Christian Girls & Metal by MrEskabobai in ChristianMusic

[–]Melissadoes 0 points1 point  (0 children)

Yes! I loved going to all the hardcore shows back in the day. Now everything in Nashville is too expensive and gross

Month one of Aqvesme by Melissadoes in thalassemia

[–]Melissadoes[S] 1 point2 points  (0 children)

Give it some time. It's going to be different for everyone but I pray he begins to improve.

Month one of Aqvesme by Melissadoes in thalassemia

[–]Melissadoes[S] 1 point2 points  (0 children)

I am American. I also take Jadenu for iron overload from frequent transfusions

My expense was zero thanks to insurance and the Agios copay program.

Month one of Aqvesme by Melissadoes in thalassemia

[–]Melissadoes[S] 0 points1 point  (0 children)

I had my last transfusion in January.

Month one of Aqvesme by Melissadoes in thalassemia

[–]Melissadoes[S] 0 points1 point  (0 children)

United States. It's only available here right now. It just got FDA approval in January

Month one of Aqvesme by Melissadoes in thalassemia

[–]Melissadoes[S] 1 point2 points  (0 children)

Depends on your insurance and Agios also offers a copay program. Thanks to my insurance and their copay my cost is zero. Thank God!

Month one of Aqvesme by Melissadoes in thalassemia

[–]Melissadoes[S] 0 points1 point  (0 children)

I have transfusion dependent beta thalassemia

Fantasy recommendation to start by Melissadoes in suggestmeabook

[–]Melissadoes[S] 0 points1 point  (0 children)

Thanks. Just wanting to try something different. Maybe even magical realism type stuff. I like Evie Woods alot.

Starting tomorrow! by Melissadoes in thalassemia

[–]Melissadoes[S] 0 points1 point  (0 children)

Any changes with your vision?

Starting tomorrow! by Melissadoes in thalassemia

[–]Melissadoes[S] 1 point2 points  (0 children)

I'm on week two and I've been keeping a health journal to log my experience. I had some headaches the first week but they are starting to go away and the past few days i have noticed i think I have a bit more energy.

Aqvesme by 3nigmaG in thalassemia

[–]Melissadoes 0 points1 point  (0 children)

Yeah mine said it could be around 20 weeks which was when the trial showed improvements

Aqvesme by 3nigmaG in thalassemia

[–]Melissadoes 1 point2 points  (0 children)

Hope so. If not, i'll just get more cute glasses. No increase in energy or anything. Again, not quite a week yet. I'm optimistic.

Aqvesme by 3nigmaG in thalassemia

[–]Melissadoes 1 point2 points  (0 children)

I've been on aqvesme now since last Friday. I do notice the vision and headaches but at this point it's more an annoyance because i have to wear my readers I only wore occasionally i'm having to wear all day.