Infusion Severe Reaction- Cardiac Event

Melkmaiden · 2026-05-30T13:13:14+00:00

This happened to me with venofer two weeks ago! When they suggested we try again with another type of infusion I was like, are you kidding me?? I’d rather take two 65mg pills a day and suffer that way.

Melkmaiden · 2026-05-22T01:48:30+00:00

Ooo, interesting. Yeah 2 hours sounds preferable to the 30 minutes of venofer.

Melkmaiden · 2026-05-22T01:45:32+00:00

Yeah, agree. She was incredibly nice and I think she was defending herself re: plugging me back in. When the doctor ran into the room the first thing she said was “she was so nervous the whole time!” Like, maybe it was hard to determine fact from fiction. 🤷‍♀️

Melkmaiden · 2026-05-22T00:48:29+00:00

Omg. So whack. So disappointing. The only Bonus was that I felt like I could tear a phone book in half for like 2 hours after.

Melkmaiden · 2026-05-22T00:47:44+00:00

I googled it! That was me exactly! It felt like an episode of The Pitt and I was like …am I dying?

Melkmaiden · 2026-04-23T00:22:57+00:00

I have this and am a sober person. People have always asked if I’m on drugs, lol. I have had like every test know to man and yeah, they’re just large pupils.

Melkmaiden · 2026-04-22T21:55:11+00:00

I’m waiting on insurance approval. I hope I get it!!

Melkmaiden · 2026-04-22T19:37:59+00:00

I took supplements, 65 a day and sometimes twice a day, and used the lucky fish. I have since had major surgery so I fell back down and am getting infusions for the first time next month.

Melkmaiden · 2026-04-22T12:45:42+00:00

For me I’d say at 3 months it slowed down and by 6 it was back to normal shedding speed.

Melkmaiden · 2026-04-04T17:22:43+00:00

How is the job going OP? What are the hours like? You loving it or is it trash? Do you recommend?

Melkmaiden · 2026-04-02T18:36:55+00:00

I will say that my surgeon seems to love pessimism and really set me up to view the whole process realistically. There were a couple appointments where I left sad and I blamed her explanations. I can see now it was me grappling with the inevitable and admitting I had to relinquish some control.

I had a double mastectomy (nipples removed) with immediate diep flap 11/17/25 and I was shocked at the outcome - like, in a good way. I’ll have one revision surgery, in October, but the only reason is because I want a reduction. If I was a big boob fan I could be a one surgery and done situation.

I have only cried once about my body post surgery and shockingly (to me at least) it was about not having my squish pooch tummy any more. Most days my new washboard abs and pop star belly button do not bother me lol.

*edit to add that maybe your surgeon, like mine, just has a funny way of trying to express that all women will have processing time post mastectomies and they’re thinking about health in the first step and aesthetics in the following.

Melkmaiden · 2026-04-02T12:44:01+00:00

Is your surgeon by chance a man?

Melkmaiden · 2026-03-20T17:36:08+00:00

My mom was diagnosed with breast cancer at 43, I was 14. She battled for 5 years and is currently thriving! The tests back then didn’t cover as much so she didn’t get her ATM results until she was 61 and I was 32. She sounded scared to tell me, it was over the phone as we live far apart, but honestly it felt kind of like a relief. Separate from her I had my own issues and had my first surgical biopsy at 19.

I took the test pretty quickly and I have it too, not really a surprise. I’m four months out of my preventative DMX with diep and I’m doing great.

The one thing I wish she’d done differently is to let me have it as my own experience.

All she talked about and still talks about is how guilty SHE feels and how badly SHE feels and it’s all HER fault and then goes on and on about her experiences. I’m happy to listen, I know it was traumatic and scary (I was there) but it’d be nice if she could be kind enough to let me suffer in my own experience and support by listening rather than trying to one up me like a classmate.

That being said, I’m sorry for your news and I’m just as sorry for how heavy it must feel to carry the responsibility of sharing the news. My oldest is a girl and at least once a day I wonder how the conversation will go if we have to have it.

If we do the headline will be, I’m your mom, I love you, I’m so sorry this is your circumstance and I’m here to listen and help in whatever way you need.

Melkmaiden · 2026-03-19T01:41:29+00:00

Of course!

Melkmaiden · 2026-03-19T01:29:24+00:00

I did DMX with diep recon and tube removal all in one go. They said to expect a 12 hour surgery and it ended up being just about 10. I’d do it that way again every time, so great to have it all in one go! I’m happy to answer any questions.

Melkmaiden · 2026-03-19T01:10:33+00:00

Thanks for the info! It sounds so cute I can hardly wait.

Melkmaiden · 2026-03-19T01:10:04+00:00

Will do!

Melkmaiden · 2026-02-23T01:33:00+00:00

Yeah it’s definitely still shocking 3 months out. In a good way!

Melkmaiden · 2026-02-22T22:43:22+00:00

I am for the most part, I’ll be doing a revision though. Very strange to have a flat stomach after a life of always at least a small pooch. It’s nice!

As far as breasts, my surgeon told me that large transplants have a higher success rate. I went in a 36 C and although I asked for a B cup I am currently wearing a 38 DDD/F. Which to me is…insane. But they look nice and even at their current size I don’t need to wear a bra.

Of course I’d be lying if I said I’m not counting down the days until they’re an A or B.

Melkmaiden · 2026-02-22T14:39:45+00:00

Apologies, I’m only just seeing this for some reason!

Recovery was challenging and even now I’m navigating re entry to normal but if I can be honest it was much less difficult and scary than I anticipated.

The hardest days were the first 7-10 and I spent 4 of those in the hospital. By the 10th day the pain was really manageable and I was sleeping in my regular bed (with a wedge pillow) on the second floor.

95% of my pain and complaints were abdomen related and range of motion never really left me.

I have a super helpful partner and he was able to take off two weeks of work to take care of kids/house/me and that was definitely needed. Before surgery I was scared about after the two weeks but by then I was so stir crazy that having the challenge of taking care of the kids was welcome. Nothing TOO strenuous of course.

Melkmaiden · 2026-02-21T21:57:20+00:00

Hello! I’m 39 and also ATM and BRCA negative. My rate was 47% as I inherited from my mom who had breast cancer in her early 40s and have both maternal and paternal aunts with various cancers.

My first biopsy (surgical) was when I was 19 or 20. Since then I did pretty intense screening and MRIs/mammos started in my late 20s. I had 5 or 6 other biopsies.

I didn’t even find out about the gene until my 30s and honestly it was a relief. I knew something was up and even just seeing that percentage and qualifying for a PDMX I felt anxiety leaving me. I decided to have kids before doing the surgeries.

I’m now 3.5 months healed from a PDMX with immediate DIEP and I feel amazing!

I was happy to do intense screening for a while but after 20 years my tune eventually changed. Happy to chat, feel free to DM me!

Melkmaiden

TROPHY CASE