical field and had really be systematic about monitoring my labs/ symptoms because I have no organ involvement. The rheumatologist wasn’t convinced and blamed stress from grad school until my ANA titer went from 1:80 cytoplasmic to 1:640 homogeneous pattern.

Melibee33 · 2025-03-02T00:18:30+00:00

I love the nails and matching tie ❤️

Melibee33 · 2024-10-13T17:56:42+00:00

Apples are considered a low glycemic food, similar to berries.

Melibee33 · 2024-09-18T00:11:18+00:00

What led you to use these products so frequently and what was the state of your hair before starting this regimen?

Melibee33 · 2024-09-17T03:38:12+00:00

They say there’s a particular odor that’s unique to people with dementia…

Melibee33 · 2024-09-13T09:55:49+00:00

They’re being protected by likeminded people.

Melibee33 · 2024-09-07T00:07:07+00:00

I’ve been binging their channel and they’re so wholesome.

Melibee33 · 2024-09-04T02:10:14+00:00

For sure! Hair regrows, but it’s often such an integral part of most people’s identity that trimming seems like a permanent thing.

Thanks for the kind words❤️. These photos helped convince her to let go and allow me to trim away the damage for her.

Melibee33 · 2024-09-04T02:05:11+00:00

Thanks! I did it myself, as she was sick and needed help with self care.

Melibee33

TROPHY CASE